Question for those taking(or took) steroid enemas** UPDATE talked to Doctor** added as a reply

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Joylu
Regular Member


Date Joined Jan 2008
Total Posts : 362
   Posted 4/15/2009 9:28 AM (GMT -6)   
My Rowesa isn't working, and I have a call into my doc to tell him of this.  I want to try the enemas with that small amout of steriods in them rather than go on Pred (which he is always pushing).  What specifically do I ask him for?  I don't know much about those enemas.  Do you have to wean off them as you do the Pred?  What about side effects of them?
Do I ask for foam?
My UC is lower colon and google tells me that the steroid emenas are pretty much the best bet for that.
 
Any help would be appreciated.


Ulcerative proctitis. On Asacol 3 3x a day, and Meslamine enemas nightly.
 
Blood is a bigger problem for mme than D.
 
Now urgency is still my biggest problem.  rarely have D, but extreme gas and urgency at any given time.

Post Edited (Joylu) : 4/15/2009 12:57:02 PM (GMT-6)


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 4/15/2009 9:35 AM (GMT -6)   
You could try cortifoam or cortenemas. I tapered off the cortifoam when I used it, and I think that even if you're on normal suppositories like Canasa or Pentasa it helps to taper off those too. The side-effects of cortifoam are a lot milder than prednisone, and often not noticeable.
Rio, 33 year old male. Diagnosed with UC in 2006
100 mg Azathioprine, 4800 mg Asacol
VSL#3 x 3 times a day, Metamucil wafers
Vitamin E enema or Mesacol/Asacol enema at least once a week
Spinach & sunflower seed diet


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 4/15/2009 9:36 AM (GMT -6)   
They're called Cortenema.  I don't use the foam so I can't help you there.  You don't have to wean off of them if you are only on them for a few weeks.  My doctor is currently having me try them for 3 weeks.  I saw an improvement after just a day or two.  I've been on them for a little over a week and my bleeding has improved tremendously, almost non-existent.  They do give me side effects but nothing like Prednisone.  I get night sweats, increase in appetite, just a few minor side effects. 
Female, Age 38
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03, Diagnosed with UC 2/03
Current Meds:
Lialda, 6MP
Ferrex Forte
Acidophillus, Sacchromyces Boulardii, Oil of Oregano


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 4/15/2009 11:41 AM (GMT -6)   
Hydrocortisone enemas never give me many side affects. Probably because they are not something I use constantly too. Get wonderful results from them though. Throw one in a sink of hot water to warm it up first before using. Watch when you take the top off though cause some will sneak out after the warming process. Rowasa ones don't do much for me.
Proctitis DX 1999, Pancolitis DX 2008
Lialda 1 day
Immuran
Golimumab study (100mg every 4 weeks)
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD3+Ca/SuperDHA


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 4/15/2009 11:42 AM (GMT -6)   
Cortifoam is great (it's the only thing that works for me) and don't worry about side effects from it, as my GI explained the chances of side effects from it are very rare because not enough gets into the blood stream compared to taking oral steroids (like pred) one would have to e awfully sensitive to steroids in order to get any side effects from steroid based rectal meds....just ask him for cortifoam.

I had been on cortifoam for as long as a yr before tapering off of it and there were times when I was on it and I didn't even taper (I only ever used it once/day at bedtime) and had no issues, because again, it's not like when you take pred orally.

Feel better soon :)
My bum is broken....there's a big crack down the middle of it! LOL :)


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 4/15/2009 12:54 PM (GMT -6)   
Yes, in case the UC has affected the lower part of the colon, Cortifoam or Hydrocortisone enema may be quite effective, even though the results may vary from person to person.

I had used these enemas while I was flaring up badly and they really helped. In so far as side effects are concerned, they are very less as compared to oral Pred. You may have a moon face or night sweats.
45 years Male Attorney
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005 Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
"Faith is the bird that sings when the dawn is still dark."
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracl: Albert Einstein
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


Joylu
Regular Member


Date Joined Jan 2008
Total Posts : 362
   Posted 4/15/2009 12:56 PM (GMT -6)   
Doctor just called in a prescription for Hydrocortisone suppositories(25MG) for me. 1 a  night for 2 weeks.

I don't know what he has against the cort enemas or foam, but once again he gave me something dfferent. I will cross my fingers.


Ulcerative proctitis. On Asacol 3 3x a day, and Meslamine enemas nightly.
 
Blood is a bigger problem for mme than D.
 
Now urgency is still my biggest problem.  rarely have D, but extreme gas and urgency at any given time.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 4/15/2009 1:13 PM (GMT -6)   
Good luck with it, I hope it benefits you, just be patient and give it some time and if you don't notice anything then demand the foam, the foam absorbs really well, so I don't know why he wouldn't have RX that for you either.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


bulldozer
Regular Member


Date Joined Jul 2008
Total Posts : 37
   Posted 4/15/2009 1:14 PM (GMT -6)   
Hello there -- I too had proctitis - first diagnosed 30+ years ago. Have good results using predfoam - it is comfortable to use - the pred enemas were more difficult to retain and needed major preparation prior to use at night time. The predfoam or cortifoam can also be used during the day e.g. at lunchtime -- sit with your feet up for 20 mins -- so can be used twice daily this way. I hope this helps.

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5959
   Posted 4/15/2009 2:02 PM (GMT -6)   
     I have ulcerative proctitis but am now in remission.  My GI doctor had prescribed Cort enemas for me while flaring.  They worked very well.  Like Dr A explained, I place them in hot water first before inserting them.  I also use a little vasoline around my rectum for easier insertion.  Whenever my rectum starts to feel a little "iffy".  For instance, if I eat something I shouldn't have the day before, I will use the Cort enema that evening.  Works like a charm.  I don't make a habit of this...maybe once in a blue moon.  But so far, it has kept me out of flares this spring.  My GI doctor never told me I had to wean myself off the enema though.  So, when my flare ended, I stopped the Cort enemas too.  No problems.  Good luck.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


Scrap Girl
Veteran Member


Date Joined Jan 2007
Total Posts : 653
   Posted 4/15/2009 2:41 PM (GMT -6)   
I noticed I got the dreaded moon face when I was using them. But overall, they are not nearly as bad as prednisone.

Diagnosed with UC in Feb. 2005
 
Colazal (9 a day)
Folic Acid
Biotin
Calcium
Remicade


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 4/15/2009 5:59 PM (GMT -6)   

I guess I am backwards!  I tried 4asa rectal meds, predifoam, Rowasa, etc. etc. - even now on prednisone I ask for a rectal suppository that might "help" stop cramping and bleeding.  Doc gave me Anusol to use at night along with starting the 6 MP.  SO - ALL the rectal meds made me worse at about 8 to 10 days I had to stop - obvious swelling, inflammation and more red blood.  Guess I just have to stay away from rectal meds although I know so many benefit from them.

Now on 25 mg. prednisone (I love it), bleeding and most of discomfort gone - no D - 2 BMs a day at most, formed - wonderful.  Tomorrow is blood testing to see how the 6 MP (75mg.) is doing.  Hope it is kicking in and I can taper prednisone more. 

ElaineNY


 
Senior - New diagnosed with proctosigmoiditis - 6/2008  Cannot tolerate mesalamines, Canasa, etc. Tried, Colozal, steroid enemas, etc. - started working but severe side effects occurred.
Started on prednisone Feb.7, 2009 - tapering to 20 mg. for two more weeks. Bleeding returned - no call back from doc so I upped prenisone to 25mg. on my own - 6MP - 50 mg. 4/2/2009 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 

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