Would you bother going to the hospital?

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PinkPaperclip
Regular Member


Date Joined Mar 2009
Total Posts : 108
   Posted 4/11/2009 5:59 PM (GMT -6)   
Hi, I am having a hard time figuring out if my situation is bad enough to go to the hospital tonight...
 
Like I posted recently I was tapering Prednisone after my first flare ever and my syptoms came back a week ago. I am eating well but I am having abdominal cramps, pooping urgency, blood (light red and pink), mucus, tissue... I feel tired all the time...
 
I started again with 40mg prednisone yesterday morning and I don't see a big difference since, maybe a little less urgencies to go to the bathroom but I still pass blood, tissue, mucus and cramps ...  I went at least 10 times today..
 
I am hesitating on going to the hospital for this... I don't know what they would try since I am already on a high dose of pred???
 
I am kinda scared that if I wait too long the only option will be surgery?? Is that possible?
 
Thank you I feel a little anxious right now...
Diagnosed with pancolitis 19/03/09
Prednisone 40 mg, Mezavant 4.6g
 


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 4/11/2009 7:13 PM (GMT -6)   
If you were hospitalized, they would put you on IV prednisone (solumedrol) and fluids.

Before surgery I'm sure your doctor would try: Imuran or 6-MP, Remicade, or Humira - depending where you are at. So, you are not out of options yet.

I would give the pred a couple more days to work. Make sure you are getting enough fluids. Sleep and rest as much as you can to give your body time to heal. Eat a good balanced diet that is pretty low residue (to avoid things scraping your insides).

Are you taking a multivitamin? Any probiotics? Did your doctor give you anything for the cramping? (Bentyl is a good one.) Decreasing the cramping can help decrease urgency.

Prednisone can increase feelings of anxiety! I hope you find some relief soon.
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  yo-yoing between remission and a mild flare
Lialda 4 per day,  Azathioprine 50mg, Aciphex, Effexor XR, Forvia, Fibercon, and Culturelle
Remicade: 1st infusion 06/17/08:  Next infusion: April 1 after the tooth infection is gone :(
Last Prednisone dose:  7/15/08
 
Co-Moderator UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5963
   Posted 4/11/2009 7:33 PM (GMT -6)   
     What other meds are you taking?  Stick to a very light diet, low residue.  Give the prednisone a few more days, if you think you can, to start working.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 4/11/2009 9:10 PM (GMT -6)   
I would try to stick it out for the weekend and call your doctor on Monday. Doesn't sound like you need to go to the hospital, but everyone handles their bodies differently. When I was hosptialized, I waited til I was running to the bathroom every 20 min. When I'm flaring, I push salads, but with bleeding involved, I'm not sure if that is good. Good luck!
27 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)
Taken off Imuran 1/15/09
Only taking Humira.

Can't take Asacol, Allergic to Remicade


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 4/11/2009 9:16 PM (GMT -6)   
PinkPaperclip said...
Hi, I am having a hard time figuring out if my situation is bad enough to go to the hospital tonight...
 
Like I posted recently I was tapering Prednisone after my first flare ever and my syptoms came back a week ago. I am eating well but I am having abdominal cramps, pooping urgency, blood (light red and pink), mucus, tissue... I feel tired all the time...
 
I started again with 40mg prednisone yesterday morning and I don't see a big difference since, maybe a little less urgencies to go to the bathroom but I still pass blood, tissue, mucus and cramps ...  I went at least 10 times today..
 
I am hesitating on going to the hospital for this... I don't know what they would try since I am already on a high dose of pred???
 
I am kinda scared that if I wait too long the only option will be surgery?? Is that possible?
 
Thank you I feel a little anxious right now...

If you are seeing tissue (other than toilet tissue) that is certainly something to be concerned about...are you sure it's tissue? 

Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4/2)
Corti Foam p.m. 3-4X per week
Curcummin and Probiotics/Rueteri.
Bowel Soother and IntestiNew, Fish Oil, Calcium/Mag/Zinc, Multi Vitamin and Melatonin
Eliminated Fructose and Corn Syrup
Could never tolerate artificial sweetners
I try to excersice/swim daily
Did I happen to mention I HATE this disease!!!
 
*Recent Changes In Blue*


quincy
Elite Member


Date Joined May 2003
Total Posts : 30587
   Posted 4/12/2009 12:13 AM (GMT -6)   
definitely call the GI if that's who you're dealing with and if that's who put you on pred.

I don't consider your symptoms out of the ordinary of a bad flare...that's not meaning to make it like it's nothing. It's difficult to handle, but it doesn't seem that you're in a state to require hospital care.

From what I've read regarding others on pred....there are symptoms that return after some tapering if it's quick...the adrenal glands need to kick in the production of cortisol after the pred isn't giving the body that amount it's used to.

You do have to allow some time for the body to regain function while tapering on pred.

What dosages did you taper from....were you completely off pred and then symptoms started again?

Hang tough...call the doctor and discuss the matter with him...

Maybe the pred ups and downs are adding to your anxiety feeling?

quincy
*Heather* Status: mild flare enemas tapered to every 2nd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


PinkPaperclip
Regular Member


Date Joined Mar 2009
Total Posts : 108
   Posted 4/12/2009 3:41 AM (GMT -6)   
Thank you all for your replies it is sincerely appreciated.

I wrote a long reply and accidentally deleted it , it always happen to me when I use my laptop!!! I will ty to make it short and sweet.

I went to bed early after posting my thread and it helped, I woke up at 5 this morning, went to the bthroom 3 times (no blood or anything scary!) and took my 40 mg of pred. I am going back to bed soon.

I was sure that there was intestinal tissue yesterday but it seems that this morning I am ok.

I have been tapering 5 mg of prednisone per week for 2 weeks (so i was at 30 mg) when my symptoms came back. I realise that this might be too fast for my body I will tell my GI on my next appointment on the 24th (he is on vacation until then).

I don't feel like the pred is making me anxious, I have been stuck with mad anxiety pretty much all my life (taking paxil and seroquel for this) and since i got diagnosed with UC I feel more relaxed. It made me realise I have to be optimistic and trust the course of life I think... also made me realise I haveto take good care of myself and do one thing at a time! I am grateful for this, I believe pretty much everything happens for a reason...

I take calcium suppplements and a multivitamin (centrum) everyday, I take probiotics in capsules and in yogurt occasionnally and I have Bucospan for the cramping , I don't used it very often though. I don't like taking so many pills so when I can I prefer a hot bath to bucospan.

I will go back to bed now, thank you so much for your help, it really makes me feel better just knowing there are people out there I can talk (well.. write) to.
Diagnosed with pancolitis 19/03/09
Prednisone 40 mg, Mezavant 4.6g
 


Joma
Regular Member


Date Joined Nov 2008
Total Posts : 222
   Posted 4/12/2009 2:36 PM (GMT -6)   
One more thought. It sounds from your last post like the blood scares you alot. I remember my first flare and that blood is scary. Just remember that when blood hits the water it can look like more than it really is. When I am flaring badly I will often go to the bathroom and have only blood come out. This is pretty normal for a flare but if it is your first flare it will feel prety abnormal. That you didnt have blood this morning makes me think you are doing ok for now. Anyhow, that being said, if your gut tells you that you are not ok, by all means go to the hospital. It is hard for us here to determine what you may need. Oh, one last thought. I think the most serious complication from UC is toxicmega colon - crazy name huh? The signs of it are bowel distention, pain and tenderness (more than a usual flare I would think), fever, rapid heart rate, dehydration and shock - the bowel distention and bloating is probably the most obvious sign. But this is not common and I would suspect that you would be feeling so awful you would take yourself to the hospital. Eventually you will learn what your own 'normal' flare is and then will feel less scared when it happens.

JLG45
Regular Member


Date Joined Feb 2009
Total Posts : 114
   Posted 4/12/2009 2:49 PM (GMT -6)   
You should be at the hospital getting medical attention. Are you really going to let a bunch of medically untrained people on some forum advise you of such a important decision? Albiet everyone means well, but at the end of day it's all opinion.

I had a similar instance where 40mg of Pred stopped working. It won't get better on it's own, my hesitation caused serious problems as I went from Proctitis to Pancolitis. Had I been at the hospital earlier things may of turned out different.
Diagnosed U.Proctitis 07

Flare Feb 09 - Diagnosed with Severe Pancolitis
Remicade, 50mg Prednisone, Cortenema PM, 1g 5 ASA suppository AM

Post Edited (Jratt) : 4/12/2009 2:52:52 PM (GMT-6)


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 4/12/2009 5:27 PM (GMT -6)   
While everyone has to make their own decision, I think the advice given to Pink Paperclip was pretty good. I do think, as others had mentioned, that a call in to his GI (or whomever is covering for the GI while he or she is on vacation) would be a good idea, but unless you're suffering a high fever and/or severe pain, the ER is likely the last place where you'd be made to feel better, especially over a weekend. ER people are not versed in UC or Crohns, I've been in ERs where there has only been ONE bathroom available ... unless you're in real trouble, and if you are, you'll know it, better to stay out of ERs.

When I was nursing my daughter I had a textbook case of mastitis (can't spell it, but infection of a milk duct). I knew I needed a strong antibiotic -- I had a very high fever, breast was red and very warm, my mother was with me, we could NOT convince the idiot resident what was wrong. We had to insist on another doctor, threaten lawsuits, you name it. And since that time I've found myself in ERs quite a bit, and with rare exceptions, while they try to do their best, they're over-extended and unless you have a pretty black-and-white problem, they are often at a loss as to what to do. I usually end up leaving after getting an injection for pain, a prescription for pain-killers, and instructions to see my own doctor as soon as possible. At this point I only show up in an ER if I am in so much pain I can't make it until morning.

Meesh
46 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08 Finally achieved remission mid October 2008!!

14 Remicade infusions, current scheduled every 6 weeks: 1st: 7/21/07; most recent: 3/14/09; Current meds & supplements: Lialda, 4 tabs in the morning; Xanax as needed (rarely); Rowesa and/or Canasa; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D;

Past meds: Prednisone 4/06-4/08; Entocourt EC; Asacol; Colazal; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro


Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 4/12/2009 9:00 PM (GMT -6)   
The last time I went to the ER was because my fever wasn't going away while having the stomach bug, and with being on Humira, I kinda over worry about infection. But I do agree with Meesh, if you aren't constantly running to the bathroom like every 10-20 minutes you really don't need to go to the ER. When I was in the ER the last time, they kept saying that I noticed that you have IBS, so I kept correcting them. Even the doctor who was attending me wasn't to up to date on UC. Although, my very first visit I had my own bathroom, but it was at a newer hospital.
27 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)
Taken off Imuran 1/15/09
Only taking Humira.

Can't take Asacol, Allergic to Remicade


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16282
   Posted 4/13/2009 6:17 AM (GMT -6)   

It was probably mucus, not tissue.

I have never gone to the hospital and I used to be on the toilet over 10x a day with a bowl full of blood. I am not saying you should not go to the hospital if you feel like you need to. I didn't go and I survived. If I were in pain or scared, I would have gone to the hospital but I always thought my flare was simply out of control and I needed to see my doctor asap. I couldn't get an immediate appointment and had to go weeks without any medication.


Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December 08 but had symptoms months ago - Treating with Asacol 400mg (9 a day)


Ouchie2
Regular Member


Date Joined Jul 2006
Total Posts : 330
   Posted 4/13/2009 7:05 AM (GMT -6)   
Im in exactly the same situation (and my specialist is away on vacation too)....Before my doctor went he knew of the flare so he is aware.....the only time i go to hospital is when i had suspected toxic megacolon I got the rigors for hours and bloated up really bad....nw i look for similar symptoms..... definately talk to your doctor
38 year old female
UC - Diagnosed 2006
HLA-B27 Gene
Iritis 2008
4 x Asacol
100mg Mercaptopurine (6MP)
Doxycycline


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 4/13/2009 9:25 AM (GMT -6)   
If you think the ER is the place to go to get relief, you will be in for an unpleasant surprise, as has been said. If you think you were uncomfortable at home, just imagine feeling that way in a waiting room chair or on a gurney for hours and hours, where your case is likely not going to viewed as urgent.
I have suffered a lot but have not been near a hospital for UC since the 1980's. I frankly am not convinced they can do anything for UC that you can't do for yourself -- hydrate and take steroids, iron, etc -- unless you have some other complication or need surgery. And I would rather be miserable at home, where it's quiet and comfortable.
I think doctors will say "go to the ER" just to cover themselves, why not? No thanks!
I realize my views about this are not typical....I'm a hardened & stubborn UCer.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion). 
Flaring, seasonal? Back on prednisone, tried to taper but now back up to 30 after several really bad days. Humira denied, waiting for approval to start Remicade. 


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3442
   Posted 4/13/2009 9:49 AM (GMT -6)   
I agree with all the "no hospital" posts. From what you are saying, it doesn't sound too serious, honestly. I've never actually been hospitalized solely for UC- yes, admitted with complications arising from being on UC meds, immune suppression, etc. But never just because of a flare- I'd much rather wait it out at home. The one time my GI suggested it, I said NO! And I got better... slowly.... all you can do during an acute flare is rest, drink fluids, take whatever meds/supplements you're choosing, & hope for the best. Plus, when the accidents happen, it's a lot better to deal with them yourself than be cleaned up by nurses!

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
various probiotics
Fiber supplement
 
 
 

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