Ugh-I am sorry. I have't even had the disease for 5 years, I can't imagine dealing with a flare that long.
Last year when I was hospitalized, I was very fearful I would end up having surgery. Then I came to find out that the people who have done it are glad they did. But for me, I think i would try just about
everything I could to avoid it at this point. Not really because I am scared of surgery anymore (though right now Humira has me doing pretty well, but I know I won't be on it forever, so I anticipate more flaring over the course of my life obviously), but the advances in medicine have been huge in the past few years. I just feel like right now, I would want to wait if I could and see what may develop in the future. When I hear Dr. Oz on TV talking about
regenerating organs, I think that advances like that could one day (in the relative near future) could be huge for people like us. Imagine being able to grow yourself a new colon from your own cells in a matter of weeks? Not to mention advances in medications and such as well. Who knows what the future holds-and what the actual timeline will be for some of these things, but it just seems we are in a very dynamic time when it comes to medicine, and for me I think I would want to try my best to control things without surgery because of that.
That said, I feel much about
this as I did about
drug free childbirth (which will never be for me again because I have to have c/s now). My first I did drug free and would have finished off that way had she not been breech, but my labor was only about
12 hours from the first contraction until she was born, and only about
4 hours of that was really hard labor. If I were in that hard labor phase for 24 hours? Get me the epidural!! So I think it is easy for me to say I would go without surgery, but if I were flaring for 5 years? I think I would be on my way to a consult with my surgeon.
I wish you luck on this-raising children is hard enough when you are perfectly healthy
. Doing it with this disease can seem like climbing Everest some days.
33 years old, stay at home mom of 2 girls, ages 3.5 and 2.5
Diagnosed in 2007
Biweekly injections for Humira clinical trial-going well so far!!
Canasa suppositories-1000mg nightly for recent flare