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PTL
New Member


Date Joined Apr 2009
Total Posts : 9
   Posted 4/10/2009 8:42 AM (GMT -6)   
I've been on 40mg of pred for 2 weeks and I'm not seeing any improvement. I'm still bleeding a ton and the number of bowel movements has actually increased from about 15 to around 30-40 a day. I can't take any 5 asa's. I'm supposed to taper down to 30mg of pred on Tuesday. Shouldn't I be seeing some improvement at this point?? At least less blood?

kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 4/10/2009 8:51 AM (GMT -6)   

You really need to call your doctor and tell him/her/NP or PA what is going on.  They will advise you. 

ElaineNY


 
Senior - New diagnosed with proctosigmoiditis - 6/2008  Cannot tolerate mesalamines, Canasa, etc. Tried, Colozal, steroid enemas, etc. - started working but severe side effects occurred.
Started on prednisone Feb.7, 2009 - tapering to 20 mg. for two more weeks. Bleeding returned - no call back from doc so I upped prenisone to 25mg. on my own - 6MP - 50 mg. 4/2/2009 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 4/10/2009 9:00 AM (GMT -6)   
I agree that you should call your doc. Prednisone typically works fast, so there should be some noticeable improvement within 2 weeks. He might get you to increase the dosage instead of tapering down. My first prednisone course started at 40mg, but I had to bump up the second one to 60mg.
Rio, 33 year old male. Diagnosed with UC in 2006
100 mg Azathioprine, 4800 mg Asacol
VSL#3 x 3 times a day, Metamucil wafers
Vitamin E enema or Mesacol/Asacol enema at least once a week
Spinach & sunflower seed diet


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 4/10/2009 9:06 AM (GMT -6)   
Definitely call your doc. I noticed improvement the day after I started pred, and by the second day I was down to my normal 1-3 BMs/day. He may have you bump up to 60mg...I've heard that's what it takes sometimes.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, 40mg 30mg 20mg 15mg 10mg of Prednisone (quick taper), Culturelle probiotic, and Zoloft (25 mg).


PTL
New Member


Date Joined Apr 2009
Total Posts : 9
   Posted 4/10/2009 9:15 AM (GMT -6)   
Thanks for the advise. I just called the doctor. I started the SCD yesterday and was wondering if anyone on the diet noticed a change in the amount of bleeding after starting the diet. I hoping it will help slow the bleeding down also. A formed stool seems a million miles away....

fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 4/10/2009 9:19 AM (GMT -6)   
Are you on anything besides pred? It seems like you should be on some sort of a maintenance drug...perhaps 6MP or azathriopine. You'll need to be on something as you taper off the pred. What about rectal meds? Maybe a steroid suppository or enema would help you; the topical stuff often works faster and more effectively than oral.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, 40mg 30mg 20mg 15mg 10mg of Prednisone (quick taper), Culturelle probiotic, and Zoloft (25 mg).


fargman
Regular Member


Date Joined Dec 2008
Total Posts : 74
   Posted 4/10/2009 11:03 AM (GMT -6)   
I'm fairly certain that your GI will increase your dosage once you tell him that you are bleeding and going upwards of 40 times a day. You definitely shouldn't be tapering down to 30mg. I usually start as 60mg like other posters have mentioned. I feel for you, I've been in the 30-40 times a day boat before, and it's hell. Hang in there.
Diagnosed '93. 
 
Asacol, Prednisone, Remicade, Imuran
 

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