How do you know you are in remission?

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Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 4/8/2009 11:07 AM (GMT -6)   

How do you know you are in remission? Does remission mean you are completely off your medication? Or does it mean you are symptom free? Or does it mean when the doctors look at you they cannot tell if the UC is there or not?


Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- 1 500mg pentasa in the morrning and 1 250g Asacol in the evening
Diet- experimenting with raw foods diet. given up wheat and dairy, occasionly eat fish. Raw foods diet is 80% raw foods.


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 4/8/2009 11:11 AM (GMT -6)   
Remission does not mean you're off medication. This is a chronic disease, and medication is needed not just to achieve remission, but to maintain it.

It means you have minimal or no UC symptoms. If a colonoscopy shows no inflammation, you're truly in medical remission.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 
.


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 4/8/2009 11:14 AM (GMT -6)   
I agree with Judy 100%.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, 40mg 30mg 20mg 15mg 10mg of Prednisone (quick taper), Culturelle probiotic, and Zoloft (25 mg).


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 4/8/2009 8:01 PM (GMT -6)   
I'm symptom free and med free. I haven't had a colonoscopy done in a couple of years; so I don't know what it looks like inside. I'm thinking of getting one done in July. I would like to know whether or not there are any scars from the three flares I had.
Joy - 47 yrs and counting
Colitis Dec 06 (also have IBS)
Currently in remission
Don't expect your doctor to cure your health problems. Your health is your responsibility.

Lexapro (for stress), Probiotics and Vitamins (a whole bunch of them)
Avoid HFCS, foods high in fructose, artificial sweeteners
When flaring: eat anti-inflammatory foods, avoid pro-inflammatory foods
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 4/9/2009 3:55 PM (GMT -6)   
     Joy, you are a lucky duck!  When I went into my first remission in 1998, I went off my meds.  Enjoyed two full years, symptom free, med free.  False security!  Had a flare, went back on drugs.  Symptom free for another year...went off meds...flared the following year.  Guess what I am trying to establish here is that I, personally, need to take the meds in order to keep the UC under somewhat control.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.

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