Changing my UC diet + supplements

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PinkPaperclip
Regular Member


Date Joined Mar 2009
Total Posts : 108
   Posted 4/15/2009 4:53 PM (GMT -6)   
 
I think the diet they told me to follow at the hospital wasn't working with me. I am still on a flare (been a month) and some days are much worse than others. I realise that when I eat high glucose foods (white bread, white pasta, rice krispies, etc) I get bloody diarrhea at night time. Is there anyone else who have problems with that kind of food which is often the diet we are told to follow when we are diagnosed??   
 
I decided to head for the natural food store today and got plenty of good stuff I want to try. I am changing my probiotics and multivitamin for better ones (I was using the generic ones from the drugstore). The probiotic I got is the Garden of life "primal defense" HSO probiotic formula, If anyone is familiar with this. THe multivitamin I got is from Platinum and is called "easymulti" with omega 3 and 6. If anyone ever tried those I would love to have some feedback.
 
I started to cook with spinach, turmeric, oat bran, I am adding steamed and pureed vegetables to my meals and I will cut all the high glucose white stuff like white bread and pasta. I even got spinach pasta, I'll see if I can tolerate it. I will stick to rice since it doesnt seem to cause me any discomfort...
I am switching to soy milk (I used rice milk and lactose free cow milk but the rice milk doesnt give much protein and the cow's milk is hard on my system...)
 
I hope those little changes will make me feel better soon, I am trying to change one little thing at a time to be able to see whats working and whats not but with how sick I feel it's hard to pinpoint anything I guess I have to give it time...
 
I have a question about bread, anybody have an idea of what type of bread is okay with colitis? I was thinking about an all barley bread, I have been told that barley is easy to digest and is one of the softest cereals (besides rice) for the gut.. Is that true???
 
Also, I would like to know your thoughts on taking aloe vera gel as a "gut soother" I was thinking about trying that too... (1 spoonful in the morning and one at night is what they say on the bottle..)
 
Thank you for sharing your thoughts on everything, anything will help!
 
 
 
Diagnosed with pancolitis 03/09
Prednisone 40 mg, Mezavant 4.6g
Mulitivitamin, calcium supplements, probiotics
Seroquel 12.5mg and Paxil 10 mg for anxiety (since 2003)
 


princesa
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Date Joined Aug 2007
Total Posts : 2204
   Posted 4/15/2009 5:06 PM (GMT -6)   

Low res is good while you're flaring, but alot of sugar, white flour (breads, pastas) and overly processed food isn't healthy for anyone, IMHO. The diet that's worked for me is basically a low carb diet that's high in protein and omega3 fats. My "safe" foods are tender white meat of chicken or turkey or mild white fish, scrambled eggs, peeled and soft-cooked veggies, peeled and baked apples and pears, natural applesauces, natural nut butters, olive oil and butter. I feel best when I avoid all grains, but I'd at least recommend you look at gluten-free breads and pastas. And yes, when you're flaring, it can take a while to heal and/or to notice improvement from diet alone.

After an initial improvement on Primal Defense, I got rapidly worse and felt better as soon as I stopped taking them. I have some concerns about SBOs. A high quality probiotic is an excellent idea, though.

I take George's Roadrunner Aloe Vera Juice for gut healing along with l-glutamine. Beware of brands that may not have the laxative aloin component removed.


Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips.
 
 


PinkPaperclip
Regular Member


Date Joined Mar 2009
Total Posts : 108
   Posted 4/15/2009 6:20 PM (GMT -6)   
Oh my god, I just read a terrible article about HSO's ...

I don't know what kind of probiotic to use.. I don't know if I can gt my money back ,probably not.. I don't want to take something that can be dangerous for my health... :S (well I am on pred but...)
Diagnosed with pancolitis 03/09
Prednisone 40 mg, Mezavant 4.6g
Mulitivitamin, calcium supplements, probiotics
Seroquel 12.5mg and Paxil 10 mg for anxiety (since 2003)
 


kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1201
   Posted 4/15/2009 7:08 PM (GMT -6)   
I echo princesa's suggestions and diet. I too follow a somewhat lo-carb, processed-free food diet. I would also stay away from any foods with yeast in the meantime, if you are trying to see what helps you feels better. Yeast(fungus) can(does) cause inflammation. (What makes bread rise?) Grains, particularly wheat and corn, also contain mycotoxins (fungal poisons). What also helped me get well again was taking natural antifungals/antimicrobials, like olive leaf extract.

Brinda
Regular Member


Date Joined Apr 2009
Total Posts : 30
   Posted 4/15/2009 7:51 PM (GMT -6)   
I hear so many different things.  My doctor told me to follow a low residue diet as well, which consists of a lot of white bread and pasta.  I think this makes me tired.  I also eat deli meats, which sound like those are bad??
 
Should I talk to my Dr. first about a good mulit-vitamin and a probiotic?  Or is it okay to start on my own?  If so, which ones (brands) are recommended? 
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
31 year old female, diagnosed w/ left sided UC on 4/6/09
7 month old son
1 Rowasa enema nightly - Symptoms better
Also taking Synthroid and Lexapro
 


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 4/15/2009 8:23 PM (GMT -6)   
Brinda said...
I hear so many different things. My doctor told me to follow a low residue diet as well, which consists of a lot of white bread and pasta. I think this makes me tired. I also eat deli meats, which sound like those are bad??


Should I talk to my Dr. first about a good mulit-vitamin and a probiotic? Or is it okay to start on my own? If so, which ones (brands) are recommended?


Yeah, there's not alot of things recommended by them nutrition wise that will make alot of sense when you actually sit down and think about it. I can see that the stuff may be more easily digested yes, but why in the world would I introduce an inflammatory diet into a body with an inflammatory disease.

For a multi get a good whole food sourced vitamin. There's several out there. Super Nutrition carries a very affordable one, and I have been taking a liquid vitamin that is good (organic life vitamins). Probiotics, you just have to try them and see what one works (Primadohpilus reut, Jarrowdophilus, Align, Culturelle, Dr. Ohirras, VSL-3 just to name a few)
Proctitis DX 1999, Pancolitis DX 2008
Lialda 1 day
Immuran
Golimumab study (100mg every 4 weeks)
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD3+Ca/SuperDHA


Deacon Blues
Regular Member


Date Joined Oct 2006
Total Posts : 312
   Posted 4/16/2009 10:58 AM (GMT -6)   
PinkPaperclip said...
Oh my god, I just read a terrible article about HSO's ...

I don't know what kind of probiotic to use.. I don't know if I can gt my money back ,probably not.. I don't want to take something that can be dangerous for my health... :S (well I am on pred but...)


I believe that Primal Defense helped me alot...I haven't taken it in a long while as I am doing OK without it now. COULD YOU PLEASE SHARE THE LINK THAT YOU READ about HSO's THAT WAS SCARY?? Thanks, DB
Diagnosed with UC in Dec of 1999
PANCOLITIS-mild to moderate (remission for 2 years +!!??...i don't know...I am just SO happy when I have a good day!!)
3X400mg Asacol 3x per day
Mild flares a couple times a year
46 yrs old


PinkPaperclip
Regular Member


Date Joined Mar 2009
Total Posts : 108
   Posted 4/16/2009 2:38 PM (GMT -6)   
 
this is the link...

I can't find any reliable site about probiotics, anyone know one??

I am giving it a try anyways, on my 2nd day nothing bad happened :P


Diagnosed with pancolitis 03/09
Prednisone 40 mg, Mezavant 4.6g
Mulitivitamin, calcium supplements, probiotics
Seroquel 12.5mg and Paxil 10 mg for anxiety (since 2003)
 

Post Edited (PinkPaperclip) : 4/16/2009 1:45:09 PM (GMT-6)


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 4/16/2009 2:50 PM (GMT -6)   
I would take anything from that site with a grain of salt. I actually wouldn't waste my time reading it. Most of Steven Barrett's propaganda is garbage.
Proctitis DX 1999, Pancolitis DX 2008
Lialda 1 day
Immuran
Golimumab study (100mg every 4 weeks)
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD3+Ca/SuperDHA


PinkPaperclip
Regular Member


Date Joined Mar 2009
Total Posts : 108
   Posted 4/16/2009 3:06 PM (GMT -6)   
Heheh thanks DR-A , I studied microbiology for a while and the names of the bacteria in the pills didn't ring any alarm bells in my head.... I will open my books and do a little research just for fun. Thanks a lot! I am not familiar with that Steven Barett's guy, who is he? :P

Another question: are ground flax seeds dangrous for my intestines while on a medium flare? I've read that Flax seed oil helps repairing intestinal tissue, but I also read that flax seed oil isn't as affective as flax seeds themselves because it oxydes in contact with air. SO my idea was to grind flax seeds and add them to my soy yogurts?
Diagnosed with pancolitis 03/09
Prednisone 40 mg, Mezavant 4.6g
Mulitivitamin, calcium supplements, probiotics
Seroquel 12.5mg and Paxil 10 mg for anxiety (since 2003)
 


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 4/16/2009 7:51 PM (GMT -6)   
I have ground up flax/almonds/sunflower seeds and taken them during pretty severe flares. I always add them to my shakes. Never had any negative response in doing that. Can always do a small amount and just see how you react with them and then add as you get comfortable. You are pretty early in the diagnosis stage so I'll give you a great recommendation I wish I would have had many years ago. Tribest personal blender! Thing is awesome and easy to clean up.
Proctitis DX 1999, Pancolitis DX 2008
Lialda 1 day
Immuran
Golimumab study (100mg every 4 weeks)
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD3+Ca/SuperDHA

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