Kinda random, but overall observance (just a thought)

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Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 4/8/2009 9:54 PM (GMT -6)   
From all I've read, I just had to say that Ulcerative Colitis is really a funny disease. Everyone reacts differently to different foods, we all react to life differently with this disease, this disease is just like people. As a person, we are very much individuals, this disease is individualistic.

Food wise, I can have sour cream, but not regular milk. Can't have regular milk products that isn't cooked, but I can have sour cream? I can also have cheese cake. It's just weird. I explain what I can have and cannot have to people and they look at me like that's weird. I guess if we all end up having a party, the meal that night would be extremely picky, and we all would just have to eat the item we bring. LOL smilewinkgrin
27 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)
Taken off Imuran 1/15/09
Only taking Humira.

Can't take Asacol, Allergic to Remicade


Malkavian
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Date Joined Mar 2009
Total Posts : 1439
   Posted 4/8/2009 11:46 PM (GMT -6)   
It's interesting, but it's also annoying. Since there's no one size fits all approach, there's a lot of guesswork involved in management. It takes a lot of trial and error to figure out things, foodwise and medication-wise.

I feel lucky, a lot of foods that bother other people I'm fine with (here's looking at you, dairy). I'm still sensitive to too much saturated fat or fried stuff, though.
21, female, diagnosed 3/6/2009
Mild ulcerative colitis from rectum to mid transverse colon
Currently in remission
Currently taking Asacol (3x/day) and Calcium/D supplements


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 4/9/2009 6:37 AM (GMT -6)   
I'm the same way. I can have sour cream, cheesecake, whip cream and cheese but regular milk really bothers my gut - gives me tremendous gas and pain. I think that is one reason why doctors don't say much about diet affecting Uc because they can't say to avoid this or avoid that since everyone is different.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Sweetie31105
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Date Joined Aug 2008
Total Posts : 903
   Posted 4/9/2009 7:38 AM (GMT -6)   
Yeah, when I was first diagnosed, I wanted my doctor's opinion on diet and a book I found which was the SCD Diet. All he told me was that there is no real exact diet to help UC. When first dealing with this it was annoying. One thing about me which I think is funny, I can't have corn. Not one bit of Corn. That's totally odd. But of 'course this UC is funny in itself.
27 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)
Taken off Imuran 1/15/09
Only taking Humira.

Can't take Asacol, Allergic to Remicade


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 4/9/2009 7:42 AM (GMT -6)   
Actually corn is hard on everyone including healthy individuals. The shell on the corn is undigestable and in a healthy person that shell will be seen in their stool. With us however, our colons are usually in a bad way that the shell just scrapes along causing us grief. It takes a while to figure out what we can eat and what we can't. Heck it took me 10 years to come to the conclusion that SOME FOOD bothers me because no one told me that I had to watch what I ate, including the doctor. I was very naive about Uc until I found HW.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Peety
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Date Joined Mar 2008
Total Posts : 2855
   Posted 4/9/2009 1:59 PM (GMT -6)   
Medicine is not an exact science, the human body is just too complicated!
And it's not until you get sick that you realize doctors are just other human beings trying their best to figure things out, based on what they read and their own experience with patients, and they don't have all the answers either.

I used to have a pretty short list of things that bothered me, and usually just got into trouble when I ate too much! Which I still do, too often. Now that I am not eating wheat, eating is just not as fun as it used to be. Eating out is especially not as fun as it used to be, and cooking will never be fun for me. Poor me.


49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion). 
Flaring, seasonal? Back on prednisone, tried to taper but now back up to 30 after several really bad days. Humira denied, waiting for approval to start Remicade. 

Post Edited (Peety) : 4/9/2009 3:46:09 PM (GMT-6)


Sweetie31105
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Date Joined Aug 2008
Total Posts : 903
   Posted 4/9/2009 2:55 PM (GMT -6)   
Sometimes I get the "poor me" feeling when I see something that I've loved in the past and know that I can't have it anymore. I understand that feeling. I guess you can't get over it until time goes on. I've gotten used to not being able to have milkshakes, regular milk, and other related items. I've gotten used to it, but every once in a while the "poor me" feeling comes. Ahhhhh.... the life with UC.
27 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)
Taken off Imuran 1/15/09
Only taking Humira.

Can't take Asacol, Allergic to Remicade


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 4/9/2009 3:08 PM (GMT -6)   
What I miss are ice cream sundaes! Every now and then in the summer time the kids and I would walk up to the ice cream parlor. But now when they mention it, I sort of wince because I know I can't have them. I will sometimes go anyway but I take a Lactaid pill - not that it always works but hey, some things are just worth the discomfort :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 4/9/2009 6:12 PM (GMT -6)   
Sure is Red, but I have an overly concerned husband and will tell me "I told u so" if I don't take his advice.
27 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)
Taken off Imuran 1/15/09
Only taking Humira.

Can't take Asacol, Allergic to Remicade


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 4/9/2009 6:28 PM (GMT -6)   
I do fine with corn, don't usually see it in my stools but then my stools are formed pretty good, I especially love corn on the cob.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)

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