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Scorpion24
Regular Member


Date Joined Mar 2009
Total Posts : 63
   Posted 4/10/2009 4:39 PM (GMT -6)   
Ever feel like you just can't take it anymore... your UC is spreading and getting worse and you're just not you anymore!

lost count of how long i was in the bathroom today
cry it's a hard hit, i feel like i want my colon out asap... just can't take it - am I the only one with these days...
Born with Ricketts (Feb, 1990) --beat it--
Diagnosed with Proctosigmoiditis (March, 09) --beating the 'crap' out of it--

Current status: flare-up


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 4/10/2009 4:43 PM (GMT -6)   
You are not the only one with those days! My last flare I had one of those days - okay - maybe more like a dozen... I remember only wanting to feel well again.

It was a long road, but I did start feeling well again. I hope you do too - and soon!
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  yo-yoing between remission and a mild flare
Lialda 4 per day,  Azathioprine 50mg, Aciphex, Effexor XR, Forvia, Fibercon, and Culturelle
Remicade: 1st infusion 06/17/08:  Next infusion: April 1 after the tooth infection is gone :(
Last Prednisone dose:  7/15/08
 
Co-Moderator UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5963
   Posted 4/10/2009 7:05 PM (GMT -6)   
     Last year I actually thought I was gonna die.  For real!  Even drug my husband out and we bought burial plots.  I was in the hospital for ten days but still ill for the next seven months....a real bummer.  But....there IS light at the end of the tunnel and I don't mean the afterlife..I mean here.  It will get better.  Just watch your diet, take your meds, listen to your doctor and PRAY.  That's all you can do kiddo.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 4/10/2009 7:24 PM (GMT -6)   
I've had this for 17 years so of course I know exactly where you are coming from. A couple years ago I was asking my doctor to yanked the ole colon out but he said I wasn't ready. I really really wanted to be rid of this diseased thing. But then I hit a really nice remission (colonoscopy proven) and even though if I had to have my colon taken out, I would still do it but as of right now I am glad that I didn't. It truly does get better - honest! You are newly diagnosed and the first few years can be tough. Hang in there and vent here as often as you want because we have all been where you are now.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 4/10/2009 10:08 PM (GMT -6)   
Many of us are having all sorts of issues with their UC and some have many other serious problems on top of it. It amazes me how much stuff I'm going through health wise in addition to my UC and severe IBS...sometimes I wonder if I'm going to be in pain for the rest of my life and lately I'm getting hit from many different sides, but I keep the faith and just keep fighting back...yes there are somedays I do want to give up and just cry as the pain was so bad the thought of dying entered my mind way too much, but by the grace of God I'm feeling better. Hang in there!


Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4/2)
Corti Foam p.m. 3-4X per week
Curcummin and Probiotics/Rueteri.
Bowel Soother and IntestiNew, Fish Oil, Calcium/Mag/Zinc, Multi Vitamin and Melatonin
Eliminated Fructose and Corn Syrup
Could never tolerate artificial sweetners
I try to excersice/swim daily
Did I happen to mention I HATE this disease!!!
 
*Recent Changes In Blue*


Scorpion24
Regular Member


Date Joined Mar 2009
Total Posts : 63
   Posted 4/11/2009 12:45 AM (GMT -6)   
thank you guys... seriously
Born with Ricketts (Feb, 1990) --beat it--
Diagnosed with Proctosigmoiditis (March, 09) --beating the 'crap' out of it--

Current status: flare-up


Ouchie2
Regular Member


Date Joined Jul 2006
Total Posts : 330
   Posted 4/11/2009 6:27 AM (GMT -6)   
Oh yesssssss I definately understand too...I'm sick and tired of running to the bathroom too....meds dont work anymore, another colonoscopy, sore tummy....... the works..dont you worry you are sooooooooo NOT alone
38 year old female
UC - Diagnosed 2006
HLA-B27 Gene
Iritis 2008
4 x Asacol
100mg Mercaptopurine (6MP)
Doxycycline


Fremen
New Member


Date Joined Jan 2009
Total Posts : 17
   Posted 4/11/2009 9:08 AM (GMT -6)   
We all have days, or in my case, weeks where you feel like you wish it would all be over. Somehow we find a way to keep going. Once you find your way, stick to it. Try to remember that you aren't suffering alone.

sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 4/14/2009 12:02 PM (GMT -6)   
I just feel like crying. I just want this to be done with. I have a sinus infection...probably because of the pred lowering my immune system and working at a preschool. I'm SO SICK OF BEING SICK. I am sick of not living life not being me... I'm sick of NOBODY SEEMING TO UNDERSTAND!

I am so so sick of other people being frustrated with me because there's always some new symptom or some new illness or some new thing with me. I know it's annoying to hear that I'm sick all the time... but it's not like I ask for it!!! I wish I were normal so when I did get sick people would think it was legitimate.... because somehow.. since I have a chronic condition... when I don't feel good.. IT DOESN'T MEAN AS MUCH! /Rant
Kara, 22F Married.
Latest-Went to ER cuz I couldn't eat for 5 days and was having severe flare up after passing two kidney stones after a week of the flu. (long month)
GI tried to taper me off of pred fairly fast in hopes to keep me on Lialda and at a lower dosage of pred. to try mesalamine enemas again.  Starting the Imuran as soon as labworks done... longer pred time....yippee *rolls eyes*
Medications:Prednisone 40mg Again! (groan)Lialda 4 a day until Imuran
I am so sick of this disease!
 
 


lambkins
Veteran Member


Date Joined May 2008
Total Posts : 574
   Posted 4/14/2009 12:17 PM (GMT -6)   
sweetmelody you took the words out of my mouth i feel everything you said i seem to blame everything on the pred at the moment and to top it all it is easter hols the kids keep fighting and i have the headache from hell life just gets better lol.
  
  Diagnosed 22.5.08 with Lft sided U/C
  Meds Predfoam 20mg 2x day stopped started pentasa supps 1gm 26/6/08
 Asacol 800mg x2 twice daily
  Domperidone 10mg as needed
  co codamol 30/500 x2 when needed
  Asacol foam 2g nightly 19/3/09
  Prednisone 60mg 19/3/09 tappering after2wks


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 4/14/2009 12:25 PM (GMT -6)   
it's good to know i'm not alone whew. I just seriously.. I'm so tired of it all!
Kara, 22F Married.
Latest-Went to ER cuz I couldn't eat for 5 days and was having severe flare up after passing two kidney stones after a week of the flu. (long month)
GI tried to taper me off of pred fairly fast in hopes to keep me on Lialda and at a lower dosage of pred. to try mesalamine enemas again.  Starting the Imuran as soon as labworks done... longer pred time....yippee *rolls eyes*
Medications:Prednisone 40mg Again! (groan)Lialda 4 a day until Imuran
I am so sick of this disease!
 
 


Deacon Blues
Regular Member


Date Joined Oct 2006
Total Posts : 304
   Posted 4/14/2009 12:54 PM (GMT -6)   
Yeah...I hear ya! I just crapped my pants on the way to work today...God have Mercy...
Diagnosed with UC in Dec of 1999
PANCOLITIS-mild to moderate (remission for 2 years +!!)
3X400mg Asacol 3x per day
Mild flares a couple times a year
46 yrs old


sweetmelody
Veteran Member


Date Joined Aug 2007
Total Posts : 650
   Posted 4/14/2009 1:01 PM (GMT -6)   
been there ...done that LOL that's what you call a $h!tty situation!
Kara, 22F Married.
Latest-Went to ER cuz I couldn't eat for 5 days and was having severe flare up after passing two kidney stones after a week of the flu. (long month)
GI tried to taper me off of pred fairly fast in hopes to keep me on Lialda and at a lower dosage of pred. to try mesalamine enemas again.  Starting the Imuran as soon as labworks done... longer pred time....yippee *rolls eyes*
Medications:Prednisone 40mg Again! (groan)Lialda 4 a day until Imuran
I am so sick of this disease!
 
 


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 4/14/2009 2:08 PM (GMT -6)   
If I had 5 bucks for everytime that I soiled my pants over the past 3 yrs. I could go on a very expensive vacation. After 3 yrs of a non stop flare, blood transfusions, stays in the hospitals, dehydration, weakness, missing A LOT of work and trying every medicine to no avail... I opted for surgery.

So I feel for you --- I got so sick the doctor will have to do the three step jpouch surgery instead of the 2 step.

But, There are many people who have bad flares and do go into remission. And it is a huge decision to make. I, for one, have absolutely no regrets- even though it makes me sad that I had to have such extreme surgery and sometimes I feel sorry for myself.


What meds are you on?
Jackie, 43
Pancolitis, DX October 06

Lexapro, Synthroid, Protonix,
Tapering prednisone from 40 mg


Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps

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