Just a note about
the Humira trials...I am in one, and yes there is a chance you could get the placebo. I would assume they do it the same regardless of
location, but with mine, they give you twelve weeks. If you are not responding in 12 weeks, they switch you to the
open label study and you definitely get the drug (the double blind study is a year long study, but they won't keep someone in for a year if they are not seeing improvement).
So far in our group, one person was rolled over into the
open label study at 12 weeks. Once he started that, he immediately started responding positively to the Humira. Everyone else has responded from the start and been able to continue in the double blind. (there were only 8 of us though when this subject was covered-there are more now-maybe 12 of us?)
I know 12 weeks is a lifetime when you are flaring, but there is an end in sight on it, and after the double blind portion, the
open label is apparently for 5 years, so if you choose to stay in it that long, that is 5 years of free meds, if it works for you.
Just wanted to share my experience! I really hope you end up not needing surgery, but am glad to hear you have a plan regardless. I wish you the best whatever path you decide to take.
33 years old, stay at home mom of 2 girls, ages 3.5 and 2.5
Diagnosed in 2007
Biweekly injections for Humira clinical trial-going well so far!!
Canasa suppositories-1000mg nightly for recent flare