Caffeine free coffee?

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Regular Member

Date Joined Nov 2008
Total Posts : 360
   Posted 4/15/2009 10:59 AM (GMT -6)   
Do you find that caffeine free coffee is better for colitis, or is it just as bad as the real stuff?
Presently on: 600 mg. Remicade every 4 weeks
                   Venofer infusion every 4 weeks
                   B12 every 4 weeks              
                   15 mg. Methotrexate/injection weekly
                   12 Asacol daily
                   10 mg. Celexa daily

Regular Member

Date Joined Mar 2009
Total Posts : 105
   Posted 4/15/2009 11:03 AM (GMT -6)   
I have cut out almost all caffeine and that seems to help somewhat. I would think that caffeine free would be a better option.

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 4/15/2009 12:06 PM (GMT -6)   
If it doesn't bother you continue to drink it. When I was moderately to severely ill I found it to increase my motility which I was trying to decrease. I think it was also an irritant. However, when I was mildly to moderately ill I could tolerate it just fine. During the times I could not tolerate it I would drink Inka (grain based instant hot beverage) or the other similar chicory or grain based drinks. You can find them at health food stores. I found them to be robust like coffee but without the negative effects.

dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 4/15/2009 12:44 PM (GMT -6)   
I've heard that regular store bought decaff has a little caffeine in it but not near the amount that caffeinated does, I prefer decaff, I don't like how caffeinated makes me feel and it gives me trouble with sleep so that's the main reason I avoid it...I'm not an everyday coffee drinker though, just once in a blue moon.

My bum is broken....there's a big crack down the middle of it! LOL :)

Regular Member

Date Joined Sep 2008
Total Posts : 153
   Posted 4/15/2009 1:38 PM (GMT -6)   
I have found that the coffee bean itself bothers me - caffeine or no caffeine. I gave up all caffeine in my diet.
Diagnosed w/IBS: Oct. 2006
Diagnosed w/UC: Jan. 2007 (proctitis), July 2008 (pancolitis)
Medications: Canasa (helped the first flare when it was just proctitis); Rowasa enemas (did not help as the following colonoscopy confirmed pancolitis); Lialda (2 pills in the morning, 2 pills in the evening, soon to be 2 pills in the morning only once I'm off steriods); Prednisone; Protonix (only took while on prednisone); Remicade infusions, started at 5mg/kg, increased in March to 7.5mg/kg (started Aug 2008 - 6 infusions so far, next infusion on 4/30 continuing every 8 weeks); Zyrtec-D (for allergies); Toprol (a generic form, 25 mg, for a rapid heart rate)
Supplements: Women's One-a-day multi-vitamin; Super B-complex w/vitamin C, Iron supplements, Omega-3 Fish Oil (coated, not sure how much except one soft-gel daily), Aloe Vera supplement (two daily), Acidopholis
Diet: Spinach and Sunflower seed butter diet (starting 3/21/09)
Current Status: Reached remission for a few weeks in October 2008, but symptoms returned after I allowed myself to enjoy wine again.... gave up wine and have not been in full remission again yet. 

Regular Member

Date Joined Jun 2008
Total Posts : 419
   Posted 4/15/2009 4:09 PM (GMT -6)   
geminisunset said...
I have found that the coffee bean itself bothers me - caffeine or no caffeine. I gave up all caffeine in my diet.

Me too. I found that caffinated coffee sent me running to the bathroom and sodas made me jittery. giving it up has helpded my urgency symptoms and anxiety.
Dee-39yrs old wife and mom of 3 boys
UC/PTSD/Panic Disorder/Depression/myofacial pain syndrome 2009-750mg colozal/.750mg clonazepam, 5mg Lexapro-1,000mg canasa/Fioricet/Prilosec OTC-2x daily, Triple Strength Fish Oils/Colonoscopies-4

Veteran Member

Date Joined Dec 2008
Total Posts : 3231
   Posted 4/15/2009 6:24 PM (GMT -6)   
I only drink decaf. I find that it does bother my colon; so I try not to drink it very often.
Joy - 47 yrs and counting
Colitis Dec 06 (also have IBS)
Currently in remission
Don't expect your doctor to cure your health problems. Your health is your responsibility.

Lexapro (for stress), Probiotics and Vitamins (a whole bunch of them)
Avoid HFCS, foods high in fructose, artificial sweeteners
When flaring: eat anti-inflammatory foods, avoid pro-inflammatory foods
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)

Regular Member

Date Joined Jan 2009
Total Posts : 307
   Posted 4/15/2009 7:56 PM (GMT -6)   
I used to be a 3 cup a day (caffeine) kinda guy.  When my sypmtoms started, I quit coffee right out of my diet.  I now dont even have any caffeine; which kind of stinks becasue I love Diet Coke!!

Age: 25 / Male / Florida
Diagnosed: 11/08 / Pancolitis
Asacol - 2 x 3 day (waiting for results)
Prednisone / ended 1/09 (started at 30mgs and tapered down)
Mens Multi Vitamin - 1 a day
Calcium & Vitamin D3 - 1200mc of Calcium and 800iu of Vitamin D3
Metamucil Wafers - Once a day
Jaro - Dophilus Probiotic (3.4 Billion) - 1 a day
Diagnosed with PSC: 3/9 --now taking Urso

Old Hat
Veteran Member

Date Joined Feb 2007
Total Posts : 5190
   Posted 4/17/2009 9:41 PM (GMT -6)   
My colon rejects caffeine, also carbonated anything. / Old Hat (30 yrs with left-sided UC; presently recovering from flare in sigmoid colon)

Veteran Member

Date Joined Apr 2006
Total Posts : 3402
   Posted 4/18/2009 6:52 PM (GMT -6)   
I avoid caffeine because of the increased motility and the jitters it can give me. I love a decaf caramel latte and chocolate so I haven't been able to cut out all caffeine.

Carbonation is also a no-no for me during a flare. I try to avoid it in general, but an occasional soda tastes SO good.
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  yo-yoing between remission and a mild flare
Lialda 4 per day,  Azathioprine 50mg, Aciphex, Effexor XR, Forvia, Fibercon, and Culturelle
Remicade: 1st infusion 06/17/08:  Next infusion: April 1 after the tooth infection is gone :(
Last Prednisone dose:  7/15/08
Co-Moderator UC forum:  Keep HealingWell running smoothly:

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