someone give me details of surgery

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Regular Member

Date Joined Nov 2008
Total Posts : 28
   Posted 4/19/2009 2:38 PM (GMT -6)   
i am really condisering this.  Have to talk it over with family but really i see no other way.  Can someone lead me to somewhere that has all the details.  Like how long in hospital.  Any feeling of urgency after.  Any belly pain?  Do you still have anything come out of your bottem and is there a way to avoid this.  I am really intrested in Jpouch surgery.

Forum Moderator

Date Joined Mar 2003
Total Posts : 10407
   Posted 4/19/2009 2:52 PM (GMT -6)   

This site has information plus a message board to ask questions.

Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"

New Member

Date Joined Apr 2009
Total Posts : 11
   Posted 4/19/2009 8:08 PM (GMT -6)   
I have had UC for several years and tried everything and I finaly did the surgery. Most people do well I was one of the few percent that doesn't. I have a J pouch. I have had about 7 surgeries in one year. Doctor wants me to go back to the bag but I will be seeing one more Doctor before doing that.

Johnny K
Regular Member

Date Joined Apr 2009
Total Posts : 32
   Posted 4/20/2009 12:55 AM (GMT -6)   
I just had the J pouch surgery and i would recomend it however there are a few other choices that you should at least look into.  LIke I said i got the surgery 7 months ago. the J pouch surgery consists of 2 seperate surgery most likely...sometimes you can do it in one but most surgeons don't recomend it. The first is the worst. they completly remove the colon and reconnect your small intestines in the form of a pouch to your rectum. You are also in for a minimum of a 6 to 8 weeks with a colostomy bag sometimes longer depending on how quickly you heal ect... I had to wait 9 weeks and I have to tell you all I did was go for walks...and sit at home but this was do to I felt very uncomfortable and dirty with the was also very high on my abdomon so i couldn't wear anything but sweats or gym shorts comfortably. As far as the first surgery i was in the hospital for 11 days after but this was due to a mix of excrutiating and a tolerance to pain meds which was due both to having a doctor who threw pain meds at me and dealing with migraines as a side effect of the meds and UC. The average time in the hospital after the first surgery is 5 to 7 days
I will say that while having the bag you also have mucus discharge from you butt which is uncontrolable and very gross i went through alot of underwear and moved up to basically adult diapers so that I didn't have to wash my underwear every 3 days in order to have enough lucky throught out the month and a half or so this gets less and less. The other adjustment to the bag was something that if it had been permanant I would not have been able to deal with. the stoma grossed me out... cleaning and changing the bag was horrible and I ended up with a very bad case of wat was essentially diaper rash around my stoma so bad that the bag would no longer adher to my skin and i had to have a bag that belted to my body
good news is i made it through and the second surgery was a breeze. All the surgeon does durig this surgery is reverse your stoma it was something like 45 mins on the operating table and i was out of the hospital the next day. I will say that where my stoma had been still hurt for quite a while after so if your use to sleeping on your side or stomach your gonna have to learn how to sleep on your back...same goes for while you have the bag. Like I said he surgery is mainly an adjustment and all about getting use to some new and sometimes somewat uncomfortable things... after the second surgery they make sure you have a couple Bowl movements and release you. The best thing i ever found was a ointment called CalmoSeptine. it's a great thing once u start useing the bathroom again your butt is going to burn and itch and it's terrible i took alotta baths and that seemed to help but once i was givin this cream I no longer needed to. the hemroid crams and all of that stuff DO NOT work no point in even wasting your money. Now finally after having the surgery you need to find out what foods you can eat and what will make you need to go or what will hurt comin out...spicy is painful at first but it gets better ect... and no one can tell you these things cuz we are all differ at this point for example peanuts are said to firm you up...and they loosen me up ect... the biggest issue i had was for the first month i was going about 10 to 12 times a went down to 8 and i learned that if i hold it a lil longer i was quickly lessing the amount of times i would hae to go...i'm now down to about 3 to 4 times a day and it's only been 7 genreal the pouch will continue to grow and mature for a year or so and at that point you'll reach the least amount of times you go.
I feel amazing i have more energy then ever. I have 2 big scars but this was due to how i had the surgery is possible to do it and have 2 very small scars but it depends on your body build. I would definatly recommend doing the surgery if you feel your UC is not controlled even while you are feeling ok or mildly sick so that you have the option to choose the type of surgery you get. If you go in as an emergency case you may not have the choice.
If you do wish to do the surgery I wish you the best of luck
my prayers are with you
21 Male in Michigan
Dioganosed with UC: sept 2000
J-pouch Surgery: august 2008
Feeling wonderful and hoping I can help :)

New Member

Date Joined Apr 2009
Total Posts : 11
   Posted 4/21/2009 8:53 AM (GMT -6)   
Is there anyone else out there that had the problems I have had since the J pouch? Refer to the last reply from new member Redwood.  Thank you

Forum Moderator

Date Joined Feb 2006
Total Posts : 5698
   Posted 4/21/2009 9:10 AM (GMT -6)   
You might find support and answers for your jpouch problems at

dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

Regular Member

Date Joined Feb 2008
Total Posts : 79
   Posted 4/26/2009 9:52 PM (GMT -6)   
I had my j-pouch surgeries last year. I had 3 total (see my signature). At almost 6 months after the final surgery...pouch creation and hookup, I'm doing great and life is about 95% of normal. I don't think of UC anymore and have no regrets...and I'm off all of the meds except Actonel for my osteoporosis. I can eat and drink virtually anything and travel again. I just avoid spicy foods and things with vinegar, and that's about it...mainly because you'll get butt burn which seems to be the worst side effect of j-pouch surgery due to not having a colon anymore. There's something else called pouchitis, but I haven't experienced it yet and it is treatable with antibiotics.

I gained all of my weight back, have all of my energy back (enough to catch up on 3 years of yard work this month), go to the bathroom about 5 times a day and 1 to 2 times at night without any urgency. So far so good. The only thing is that the surgeries are rough, after the final "hook-up" you may experience severe butt burn for the first 2 months and going to the bathroom like 20 times a day, but eventually everything slows down and life finally returns pretty close to normal again. I just stop back here once in a while to see how others are doing.

Your time in the hospital after the surgeries varies, can be as little as 3 to 5 days, or longer if you run into complications. My first surgery was the colon removal and ileostomy, out of the hospital in 4 days, the next one was emergency surgery due to scar tissue chocking off my small intestine and caused a the hospital for 3 weeks (otherwise I would have had only 2 surgeries). The third surgery to create the j-pouch and reconnect everything...I was in for 2 weeks. I almost got out in a week, however my intestine took longer to wake up, so I was in another week before I could eat solid foods again and then I was released. I was off of work a total of 5.5 months last year on temporary disability. I haven't been sick or missed a day of work since I returned in January.

Good luck.
Age 0 to 30 - 100% healthy, no meds, no doctor visits, no hospital stays
Oct. 2006 - Symptoms of UC began
3/5/2007 - Diagnosed with UC - Severe Pancolitis
20mg-40mg/day Prednisone, 4.8 g/day Asacol - didn't work at all
10/12/2007 - Steroid Induced Osteoporosis from Prednisone and Anemic
add Actonel (75mgx2 pills/month) and daily iron pills
2/12/2008 - open Subtotal Colectomy with Temporary Ileostomy Surgery
8/05/2008 - Unexpected surgery to remove blockage caused by scar tissue
11/20/2008 - J-Pouch + Reversal Surgery - Now living happily ever after!!!
"When life gives you lemons...make lemonade"

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