I am looking for advice from people who have undergone stage 2 J pouch surgery where the rectal region has been literally dissected and connected to the J pouch for future voiding. I am having more rectal pain than abdominal pain post surgery and no pain meds are even elevating any of the pressure or pain I feel when standing, sitting, lying on my side or urinating.
We have an anesthesiologist in the family who told me that rectal pain is one of the worst pains to treat because of all the nerve endings and how they send signals to your spinal cord then to your brain to signal pain. I guess that is why when I was on the epidural with the numbing agent I was comfortable in the hospital.
I am looking to those who have found ways to relieve the pain rather than throwing in the towel and suffering from it. I just can't believe that pain medication does nothing for this type of pain. Nobody except those who have undergone this type of surgery can begin to understand what this pain feels like. That is why I trust any methods that may have worked to make your recovery easier and more bearable.
I am afraid that my surgeon will do an internal exam for the third time since surgery on Monday's Post surgical exam and make it that much worse. He already did that twice in the hospital to make sure the "J was connected to the anus". I thought it was a sick ploy to make me suffer longer but that is just my opinion since I did not start to bleed when I stood up until after his exam.
Does this get any better? Was this worth it? Is there a light at the end of the tunnel? How long until I feel like I can sit on my butt without feeling like I have a wooden stick stuck up there. Geez, UC symptoms are looking like a close tie to this pain I am feeling in my rectum. I guess the grass is always greener on the other side.
Thanks for your insight!!!!
Diagnosed with UC since 1999
Sulfasalizine 500 mg tabs 2x's daily
Rowasa enema 2x's daily
Colocort Enema 1x daily
Prednisone during active flares
Imuran 6 months in 2006 (Joint Pain) Stopped
Bentyl for cramping