Good GI Doctors in Washington/DC Area/Baltimore? Area ??

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B00e00n00
Regular Member


Date Joined Mar 2009
Total Posts : 55
   Posted 4/8/2009 10:59 AM (GMT -6)   
Anybody know of any good doctors in this area who would be willing to work with me with diet and stuff. My current GI is not cutting it.

EMPHASIS ON open mindedness to different approaches.

Anyone live around there know any?
UC since 2006

2009 UC Pancolitis though Primiarly Left Sided, Active Moderate

Current Meds: Lialda 4 tab a day
Predinsone (40 mg a day) since 3/30 Not doing anything, hopefully something soon!

Current Supplements:
Vit. B-12, Vit. D3, VSl#3 Probiotics, Calcium citrate

What does remission feel like, I don't remember!

Nip UC in the bud with diet before it nips you in the bud (or butt) for good!


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 4/8/2009 12:08 PM (GMT -6)   
When I lived in D.C. I saw Allen Ginsberg with GWU Medical Faculty Associates. He did studies on new meds, really stuck his neck out for me with FDA. I benefited from that, but he led me rather than me leading him. He was all about the medicine though, not a lot of diet advice as I recall. But a really smart guy.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion), trying Curamin. 
Flaring, seasonal? or supplements too harsh? Back on prednisone, tried to taper but now back up to 20-30 after several really bad days. Waiting for insurance decison on Humira...soon... 


B00e00n00
Regular Member


Date Joined Mar 2009
Total Posts : 55
   Posted 4/8/2009 4:17 PM (GMT -6)   
Allen Ginsburg, think I've heard of him of before. I'm glad he was a help to you but unfortunately doesn't sound like a good fit for me though, thanks for the info.
UC since 2006

2009 UC Pancolitis though Primiarly Left Sided, Active Moderate

Current Meds: Lialda 4 tab a day
Predinsone (40 mg a day) since 3/30 Not doing anything, hopefully something soon!

Current Supplements:
Vit. B-12, Vit. D3, VSl#3 Probiotics, Calcium citrate

What does remission feel like, I don't remember!

Nip UC in the bud with diet before it nips you in the bud (or butt) for good!


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 4/9/2009 1:43 PM (GMT -6)   
You would probably benefit from consulting a naturopathic doctor, one that has a record of working with digestive disorders. I found a great one where I live now, very helpful advice on diet and supplements. I learned about mine from my cat's homeopathic vet...but you can probably find info online.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion). 
Flaring, seasonal? Back on prednisone, tried to taper but now back up to 30 after several really bad days. Humira denied, waiting for approval to start Remicade. 


Supa
Veteran Member


Date Joined Jul 2008
Total Posts : 748
   Posted 4/9/2009 2:22 PM (GMT -6)   
I have heard good things about Ginsberg as well, but only from other docs.

Mine is Digestive Disorders Associates in Annapolis-Dr. Michael Epstein. But definitely he sounds like he wouldn't be a good fit. He doesn't think diet has any impact on the disease.

Before him, I had a doc with AAGA in Annapolis and they were just as bad. Worse actually, when you factor in their horrible bedside manner.

My acupuncturist's daughter also has UC and has gone to a lot of docs too-I will ask her who her daughter sees now. I know her daughter has been seeing a naturopath recently and has had GREAT success going gluten free.

I don't know where you are located, but I will try and get some additional info the next time I go for acupuncture.
Laura
 
33 years old, stay at home mom of 2 girls, ages 3.5 and 2.5
 
Diagnosed in 2007
Currently on:
Asacol 6pills/day
Biweekly injections for Humira clinical trial-going well so far!!
Canasa suppositories-1000mg nightly for recent flare


B00e00n00
Regular Member


Date Joined Mar 2009
Total Posts : 55
   Posted 4/9/2009 3:46 PM (GMT -6)   
Petty, thanks for the info, I just got a list from my local health food store.

Supa, I live In Bethesda, MD (about 5 or so miles from the capital) Please let me know, info much appreciated!!
UC since 2006

2009 UC Pancolitis though Primiarly Left Sided, Active Moderate

Current Meds: Lialda 4 tab a day
Predinsone (40 mg a day) since 3/30 Not doing anything, hopefully something soon!

Current Supplements:
Vit. B-12, Vit. D3, VSl#3 Probiotics, Calcium citrate

What does remission feel like, I don't remember!

Nip UC in the bud with diet before it nips you in the bud (or butt) for good!


Supa
Veteran Member


Date Joined Jul 2008
Total Posts : 748
   Posted 4/9/2009 7:57 PM (GMT -6)   
Will do-I need to make an appt to see her next week, so I will be sure to ask her about this for you. I know her daughter has gone through a number of docs because they just weren't listening to her needs. Blinders on no doubt!
Laura
 
33 years old, stay at home mom of 2 girls, ages 3.5 and 2.5
 
Diagnosed in 2007
Currently on:
Asacol 6pills/day
Biweekly injections for Humira clinical trial-going well so far!!
Canasa suppositories-1000mg nightly for recent flare


B00e00n00
Regular Member


Date Joined Mar 2009
Total Posts : 55
   Posted 4/10/2009 1:58 PM (GMT -6)   
Thank you so much Supa! I have my email in my profile, just email it to me when you get it.
UC since 2006

2009 UC Pancolitis though Primiarly Left Sided, Active Moderate

Current Meds: Lialda 4 tab a day
Predinsone (40 mg a day) since 3/30 Not doing anything, hopefully something soon!

Current Supplements:
Vit. B-12, Vit. D3, VSl#3 Probiotics, Calcium citrate

What does remission feel like, I don't remember!

Nip UC in the bud with diet before it nips you in the bud (or butt) for good!


Supa
Veteran Member


Date Joined Jul 2008
Total Posts : 748
   Posted 4/10/2009 2:02 PM (GMT -6)   
I will do that-and I am going to go call her now so I can set up an appointment! (I usually see her on Wednesdays because that is the day my mom can watch my kids)
Laura
 
33 years old, stay at home mom of 2 girls, ages 3.5 and 2.5
 
Diagnosed in 2007
Currently on:
Asacol 6pills/day
Biweekly injections for Humira clinical trial-going well so far!!
Canasa suppositories-1000mg nightly for recent flare

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