biopsy report--please help

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

aned
Regular Member


Date Joined Mar 2009
Total Posts : 105
   Posted 4/14/2009 10:25 PM (GMT -6)   
I have an appointment with a specialist in two days and out of all of my research there are still some questions I can't seem to find an answer to.  My colonoscopy could only go to 35 cm for fear of rupturing the colon due to inflammation, swelling and adhesions.  The results say:
 
Colon at 35 cm-mild to chronic colitis, with moderate edema.
 
Rectum-mild to moderate chronic proctitis with edema.  Focal microhemorrhage.  Single hyperplastic polyp.
 
I also had multiple diverticulosis.  My GI, whom I really like, immediately said that I needed to be seen by someone with more experience than he has and referred me to a specialist in a large city.  I am completely confused about why???  He calls it ulcerative colitis and I am not sure why he isn't comfortable treating it.  The only complicated feature is that  I had multiple pelvic surgeries for gyncological issues and they know I have significant adhesions.  Any help interpreting the biopsy report or any thoughts on why he, a GI specialist, would want to refer me to another specialist?  Thanks.

PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 4/15/2009 1:55 AM (GMT -6)   
Hi Aned

Sorry to hear about what you are going through. I may not be able to provide much help on the diagnostic issues, as I feel only a specialist would do that. In any case your GI may have taken a decision to refer you to a senior person in view of the earlier surgeries you had. At times some doctors feel that they need to consult or refer the matter to some senior person in view of the adhesions. Even I used to be referred to other specialists by my GI surgeon in view of various adhesions and other issues related to the first surgery. Please do not worry. I am sure you would be hale and hearty very soon.

Take care and keep us posted.
45 years Male Attorney
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005 Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
"Faith is the bird that sings when the dawn is still dark."
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracl: Albert Einstein
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


aned
Regular Member


Date Joined Mar 2009
Total Posts : 105
   Posted 4/15/2009 9:33 AM (GMT -6)   
Thanks for the input. I guess I am still trying to figure out if it really is ulcerative colitis and how they think adhesions factor into the treatment plan. I want to take an informed list of questions to my consultation, but it is difficult if you aren't sure why you are having a consult. lol.

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1914
   Posted 4/15/2009 7:51 PM (GMT -6)   
Perhaps you have more than one thing going on and your doctor wants another opinion. I know I saw 3 GI docs who told me I had IBS. I had inflammation on my ct scan, blood in my stool and they said the colonoscopy was negative. So, a few years later when things got worse, I had inflammation and diverticulitis. They treated for diverticulitis and I did not get better. So, I took it upon myself to go to a doc at the Mayo clinic. They gave me another colonoscopy and said it was diverticular colitis. He put me on colazal, a UC or crohn's drug and I am doing a lot better. I still have to watch what I eat though. So, that is my story. Until I went to Mayo, it seemed a lot of docs just blew me off even when I reported blood in my stool. One doc told me to get a hobby, he thought I was depressed redface I hope this helps. Good luck with your journey. Be well.
diagnosed 1/09 with colitis,54 yo, colazal, fish oil, synthroid, cymbalta


aned
Regular Member


Date Joined Mar 2009
Total Posts : 105
   Posted 4/15/2009 8:01 PM (GMT -6)   
I think you may be right. He was calling it ulcerative colitis...and I am thinking okay, great, we know what it is so lets treat it. Then he insisted I see another specialist and that left me somewhat concerned. I think it is just the variable of diverticular disease, many prior surgeries and UC. I see the specialist tomorrow so I will have a chance to ask my questions then.

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1914
   Posted 4/15/2009 9:10 PM (GMT -6)   
Good luck. Keep us posted on what the new doc says, ok?
diagnosed 1/09 with colitis,54 yo, colazal, fish oil, synthroid, cymbalta


aned
Regular Member


Date Joined Mar 2009
Total Posts : 105
   Posted 4/16/2009 4:02 PM (GMT -6)   
The new doc says that the colonoscopy and biopsy results are "inconclusive." He belileves that I have some form of UC, but feels uncomfortable since they have not been able to visualize the entire colon. I go back in a week for another colonoscopy. Basically, I didn't really learn anything new. The Entocort isn't working so he put me on Colazal. I have had a reaction to Asacol in the past so we are approaching it very carefully. Thanks again everyone for all your input.

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1914
   Posted 4/23/2009 1:07 PM (GMT -6)   
Goodness, it is hard when they can't make up their minds and frustrating for us pateints, isn't it? Any news from the 2nd colonoscopy? Sorry you had to have a repeat.
It took what I consider a LONG time for me to heal up, even a little. I have been on colazal for 4 months now and really it took about 3 weeks for the diarrhea to stop. Every time I would try one of my forbidden foods like pizza, it would set me back by a week when I'd be sick. So, I still can't eat pizza and have to take it easy on the iceberg lettice and uncooked veggies are a no-no. But, 4 months out, I can tell that I am slowly getting better. I feel like things are under control. They want me to use that darn rowaza enema stuff but I really hate using it and I usually fall asleep first anyway.

These have been going into my spam folder for some reason. Take care and keep us posted.
diagnosed 1/09 with colitis,54 yo, colazal, fish oil, synthroid, cymbalta


aned
Regular Member


Date Joined Mar 2009
Total Posts : 105
   Posted 4/23/2009 9:36 PM (GMT -6)   
Second colonoscopy is set for Monday. I have had no results from the Colazal yet, but it is the first thing we have tried that didn't make me feel worse...lol...so maybe that is progress. Other than having to watch my caffeine intake I haven't found a single food that makes me better or worse. Well, except for high fiber cereals and/or fiber supplements. That is going to be tricky since I also have diverticular disease and the treatment for that is more fiber.....why does this disease have to be so complicated?
37 y/o female
non-specific colitis dx. 2007
ulcerative colits dx. 2009
diverticular disease dx. 2009
Asacol-failed
Entocort-failed
Colazal-current, but not working yet


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1914
   Posted 4/23/2009 10:09 PM (GMT -6)   
It sounds like we have a good bit in common with the inflammation and diverticular disease. Do the high fiber cereals help or hurt you? I definitely can't eat spicy foods or too much roughage. I also suspect I may be lactose intolerant as well, but dairy does not consistently give me trouble, just sometimes.
Good luck with the repeat colonoscopy. How many of these things have they made you get? It sounds like too many! I am glad I live near and went to a Mayo clinic GI doc. I don't think they would have seen or heard of diverticular colitis at a regular GI place.

Keep us posted and good luck!
diagnosed 1/09 with colitis,54 yo, colazal, fish oil, synthroid, cymbalta


aned
Regular Member


Date Joined Mar 2009
Total Posts : 105
   Posted 4/24/2009 9:39 AM (GMT -6)   
It does sound like we have a lot in common. I have read about diverticular colitis, but I am not sure if that is what they think they are looking at or not. I had a colonoscopy almost a month ago which they couldn't complete due to swelling, adhesions, etc. My GI followed up with a barium enema a week later. After the barium enema, I became very sick (diverticulutis???) and landed in the hospital for three days. My GI then referred me to a specialist in a large city a few hours away. The specialist wants to attempt to complete the colonoscopy. lol. Yes, I envy you the ability to see a Mayo GI. So what was the treatment plan for your diverticular colitis? And how have your results been?
37 y/o female
non-specific colitis dx. 2007
ulcerative colits dx. 2009
diverticular disease dx. 2009
Asacol-failed
Entocort-failed
Colazal-current, but not working yet


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1914
   Posted 4/24/2009 10:42 AM (GMT -6)   
Sounds like they have put you through the mill and you are yonung still! I had this when I was younger, but they told me it was IBS. Perhaps that is all it was at that time, but now it is diverticular colitis.
My treatement plan is colazal and rowaza nightime enema thing (I rarely use it) I hate doing it and then I also fall asleep and don't get to do it. It is a med you have to hold in, so it isn't really an enema.

I also have to stay on a low residue diet or I get cramps and have to go a lot. Corn products (even corn chips) anything with fiber in it especially uncooked veggies, lettuce & tomato (and tomato products like tomato sauce or marinara spaghetti sauce) all do me in. This is even with the medications. So, it is very aggrevating. I am still learning what I can and cannot eat and how much of it. Sometimes if I eat just a little of the offending food, I do ok. My stomach has been like this for years now.

Four years ago, I got really sick, they put me in the hospital, did a CT scan which showed inflammation only. They did a colonoscopy and biopsies that they said were all normal. However, while in hospital, they gave me antibiotics, steroids (I was allergic to the CT scan dye) and anti-inflammatories. My stomach was wonderful for about 6 weeks afterwards but then it went back to its old tricks. It sounds to me like I had some inflammatory disease before I got the diverticular disease and back then, I had constipation. Nothing I could do would make it better. Now that I am on the colazal, at least I can go to the bathroom when I feel the urge. Before, when I ate an offending food, I basically couldn't go.

so, that is my story. Sorry if it was too long.

I hope the colonoscopy goes ok for you. Where are you located? Are you pretty sick from all this? It sounds like you have a lot going on. Are you loosing a lot of weight? I am lucky in that respect, I am not loosing weight, so my problems are not quite as bad. Sometimes, I really think I may have some food allergy problems. sounds like you have to travel a long distance to a larger city and that isn't easy when you are sick. I hope you have a support system of friends or family.

God bless!
diagnosed 1/09 with colitis,54 yo, colazal, fish oil, synthroid, cymbalta


aned
Regular Member


Date Joined Mar 2009
Total Posts : 105
   Posted 4/24/2009 11:45 AM (GMT -6)   
Right now I travel to Dallas for treatment and that is about a three and a half hour drive. I have lost some weight with all of this, but I was kind of overweight before so I am not complaining. The hardest part for me is having five kids....lol....and having to schedule my life around how I feel. Sounds like you have been through it as well. I am glad to know the colazal seems to be doing you some good. Hopefully, it will work for me as well.
37 y/o female
non-specific colitis dx. 2007
ulcerative colits dx. 2009
diverticular disease dx. 2009
Asacol-failed
Entocort-failed
Colazal-current, but not working yet


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1914
   Posted 4/24/2009 5:03 PM (GMT -6)   
I would think in Dallas you could find really good specialists. Wow, you have 5 kids? Are any old enough to help you out at all? I take my hat off to you, that is a handfull especially if you aren't feeling well. I don't know how you manage. I hope in time the colazal will work for you as well. The Dr told me it would take at least 3 weeks to get into my system.
diagnosed 1/09 with colitis,54 yo, colazal, fish oil, synthroid, cymbalta

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, June 21, 2018 7:10 PM (GMT -6)
There are a total of 2,974,300 posts in 326,165 threads.
View Active Threads


Who's Online
This forum has 161236 registered members. Please welcome our newest member, Althea F. Phillips.
414 Guest(s), 9 Registered Member(s) are currently online.  Details
Tonyland, Sara14, Sherrine, LJohn23, peanut307, T.S. Eliot, P34, suchatravesty, Lanie G