Kidney stones, anyone ever have one?

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Shelliesv
Regular Member


Date Joined Apr 2009
Total Posts : 208
   Posted 4/7/2009 10:01 AM (GMT -6)   
I read that they are common for UC suffers. I had an abdominal CT to check for perforation and they found a 6mm stone (pretty good size from what I've read).
It is still in the kidney so I have no idea how long it takes before it will drop into the urethra and start causing pain. Anyone know?
Is there anything they can do while it's still in the kidney?

Last thing I need is more pain!
Diagnosed with Ulcerative Proctitis at 24 years old 1995/ Ulcerative Colitis in 1998.
In remission from 2005 - 3/2009.

Hospitalized for flare 3/2009.

Current Meds: Apriso 4/day, Prednisone 40mg per day, Rowasa Enemas 2/day, Culturelle


MustLoveDogs
Regular Member


Date Joined Jan 2009
Total Posts : 394
   Posted 4/7/2009 10:05 AM (GMT -6)   
I don't have UC but I have had stones. Yours is on the larger side (mine were like 2-3 mm) There is a procedure called Lithotripsy (sp?) but I have heard you don't want it done unless you absolutely have to. The stone is broken up during the procedure and then you pass it. Ouch. There is no set time line - you could have it sitting in your kidney for months or years.

Hope you aren't in too much pain :(
Gwen
 
10 yr old daughter diagnosed with "UC-like Crohn's" 12/08
currently on 2400 mg Asacol 


mbx5
Regular Member


Date Joined Sep 2007
Total Posts : 365
   Posted 4/7/2009 10:12 AM (GMT -6)   
I have had kidney stones throughout my bout with UC. I recently went to the ER with major kidney pain....after a CT of my kidneys, and an ultrasound, I was told both kidneys have multiple stones...and that I am a chronic stone guy....nice.... I passed one the other day into a strainer....it was huge...not sure of the size yet - it is in a specimen container getting ready to be given to my urologist. I had bad kidney pain, nausea, and felt overall sick for a few weeks until it finally came out... The kidney pain and bleeding was on-and-off....

If the stone is too large to pass, you can get it blasted via lithotripsy....I had that done once....its painless except for the catheter...that is another story....


Drink cranberry juice, and also lemon juice...I was told that can dissolve your stone a bit.... Get 100% juice, not the fake sugar drinks.... Keep hydrated!!! Drink lots of liquid...

If the pain gets too intense, get pain meds....It can get to the point of vomiting, so be sure you are prepared ahead of time if you can pull it off w/ your doc.
34 yr old male. UC for 14 years. Started left-sided, most recent scope shows pancolitis. 30mg pred (as of 2/01/09), 12x pills Asacol per day, 1mg Atavan per day (anxiety) when needed, 20mg paxil per day, Super-omega fish oil pills - 1x per day, Flax oil pills - 1x am, 1x pm, Culturelle probiotics - 2x am, 1x pm, Spinach and sunflower seed diet (moderated recently due to kidney stones). Multivitamin. Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (and I am still more afraid of my UC!!) "I poop in the woods because I can"


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 4/7/2009 10:30 AM (GMT -6)   
I went to the ER after having the flu for a week...because I had sudden really horrible pain in my left side... ended up having one kidney stone in my kidney and one already on its way down my Urethra.... they hurt like a b i t... thank GOD for Vicodin!
Kara, 22F Married.
Latest-Went to ER cuz I couldn't eat for 5 days and was having severe flare up after passing two kidney stones after a week of the flu. (long month)
GI tried to taper me off of pred fairly fast in hopes to keep me on Lialda and at a lower dosage of pred. to try mesalamine enemas again.  Starting the Imuran as soon as labworks done... longer pred time....yippee *rolls eyes*
Medications:Prednisone 40mg Again! (groan)Lialda 4 a day until Imuran
I am so sick of this disease!
 
 


Joylu
Regular Member


Date Joined Jan 2008
Total Posts : 362
   Posted 4/7/2009 1:38 PM (GMT -6)   
I have had stones on and off for 9 years.(still have them on both sides.) Even before UC. I have had 3 lithotriposy with no tube put in to pass stones after. All procedures were painless, and I never felt the fragments pass.
There is no pain greater than a kidney stone on the move.
Ulcerative proctitis. On Asacol 3 3x a day, and Meslamine enemas nightly.
Blood is a bigger problem for me than D.


Iflyfish
Regular Member


Date Joined Mar 2009
Total Posts : 45
   Posted 4/7/2009 4:26 PM (GMT -6)   
Yes! I had a 6mm too ! My GI also said KSs are more common in UC patients. It had to be removed through my Ureatha - they put you OUT of course...
It was terribly painful - Dilautin and Vicodin just took the edge off of the pain. My Doc basically said I'd never pass a 6mm - it would be horribly painful - I'm glad they did the procedure to remove it, it was painless.

Now I drink plenty of water and squeeze a lemon it - not a wedge, like a 1/2 a lemon...and always have plenty of organic Lemonaide around.
Daily: 100mg Immuron, 6x400mg Asacol.
Monthly: inject 400ml CIMZIA
5-lac Probiotic, Spinach and Sunflowerseed Diet,
Omega Oil, Flaxseed Oil, daily vitamins, strictly no alcohol.
Prayer.


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 4/7/2009 4:51 PM (GMT -6)   
i've had 2 in he past year...to add insult to injury i drove to the er at 3 in the am for the 1st one AND RAN OUT OF GAS!!! I had to stand there doubled over pumping gas just to get there! horrible! the 2nd one passed about 10 minutes before i was going to head to the er...i kind of figured what it was that time so i wasn't so scared.
35 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently tapering prednisone (15 mgs) and I've been on 6_MP for 2 months.
In the middle of a bad flare now for 6 months...lost almost 30 lbs.


Shelliesv
Regular Member


Date Joined Apr 2009
Total Posts : 208
   Posted 4/7/2009 4:56 PM (GMT -6)   
Iflyfish said...
Yes! I had a 6mm too ! My GI also said KSs are more common in UC patients. It had to be removed through my Ureatha - they put you OUT of course...
It was terribly painful - Dilautin and Vicodin just took the edge off of the pain. My Doc basically said I'd never pass a 6mm - it would be horribly painful - I'm glad they did the procedure to remove it, it was painless.

Now I drink plenty of water and squeeze a lemon it - not a wedge, like a 1/2 a lemon...and always have plenty of organic Lemonaide around.


Was your stone already causing you symptoms when this happened?

I'm wondering how long it can stay in the kidney before it will come out to torment me! Maybe I'll get lucky and it will never come out? I wish!
Diagnosed with Ulcerative Proctitis at 24 years old 1995/ Ulcerative Colitis in 1998.
In remission from 2005 - 3/2009.

Hospitalized for flare 3/2009.

Current Meds: Apriso 4/day, Prednisone 40mg per day, Rowasa Enemas 2/day, Culturelle


Iflyfish
Regular Member


Date Joined Mar 2009
Total Posts : 45
   Posted 4/9/2009 8:25 AM (GMT -6)   
Shellie -
My stone didn't cause any problem until it started travelling from Kidney to bladder - that's when I knew I had a problem - I have no history of KS's - a good friend, had just had o bout with them about 2 months prior - so when my back started getting that knifing pain - I called my GI - and he said they are more common for UC folks. Before it got too bad I had my wife drive me to our ER. I stongly suggest you preemt any attack with meds and a game-plan in case your stone starts to travel.

By the time I was in the ER - I was in excruciating pain - and we all know the wait time at most ER's...thankfully i was hooked up to an IV when I had one wave of the KS attack - and the Dr. on call administered some pain med to my IV. I hate to think what THAT would have felt like if I was just at home or on a job-site. Point is, be prepaired. Have a plan and pain meds ready to use incase things get ugly.
Iflyfish
Daily: 100mg Immuron, 6x400mg Asacol.
Monthly: inject 400ml CIMZIA
5-lac Probiotic, Spinach and Sunflowerseed Diet,
Omega Oil, Flaxseed Oil, daily vitamins, strictly no alcohol.
Prayer.

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