I am back on these Boards after an extended absence! I was dx with UC in 1995 when I had an episode of Clostridium-Dificile that became CHRONIC. NO GOOD. 2 of the neurotoxins generated by that infection are quite deadly. And while having it, you certainly WISH you were dead!
I was referred to a Gastro right away. Nobody else wants to deal with highly contagious "gut" diseases!!! When the CD kept returning after repeated treatments of course I had a sigmoidoscopy, then a colonoscopy--which revealed Diverticulitis & UC. Yay. THAT was why my intestinal immunities could not straighten out and "get well".
After a couple of other treatments (one a resin that you drink), that made me incredibly ill, I was put on Asacol 800mg 3x a day, Reglan 3- 4x a day (? dose) for spasms, and Prevacid to shut down my stomach acid production--just give the whole thing a break.
I MOVED to SC a year ago and my Primary Care Doc yanked me off the Reglan because he was afraid it would cause a movement disorder, Tardive Dyskinesia. Well, I'd been taking the med for 14+ years and it did nothing but help me. I was PI$$ED, but he would not listen. So I have a lot of gut PAIN now. I'm treated for a different Pain Disorder though, and have "extra" meds for when it gets REALLY bad. Honestly, once or twice a month--I end up taking some because of my gut pain!!!
Anyway, wouldn't it be nice if they came up with something new that could make us feel really GOOD???
"When I stand before thee at the day's end, thou shalt see my scars and know that I had my wounds and also my healing"~Rabindranath Tagore
DISORDERS: Osteoarthritis; Degenerative Disc Disease (degeneration at C- 2 to 4 with Osteophytes, T- 8 to 12; L-4 &L-5); Facet Joint Disease through out; Spinal Stenosis; Neurogenic Claudication; Anterior Displacement at the L-4/L-5 site; De Quervain's tenosynovitis of the wrist; Ulcerative Colitis; Diverticulitis; Chronic Clostridium Difficile; Irritable Bowel Syndrome
TREATMENTS: 3 Radiofrequency denervations (Thoracic/Lumbar Facet Joint Nerves); 2 Epidurals (Cervical Herniations, Cervical Facet Joints)
MEDICATIONS: MSContin ER 60mg 2x; Morphine Sulfate IR 15mg 2x prn; Naproxen 500mg 3x; Tizanadine 2mg 1- 3 at bedtime, 1- 2 2x daily; Clonazepam 1mg; Wellbutrin 400mg; Lexapro 30mg; Topomax 100mg; Provigil 200mg, 2x; Metoclopramide 20mg, 2x; Asacol 400mg, 3x