UC /Crohn's rash?

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svetla
Regular Member


Date Joined Jan 2009
Total Posts : 32
   Posted 4/21/2009 12:05 AM (GMT -6)   
Hi everyone,
 
i am experiencing  a terrible rash at the moment - started about 5 days ago, and it was mainly itching at the beginning, then it got worse and now red spots cover my whole arms, neck, hands and the sides of my back and the upper part of my legs, sometimes some yellow pus gets out of the spots, but the biggest problem - apart from looking awful and enjoying a flare at the same time i s the pain, my arms where the rash is concentrated are swollen and painful, every single movement is painful, stopped eating(almost) because i am afraid some of the stuff i eat can be irritating. My family doctor said 'crohn's/UC rash' prescribed prednisone 50 mg the first day and 20 mg for the next 10 days? isn't it too low a dose? has anyone had anything like that? I am thinking of increasing the dose myself, the only prednisone scheme that has worked for me has been 40-35-30-25-20-15-10-5-0 ,for a week each. would my doctor be offended if I ask her to increase the dose?
 
and one more question - i live in Cnada and will be missing days from work - i'll miss the pay too and I cannot afford it. do you know if you can get EI benefits for such a short period as a week? HR told me that they usually don't cover the first 2 weeks - it is unfair!  so I have to  be absent for more than 2 weeks to get covered? and to lose my job at all?
 
take care, everyone,
 
i hope the pain will go away....
 
 
sulfasalazine, 8x500mg
fish oil+evening primrose oil+flaxseed oil supplement
swiss formula probiotic
some multivitamin supplement but stopped it because thought was allergic to it
prednisone 50mg +20 mg for 10 days
valeriane
anti-allergy pills
 
 

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 4/21/2009 12:19 AM (GMT -6)   
Take into consideration they're putting you on pred to treat the skin issue and that would be the reasoning for the dosing being different compared to when they give it to you for youre usual IBD symptoms (D, frequency, ect).

I say give it a go and see if it helps the skin issue you're having, the dosing won't likely hurt you.

I don't know if you can get EI for a week, I doubt it, maybe look into short term disability through work?

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Delarge
Regular Member


Date Joined Mar 2007
Total Posts : 157
   Posted 4/21/2009 2:54 AM (GMT -6)   
For what period of time have you been using sulfasalazine? Has a skin culture or biopsy been performed?

AlliUC
Regular Member


Date Joined Mar 2009
Total Posts : 50
   Posted 4/21/2009 6:40 AM (GMT -6)   
Hope you find some relief soon. That sounds so uncomfortable.

I am just in my first week of no pay as I have run out of sick and annual leave. There is a two week waiting period for EI. I am going to apply so I will let you know if I am given any different information.
Female, 41
1995/09/15 - proctitis (during pregnancy, just months after I quit smoking)
2009/03/03 - ulcerative colitis - Pancolitis

Fighting my first major flare Jan 2009
first UC flare may have been at the end of 2006, 2 months after I quit smoking again

60 mg prednisone Mar 5/09 - taper by 5 mg every 4 days starting April 17/09
salofalk enemas = 5-aminosalicylic acid (mesalamine) added March 24/09


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 4/21/2009 9:45 AM (GMT -6)   
Wow, that sounds terrible! I hope it gets better soon.

Have you changed anything (laundry detergent, soap, shampoo) that might be causing it? It might be good to think about that, too, just in case.

As for the dosing, I'd say it's different b/c you're treating a rash, not your colon. I know that for severe poison ivy they typically do a very short course of treatment. Because of the nasty side effects of pred, I'd try the dose she prescribed first.

I live in the US, so can't help with the pay question, but I know that for my short term disability, I have to cover the first two weeks as well, and I think it's a pretty common thing. I can use vacation or sick days for those two weeks so that I don't loose pay.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, 40mg 30mg 20mg 15mg 10mg 10mg of Prednisone every other day, Culturelle probiotic, and Zoloft (25 mg).


potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 4/21/2009 10:04 AM (GMT -6)   
have you been taking the sulfa long, I was allergic to it and got a rash all over my stomach from it.
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


svetla
Regular Member


Date Joined Jan 2009
Total Posts : 32
   Posted 4/21/2009 2:54 PM (GMT -6)   
Thanks, everyone.

I have been taking the sulfa isnce I was first diagnosed in 2001- but have taken different brands, so who knows, it could be the brand as well...

i have been too embarrassed to ask if I am entitled to get paid for the sick days- i have been working at this company for 9 months. i could ask some of my co-workers, but feel strange. i don't know what the reaction would be.

take care, everyone.
i hope the pain will go away....


sulfasalazine, 8x500mg
fish oil+evening primrose oil+flaxseed oil supplement
swiss formula probiotic
some multivitamin supplement but stopped it because thought was allergic to it
prednisone 50mg +20 mg for 10 days
valeriane
anti-allergy pills
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