I just hope the cortenema doesn't give me the urgency rowasa did

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therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3670
   Posted 4/20/2009 11:23 AM (GMT -6)   
I'm switching from Rowasa to Cortenema (which by the way it's all too expensive when you don't have prescription coverage!) and I'm hoping the "accidents" will stop. When I take the 5ASA there is something in them that makes me highly nervous and I can't hold back my stool, it seems to hit me the most when driving. So, from what I understand the cortenema is a steriod and the rowasa is not, hopefully I will have better luck. Thanks for listening. Linda
 
Very mild left sided (could have fooled me with the "mild")  UC. STARTED LDN ON 1/25/09. Supplements:  Cod Liver, Probiotics, multi whole food vitamin, olive leaf extract.


quincy
Elite Member


Date Joined May 2003
Total Posts : 31004
   Posted 4/20/2009 11:52 AM (GMT -6)   
All you can do is try it....keep us posted.

You can eventually lower the dosage and type to cortifoam or to a lesser dosage of steroid in proctofoam.

q
*Heather* Status: mild flare enemas tapered to every 2nd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 4/20/2009 11:56 AM (GMT -6)   
I think you'll be pleased with them. The rowasa doesn't agree 100% with me, but I know if I can get 1/4 bottle of the cortenema in I am good to go in around 40 min.
Proctitis DX 1999, Pancolitis DX 2008
Lialda 1 day
Immuran
Golimumab study (100mg every 4 weeks)
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD3+Ca/SuperDHA


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 4/20/2009 1:02 PM (GMT -6)   

It's probably not the meds giving you the urgency, it's the disease.  The cortenemas do miracles for me so hopefully you'll see results within a day or two.  The urgency that you're getting in the car is probably from anxiety.  I used to get the same thing.  As soon as I got in my car, I had to run back inside to go to the bathroom.  I decided to try Xanax and it's been my wonder drug!!  I only need to take .125 mgs. a few times a week and I have absolutely no anxiety when driving anymore.  It's really given me my life back and I feel like I can come and go without any worries anymore.  I hate that I have to take something to get rid of the anxiety but it truly works.


Female, Age 38
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03, Diagnosed with UC 2/03
Current Meds:
Lialda, 6MP
Ferrex Forte
Acidophillus, Sacchromyces Boulardii, Oil of Oregano


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 4/20/2009 2:57 PM (GMT -6)   

I tried all the rectal meds and the best one I used was Proctofoam but they all aggravated the bleeding and swelling after a few days.  All you can do is try! 

As for Xanax - my lifesaver also.  I take no more than 3 total .25 every day mostly in 1/2 pill doses.  If taken 1/2 hour or hour before driving or before sleeping - they relax me to make it without the anxiety I used to have.  There are other "helpers" out there - sometimes we have to try several to find the ones that work for us.  I also take Imodium when traveling, etc.  Pepto Bismall for nausea when bad and my doctor ok'd them all for me.

ElaineNY


 
Senior - New diagnosed with proctosigmoiditis - 6/2008   Tried, Colozal, steroid enemas, etc. - started working but severe side effects occurred. No mesalamines!!
Started on prednisone Feb.7, 2009 - tapering to 20 mg. - upped prenisone to 25mg. on my own (bleeding returned) - 6MP - 50 mg. 2/28/2009 
75mg. 6 MP added on 4/8/2009 - waiting for CBC and Prometheus tests
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3670
   Posted 4/20/2009 3:00 PM (GMT -6)   
Hi,
I've been on Pepto Bismal for the past 4 days, about 2-3 cups a day (the cups that come with it) you can take up to 8 a day. I'm doing better actually finally today. I feel better, less blood, but still cramping and then the poop comes. I started a new probiotic two days ago and I think this is helping too.
We'll see how it goes tonight.
Thank you,
Linda
Very mild left sided (could have fooled me with the "mild")  UC. STARTED LDN ON 1/25/09. Supplements:  Cod Liver, Probiotics, multi whole food vitamin, olive leaf extract.


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 4/20/2009 3:27 PM (GMT -6)   
Pepto Bismol contains saccharin, so if you're sensitive to artificial sweetners, you'll want to avoid it. I can't for the life of me figure out why a medicine for upset stomachs contains an ingredient that causes so many people to have upset stomachs!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, 40mg 30mg 20mg 15mg 10mg 10mg of Prednisone every other day, Culturelle probiotic, and Zoloft (25 mg).


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 4/20/2009 4:14 PM (GMT -6)   

Yup and also ingredient similar to aspirin.  Somehow it works great for nausea for me with no problems but it is certainly something to think about and use carefully.

ElaineNY


 
Senior - New diagnosed with proctosigmoiditis - 6/2008   Tried, Colozal, steroid enemas, etc. - started working but severe side effects occurred. No mesalamines!!
Started on prednisone Feb.7, 2009 - tapering to 20 mg. - upped prenisone to 25mg. on my own (bleeding returned) - 6MP - 50 mg. 2/28/2009 
75mg. 6 MP added on 4/8/2009 - waiting for CBC and Prometheus tests
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 

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