Weight gain... when I was first put on the high dose of pred, I actually dropped alot of weight. I had increased energy and no joint pain. And NO appettite. It wasn't until I started weaning off that I got an appetite. I started watchin what I ate, and only gained 10 pounds back ( I had lost 40 )(so I could afford to gain 10 back ) .. LOL.
As for moon face and such... I didn't get the moon face or the bloating until I started to wean again. It started when I had weaned down to about
20 mg. I was on 40 mg for months till symptoms got under control. Now that I am in my last week of this drug ( I should be weaned off by middle of next week) My moon face is gone... the bloating of belly, hands, and shoulders ares till there but lessening.
If urgency is your main problem... ask your doc about
pamine forte. My GI put me on that for the urgency. And it really worked for me. It seemed to settle everything down. And the only side effect I recieved from that is dry mouth. ( sometimes pretty bad) But it really helped with my urgency and spasms.
38 yr old male, NE Ohio, diagnosed Aug 2008, but been with symptom since Nov 2007
30 mg pred, 9 balsalazide, rowesa nightly, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera tabs
Following gluten free diet as well as spinach/sunflower regime
**down to 25 mg of pred 12/25/08 **down to 20mg of pred 1/7/09**down to 17.5 mg 1/22/09
**down to 15 mg of pred 2/3/08**down to 12.5 mg of pred 2/13/09**down to 10 mg 2/26/09
MED CHANGE: 1/13/09-- 4 Lialda, 2 Pamine Forte, 1 Florajen3 probiotic, 2 Aloe Vera tabs, Rowesa every other night, 20 mg of Pred, Lomotil as needed, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol