pb4, if you'd read my posts, you'd realize that I'm not forcing anything on anyone. I'm just sharing what worked for me. I just felt the need to point out to PSA.Delhi that being on a high dose of pred for 4 weeks (he deleted the post where he stated that, and I think one other, so it makes my posts now seem like I'm a crazy person) was not necessary in my case, and if I'd followed that advice, I'd still be on 40 mg instead of the low dose I'm now on. My "why not try that first" maybe seemed forceful, but I was more thinking for MY case. My doctor is really reluctant to prescribe pred in the first place and does not allow patients to be on it for any longer than three months at a time due to the risk of long-term side effects. He moves on to other meds if he's got a patient who can't get off the pred.
Maybe what my doctor is doing is unconventional, but it's clearly working for me, and maybe it will work for others as well. I'm sure he knows plenty about
pred, so please don't suggest that he doesn't. The longer you're on a high dose, the more slowly you have to taper because the adrenal glands are more suppressed (it apparently takes a week for them to quit producing cortisol completley), so that's probably why it was safe for me to drop by 10mg at a time and to do so as quickly as I did. I have had NO bad side effects from this schedule. I have also shared the schedule with my sister, who is an MD. She's not a GI, but she certainly fully understands prednisone and how it can be used, and thought the schedule my doctor put me on was fine.
I do know that pred is just used to get inflammation under control and does not work to keep one in remission. It's just used to get a patient out of a flare and is not used as a maintenance med because it's not effective for that use. I learned that within the first week I had UC.
I also know that some docs aren't worth a crap. That's part of the reason I'm doing so much research...so that I have a better chance of knowing if that's the case and can find a new one if I need to.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly,
40mg 30mg 20mg 15mg 10mg of Prednisone (quick taper), Culturelle probiotic, and Zoloft (25 mg).