Excruciating pain in rectum...

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UC spouse
Regular Member


Date Joined Feb 2008
Total Posts : 70
   Posted 4/21/2009 11:17 PM (GMT -6)   
My husband has had pancolitis for two years. In his most recent colonoscopy his rectum seemed to be the most affected/inflamed.

He has been in severe pain these past two days in his rectal area. After a bowel movement he cannot even stand straight. This lasts for about 5-10 minutes after each bowel movement. There is no pus or blood. His doctor said that this is a form of proctitis and prescribed him some anal cream, which is a cortisone type cream. That seems to help only a little. It numbs the area for a bit.

I am worried about him. I have read so many things online of what this could be. Could it be an anal fissure? I was wondering if anyone can please help if this sounds familiar or if anyone has any suggestions of how to deal with the pain.

Thank you so much,
Concerned wife

aned
Regular Member


Date Joined Mar 2009
Total Posts : 105
   Posted 4/21/2009 11:28 PM (GMT -6)   
My only suggestion is that severe pain is never normal and shouldn't be something he has to live with. He should discuss this with his doctor...again...and let him know the cream isn't sufficient to deal with the problem. Sometimes it is really hard to be an advocate for ourselves or those we love, but in dealing with this disease you have to be. Good luck and I hope he finds relief soon.
37 y/o female
non-specific colitis dx. 2007
ulcerative colits dx. 2009
diverticular disease dx. 2009
Asacol-failed
Entocort-failed
Colazal-current, but not working yet


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 4/22/2009 12:09 AM (GMT -6)   
Please tell your husband to try sitz bath. I too have pain in rectum/J pouch, once it is inflamed. My stoma nurse had advised me to have sitz bath. Please take a second opinion. Some of the creams with menthol or zinc are quite effective. I know you must be worried about your hubby. Do not worry. I am sure with a supporting and caring wife like you, he will be fine very soon.
45 years Male Attorney
Diagnosed UC October 1989
 
Had two stage J Pouch Surgery Nov 2005; Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
 
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle: Albert Einstein
 
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30687
   Posted 4/22/2009 2:51 AM (GMT -6)   
Hi....did the doc take a look at your husband's butt before prescribing the cream?

Is your husband on any internal rectal meds?


The other suggestion of a sitz bath can help relieve some of the spasming or if he may have a fissure or hemmi.

An antispasmodic medication would help relieve some of the discomfort....but it he should still have it looked at to make sure there's nothing else going on just based on the fact that it's out of the ordinary of his symptoms so far.

Keep us posted as to how he's doing.

quincy
*Heather* Status: mild flare enemas tapered to every 2nd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


UC spouse
Regular Member


Date Joined Feb 2008
Total Posts : 70
   Posted 4/23/2009 12:02 AM (GMT -6)   
Thank you so much guys for your help and kind words.

My husband is not on any internal rectal meds. (He's dead against taking those).
His pain has reduced to half today, thanks to the cream he feels. It's a vicious cycle since his bumb is not getting any rest b/c of the constant trips to the bathrooms.
The doctor did not see his butt before prescribing the cream. I will tell him to have the doctor look at it and to take a sitz bath or sit in the tub. Btw,what does a fissure feel like?

Thanks again,
Concerned wife

Post Edited (UC spouse) : 4/22/2009 11:05:38 PM (GMT-6)


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 4/23/2009 3:08 AM (GMT -6)   
Thanks for the update. As he is frequently going to the bathroom, the rectum, anus, and the skin around the same gets inflamed/cracked. This also happens because of the enzymes/bile juices which flow with the stools. In some cases, it is because of frequent use of TP or water to wash the bums. Please ensure that the butt is dried after a wash. Apply Metronidazole Gel (after consulting the doctor, if you wish), after every trip to the bathroom. Apply the same around the anus as well as inside with finger. It would really help. There are some ointments with menthol. They are very soothing.

I can't comment much about fissures. I used to have polyps in my bum.
45 years Male Attorney
Diagnosed UC October 1989
 
Had two stage J Pouch Surgery Nov 2005; Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
 
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle: Albert Einstein
 
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3625
   Posted 4/23/2009 9:16 AM (GMT -6)   
I'm going the same thing as we speak. It only feels better to lay down b/c sitting puts pressure on my butt. It's terrible and I literally cry. I've tried the creams, they don't help. I do have a fissure and it bleeds like someone cut off my finger. I'm trying Zantac now to see if this helps the bile juices or acid whatever comes out with my diarreah. I hope your husband finds relief and if he does, please post what he did for it.
Thank you.
Linda
Very mild left sided (could have fooled me with the "mild")  UC. STARTED LDN ON 1/25/09. Supplements:  Cod Liver, Probiotics, multi whole food vitamin, olive leaf extract.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 4/23/2009 1:33 PM (GMT -6)   
UC spouse, why is hubby dead set against using rectal meds? Rectal meds have saved my sanity and saved me from alot of un-necessary pain many, many times in the past (specifically cortifoam rectal meds).

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


UC spouse
Regular Member


Date Joined Feb 2008
Total Posts : 70
   Posted 4/25/2009 11:37 AM (GMT -6)   
He has been diagnosed with a fissure, although the doctor never looked at his bum. Which i find a bit strange. He has been given codine for the pain and now the doctor wants him on Imuran. He is already taking Asacol and Humira.

I find that to be a bit unusual for a doctor to recommend two immune suppressants. That can't be good for your body. I am going to start a new thread regarding his meds.

pb4, my husband has tried rectal meds before and he didn't see any improvement, then again he didn't complete the course. He said he felt worse and was going the same amount or more to the bathroom. Then, his new doctor suggested rectal meds. too, but my husband never took it and then his doc. told him it's ok if u don't take it that he just suggested it as a trial a trial and error...because with this disease you just don't know what works.

My husband is in another country for three months, so the doctor there is the one that suggested the Imuran. I am just not sure if this is the right thing to do.

Thanks for listening. Therearemiracles, I hope you are feeling better. The pain sounds awful. Take care.

jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 4/25/2009 1:34 PM (GMT -6)   
If the pressure of sitting causes increased pain, the problem may be continuing rectal inflammation. The most effective way to treat this is with rectal medications. Since your husband declines those, stronger medications are indicated.

I hope the Imuran helps with his problem.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 
.


Jjc2007
Regular Member


Date Joined Apr 2007
Total Posts : 194
   Posted 4/25/2009 2:45 PM (GMT -6)   
I went through this two years ago and it was hell, as well as embarrassing.

I was SO SURE something really bad was wrong because in all my 47 years with this disease I had never had that kind of pain........after a BM.

Here is what worked for me (suggested by my doctor). I started taking Metamucil and Colace Stool softener daily. But three times a day, I soaked in the tub...
HOT water (as hot as I could stand) and while the water was running in, take plain white Ivory soap bar and roll it around in your hand so the water becomes grayish in color. Then soak in that soapy water for at least 20 minutes.......it especially helped to do it right after a painful BM. It took a few weeks but it stopped the pain. It was especially a relief if he can soak right after a BM......it seriously alleviated the pain.
diagnosed with UC in 1962
regualr meds:
Asulfadine (500mg tablets, 6 daily)
Folic Acid
Zantac as needed
open heart surgery in 2005 for removal of aortic root aneurysm

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