Good Pastur'e Syndrome

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Godsown
New Member


Date Joined Apr 2009
Total Posts : 3
   Posted 4/19/2009 2:01 PM (GMT -6)   
Hi Everyone! I'm new here and chanced upon this wonderful forum while searching for relevant info on Goodpasture's syndrome. My Mother in law has been diagnosed with it this last month and i thnk god for the timely hospitalisation and diagnoses she received. The doctors told me how rare it was and how rapidly it damaged but only after reading everyone's post here does it make me realise what a close shave she had!!!I thnk god for the wonderful nephrologist we got here...In my MIL's case she suffered frm rapid kidney failure and very vague symptoms of loss of appetite and nausea,which were actually acute only in the last week before we went to the doc...And thank God we did not go to a GP but a specialist who directed us to a nephrologist after the results of first urine test were out...Now, she has undergone 7 sessions of plasmapheresis, related steroids and immunosuppressents...her kidney shows a damage of upto 80%(creatnine was 18 whe she was first admitted, is that so bad?? is down to 5 now) She is also undergoing hemodialysis 3 times a week... what i want to know is tht those of u with kidney damage,how long does it take for kidney's to revive or to conclude that they r not going to revive...she has started passing urine but abt 2ml twice a day since a week frm last plamapheresis...creatinine dips and rises acc to dialysis session...Pls share ur experience, so i know how much to hope for... God Bless u all!!!

quincy
Elite Member


Date Joined May 2003
Total Posts : 30614
   Posted 4/19/2009 3:50 PM (GMT -6)   
Hi..welcome to Healing Well.

I think most of us here cannot help you since this is the Ulcerative Colitis forum and I don't think many of us would have this.

I feel for your MIL and all the family dealing with such a shock regarding her diagnosis..I do hope her treatments are succesful in helping her regain a good quality of life.

Please repost in the Kidney disease forum for the support you'll need.

quincy
*Heather* Status: mild flare enemas tapered to every 2nd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 4/19/2009 4:10 PM (GMT -6)   
Quincy is right, this is a forum for Ulcerative Colitis however we do have an ongoing thread that you may want to check out.

http://www.healingwell.com/community/default.aspx?f=38&m=459432


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Godsown
New Member


Date Joined Apr 2009
Total Posts : 3
   Posted 4/19/2009 8:53 PM (GMT -6)   
Thanx Quincy and Red_34 ! I thot i was writing in the Good PAsture's syndrome forum!!Thanx again and God Bless!!
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