Sorry you have been in such misery.
I think I would be a most difficult patient, because I would not go to the ER or let them admit me or do tests or xrays without knowing exactly why, why, why...
And from what you describe, I am wondering: Why do tests at the ER, the most expensive (and miserable) place for health care? Why do an xray for TB, when a simple skin test is all that is necessary? (No wonder health care costs and health insurance is going through the roof! assuming you are in the USA)
I'm honestly trying to understand. Do you think the hospital stays help you?
(BTW, it is cool is it that we can stay in touch via the internet this even while you are in the hospital).
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares.
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion).
Bad flare in March, seasonal? Back on prednisone, 40-30-25-20-15... Humira denied, started Remicade 4/12.