Prednisone has horrible side effects from long-term use, so your doctor is correct in not allowing you to stay on it. However, prednisone also doesn't work long-term. It won't keep patients in remission, it can only help patients achieve remission. At any rate, I hope you improve soon.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly,
40mg 30mg 20mg 15mg 10mg 10mg of Prednisone every other day, Culturelle probiotic, and Zoloft (25 mg).