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AlliUC
Regular Member


Date Joined Mar 2009
Total Posts : 50
   Posted 4/12/2009 9:45 PM (GMT -6)   
Hi Everyone,

I have been in a flare since February and while I have shown some improvement, I am still having troubles, still on 60 of pred and being scheduled for another colonoscopy this week to see just what is going on.

I am wondering how much time people usually spend away from work. I have not been too work since February. I do not want to go back until I am better but I may have to do some planning.

While I realize that everyone is different, based on your improvements, when could you go back to work? How long were off (the longest or the usual)?

I guess I am afraid of going back, starting to taper pred and being sick all over again or just making my recovery take longer.

Thanks
Alli
Female, 41
1996 diagnosed proctitis (during pregnancy, just months after I quit smoking)
Mar 3, 2009 diagnosed ulcerative colitis - it got my entire colon - severe

Fighting my first major flare up of UC (but I think my first UC flare up was at the end of 2006, 2 months after I quit smoking again)
60 mg prednisone (started at 30 but was doubled immediately) Mar 5/09
salofalk enemas = 5-aminosalicylic acid (mesalamine) added March 24/09 after second colonoscopy showed not enough progress ( previously managed proctitis with same stuff as suppository and then enema in 06)


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 4/12/2009 11:39 PM (GMT -6)   
Oops Don't ask me. I have been out of office for quite some time at a stretch this time. But earlier, I used to manage somehow.

In so far as UC is concerned, did your doctor suggest some cortisone or mesacol enemas. Try the one which are cortifoam. They are effective. Please consult your doctor and take his opinion before trying them out.

Wish you speedy recovery and healthy landing at your office.
45 years Male Attorney
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005 Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
"Faith is the bird that sings when the dawn is still dark."
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracl: Albert Einstein
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


Ouchie2
Regular Member


Date Joined Jul 2006
Total Posts : 330
   Posted 4/13/2009 7:07 AM (GMT -6)   
Unfortunately I had to give up working .. everytime I got a new job id get real ill...so ive been away for 7 months now
38 year old female
UC - Diagnosed 2006
HLA-B27 Gene
Iritis 2008
4 x Asacol
100mg Mercaptopurine (6MP)
Doxycycline


Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 4/13/2009 7:22 AM (GMT -6)   
I took 6 moths off of work. Temporary disability. I didn't want to go back to work until I was way better. I wasn't 100% better until sept of 2007. Before then the smallest stress would give me abdominal pain and put me into tears. I guess it's when you feel ready.
27 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)
Taken off Imuran 1/15/09
Only taking Humira.

Can't take Asacol, Allergic to Remicade


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 4/13/2009 8:58 AM (GMT -6)   
I guess it depends on what kind of work you do. I took two weeks sick time in 1985 when I was first diagnosed, and that's it. Otherwise, I need to work so I do. Even if I need to use the bathroom every hour or so, my brain still works. It's a distraction from feeling miserable, if you enjoy your work. And I don't take my good job for granted, either.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated all wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion). 
Flaring, seasonal? Back on prednisone, tried to taper but now back up to 30 after several really bad days. Humira denied, waiting for approval to start Remicade. 


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 4/13/2009 9:14 AM (GMT -6)   
Peety I like your spirit. You have set an example for others. I must commend your will power.
45 years Male Attorney
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005 Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
"Faith is the bird that sings when the dawn is still dark."
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracl: Albert Einstein
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


kc70
Regular Member


Date Joined Nov 2008
Total Posts : 112
   Posted 4/13/2009 12:02 PM (GMT -6)   
I have been off work steadily for about a month now. I work in a school library resource centre, and my coworkers are very supportive, but I still have found that managing my symptoms as well as my life (I'm a single parent) has been too much for me. The prednisone is making me lose my mind more than the disease I think, so I'm hoping once I can taper off that and get my brain back to normal, I'll be able to go back to work.
39 year old woman
Diagnosed October 2008

location: Vancouver, BC

Current meds: 40 mg Prednisone, 25 mg Imuran, low-dose antibiotics (Cipro/Flagyl)

Failed meds: Asacol, Pentasa, Imuran (maybe)


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 4/13/2009 12:31 PM (GMT -6)   
I also worked in an office and missed a total of maybe 6 days due to UC during my 4 1/2 year flare. I was able to arrange to work from home those days, so never really had to miss. I went to work, then came home and rested so I could go back the next day. I essentially had no life, but my job (and the insurance) was very important to me.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 
.


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 4/13/2009 4:25 PM (GMT -6)   
I have been out of work since Feb. 13th. I finally had surgery March 13th so the past month I have been recovering from that. My flare was soooo bad that everyday I would get with the intention of going to work but just couldn't do it. Ended up in the hospital for a week, got out and then went back in for the surgery. Now I am on short term disability, but I will probably go back to work April 30th.

Luckily, I have a very supportive boss and wonderful co- workers. :)))
Jackie, 43
Pancolitis, DX October 06

Lexapro, Synthroid, Protonix,
Tapering prednisone from 40 mg


Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps


Shadam
Regular Member


Date Joined Jan 2009
Total Posts : 307
   Posted 4/13/2009 5:53 PM (GMT -6)   

I work in an office setting as well for a very supportive employer.  My job is fairly independent so I can come and go (to the bathroom) as I please.  My only struggle is meetings, I usually have to either hope I go before or I end up leaving during the meeting for a quick bathroom visit. 

When I was first diagnosed I had to to take 2 days off because I was in so much pain (hospitalized). 


Age: 25 / Male / Florida
Diagnosed: 11/08 / Pancolitis
Asacol - 2 x 3 day (waiting for results)
Prednisone / ended 1/09 (started at 30mgs and tapered down)
Mens Multi Vitamin - 1 a day
Metamucil Wafers - Once a day
Jaro - Dophilus Probiotic (3.4 Billion) - 1 a day
Diagnosed with PSC: 3/9 --now taking Urso


notshure
New Member


Date Joined Apr 2009
Total Posts : 6
   Posted 4/18/2009 9:48 PM (GMT -6)   

hello new to this im on 40mg pred 4000 sulfizine 80mg nexium ive been to emergency room 4 times and hospitol for 10 days in the last two years the first year i just dealt with it until all the blood started im a singel father and had worked hard this last 6 month i realy aint shore im not dying i drive a dump truck so you understand how hard its been im depressde tired all the time doctor wouldnt give me nothing to help with sleeping and depresion and the pred makeing me react angry ive missed so much work i might loose my house wich will be the second time they have try to forclose i just wanderd if anyone gets diabilty social securty or something that would ease some stress

 

 

 


notshure
New Member


Date Joined Apr 2009
Total Posts : 6
   Posted 4/18/2009 9:51 PM (GMT -6)   
realy not shore how this post thing works
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