I'm definitley thinking about Remeicade as welll and doing all the research I possibly can. I have an appt with my Flordia GI on 4/30 to talk about it in more detail but I'm flying up to my parents in NY to get a second oppinon from one of my dad's freinds who is a GI.
Most old school doctors who I speak to cringe when I mentione Remicade because they beliefve that theres no long term data to state that the drug is ok for you; the drug has only been out since '98. Also, it seems that most who are on the drug have succes for about a year or 2 and then they are back to their regular symptoms. Is it worth it to be in semi remission for a few years and then be back in to UC symptom mode along with the possible side affects of Remicade?
Anothe reason Im a little skeptical about starting Remicade is because it's said to be the last resort, I'm only 25, I dont want this to be the last resort before I have to have my colon out, I want my last resort to come a long way down the road.
It's a really tough decision but who knows, it could be a good one.
Age: 25 / Male / Florida
Diagnosed: 11/08 / Pancolitis
Asacol - 2 x 3 day (waiting for results)
Prednisone / ended 1/09 (started at 30mgs and tapered down)
Mens Multi Vitamin - 1 a day
Metamucil Wafers - Once a day
Jaro - Dophilus Probiotic (3.4 Billion) - 1 a day
Diagnosed with PSC: 3/9 --now taking Urso