Because I was put into a trial for Humira a week after hospitalization, I didn't have the same issues tapering off of pred. (I will say that the pred helped a lot-I went from aboug 15 BM/day to about
4 BMs, but still had bleeding) So i am not sure what the next step will be. The humira worked immediately for me after my first injection, and I have been overall pretty good since. But I know my previous doc had mentioned taking pred and getting on immuran, but that immuran took months to take affect.
What I wanted to second was the stress thing. Stress is huge for me, and I have to work hard to control it (my kids can cause my stress level to soar in a matter of moments!). I don't like to take anything I don't have to, so for me acupuncture has been wonderful for stress. Also, yoga is great for stress once your body feels up to it. Maybe even taking some hot baths would ease some of your pain and stress as well. Massage could also be really beneficial for you, and if you look for someone (like my mom) who practices out of their home, it should be less expensive because they won't have overhead costs.
Good luck. I really hope the UC gets under control soon, and I hope all of your pain eases.
33 years old, stay at home mom of 2 girls, ages 3.5 and 2.5
Diagnosed in 2007
Biweekly injections for Humira clinical trial-going well so far!!
Canasa suppositories-1000mg nightly for recent flare