So the sorbitol in my fish oil soft gels has put me in a downward spiral. I feel just as bad today as I did before I started Remicade last summer. I have no appetite, I'm dehydrated, I'm going several times a day, theres blood and pain.... it's terrible. I called in sick to work yesterday, but I'm trying to survive the workday today.
I called my dr yesterday and they are going to get me in 2 weeks early for my next remicade. They are also going to increase the dose to 10mg/kg. I go in a week from Friday. In the meantime, I just have to hang in there.
Any suggestions on how to make the next 9 days bareable???
Diagnosed w/IBS: Oct. 2006
Diagnosed w/UC: Jan. 2007 (proctitis), July 2008 (pancolitis)
Canasa (helped the first flare when it was just proctitis); Rowasa enemas (did not help as the following colonoscopy confirmed pancolitis); Lialda ( 2 pills in the morning, 2 pills in the evening, soon to be 2 pills in the morning only once I'm off steriods); Prednisone; Protonix (only took while on prednisone); Remicade infusions, started at 5mg/kg, increased in March to 7.5mg/kg (started Aug 2008 - 6 infusions so far, next infusion on 4/30 continuing every 8 weeks); Zyrtec-D (for allergies); Toprol (a generic form, 25 mg, for a rapid heart rate)
Supplements: Women's One-a-day multi-vitamin; Super B-complex
w/vitamin C, Iron supplements, Omega-3 Fish Oil (coated, not sure how much except one soft-gel daily), Aloe Vera supplement (two daily), Acidopholis
Diet: Spinach and Sunflower seed butter diet (starting 3/21/09)
Current Status: Reached remission for a few weeks in October 2008, but symptoms returned after I allowed myself to enjoy wine again.... gave up wine and have not been in full remission again yet.