Confused with diagnosis.....please advice!

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rummy
Regular Member


Date Joined Mar 2009
Total Posts : 27
   Posted 4/20/2009 4:38 PM (GMT -6)   
I first had symtoms of rectal bleeding and loose sttols starting about three months ago. After my physician removed all regular diagnosis, he passed me onto a GI, who immediately ordered a colonoscopy on March 25th. After seeing inflammation in colon (ring like and not continuous), my GI diagnosed colitis (probable crohn's) and started treating me with 2.4 g of Lialda. He then ordered some more blood work (ESD)that he said is more consistent with Crohn's. He then sent my bloodwork to Promoetheus- Serology 7 test. On meeting him today, he says that the test came back confirming IBD, but saying I have UC and not Crohn's. Also, since 25 days on Lialda seems to have cured my blood in the stools that may be I do have UC. Further, lack of any penetrating pain in abdomen also points more to UC than Crohn's. So for now he is recommending continuation on Lialda. Meanwhile, I'm still wondering whether I have Crohn's or UC?
 
Any advice to further my diagnosis or your personal experiences would be helpful? Thanks

princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 4/20/2009 5:01 PM (GMT -6)   
Some of us have atypical symptoms and an absolute diagnosis may be difficult to pin down. My diagnosis was still in question years after I originally became ill. I'm not sure it would make that much difference whether your diagnosis was UC or Crohn's colitis as the treatment is going to be similar and it sounds like what your doc is doing is working for you. I've found that ultimately, the things we must do to improve digestive health, reduce inflammation, clean up the diet, etc. are helpful to any flavor of IBD.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips.
 
 


potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 4/20/2009 5:18 PM (GMT -6)   
mine came back as uc also but the last couple of times I saw the GI he thought crohns but like princesa said the treatment is the same meds. So I dont think to much about it are let it worry me.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5968
   Posted 4/20/2009 5:32 PM (GMT -6)   
     I was first diagnosed while hospitalized in 1998 with ulcerative colitis.  The day of my discharge from the hospital my GI physician's CHIEF associate entered my room with the discharge papers and said..."Just how long have you had Crohn's Disease?"  This totally threw me for a loop!  Here, he has all my hospital records right in front of his face and he is telling me I have
Crohn's????  He mumbled a few undistinguished words and left the room.  Needless to say, I NEVER made an appointment with him.  I feel comfortable with my GI doctor and his younger associate.  The older one has since retired....long overdue I would say.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


Katmom
Veteran Member


Date Joined Mar 2008
Total Posts : 1202
   Posted 4/20/2009 5:37 PM (GMT -6)   
Ditto, the above posts. It doesn't really matter at this stage. Good of the doc to order that test though, many do not. Some medicines that you may experience later work better on one disease than another(ie the 5ASA Colazol is better for left sided colitis, as that is where the meds are released,t doesn't help the small intestine, where the other ASA Asacol works differently). Speaking of which, that is one test that also helps to define the disease, a small bowel xray is easy to do. Some meds work on all inflammation, and it looks like you are responding easily. Hang though.
Daughter,15 diagnosed 1-08 w/ UC .
Previous drug sampling: Asacol, Prevacid, Flagyl, Prednisone- 50mg to 0, 4 major flares '08.Hospital four x. Low residue diet,
6MP, Colazal , Cortifoam enemas,
Trying probiotics, Niferex, fish oil, Magnesium, Acupuncture.
Remicade 10mg per kilo@ 8wks, since 10-08. Still on 6mp and Colazal


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 4/20/2009 7:08 PM (GMT -6)   
I responded to your question at the CD forum.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Johnny K
Regular Member


Date Joined Apr 2009
Total Posts : 32
   Posted 4/20/2009 9:50 PM (GMT -6)   
could just be a tough case in that you don't fall into the "normal" diagnosis i know i had UC and had a ton of pain all the time in my gut everyone is different...its also possible to be in that small percentage who have both UC and CD if the Lialda is helping stick with it control is the key hope you find out soon and continue to feel better

John
21 Male in Michigan
 
Dioganosed with UC: sept 2000
 
J-pouch Surgery: august 2008
 
Feeling wonderful and hoping I can help :)

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