pred side effect or lo potassium

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lambkins
Veteran Member


Date Joined May 2008
Total Posts : 574
   Posted 4/22/2009 11:21 AM (GMT -6)   
Each time i reduce my pred dose something else seems to happen reduced 5 days ago and not only am i having night sweats but start sweating and get very out of breath when i do anything that takes a bit of effort (including housework)am left looking like a wet tomatoe also have started getting cramps in my legs along with the normal joint ache i am drinking loads to make up for sweating so going to toilet more went to dr today but saw a locum who said could be side effect maybe reducing pred to quick am going down 5mg a week keep a eye on things and come back if they dont improve just wondering if this has happened to anyone else its driving me crazy
  
  Diagnosed 22.5.08 with Lft sided U/C
  Meds Predfoam 20mg 2x day stopped started pentasa supps 1gm 26/6/08
 Asacol 800mg x2 twice daily
  Domperidone 10mg as needed
  co codamol 30/500 x2 when needed
  Asacol foam 2g nightly 19/3/09
  Prednisone 60mg 19/3/09 tappering after2wks


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 4/22/2009 2:40 PM (GMT -6)   
Prednisone gave me awful leg cramps. I was told that it was most likely due to an imbalance in electrolytes--magnesium, potassium, calcium, and sodium.

My potassium level was checked. It was normal, most likely because I eat bananas almost every day. So it must have been one of the others.

I have read that Prednisone depletes magnesium. It would be a bummer if this is indeed true, because magnesium is good for flares. I now eat spinach and sunflower butter. They both help.

Prednisone also depletes calcium. I take calcium supplements.

Prednisone increases sodium retention. I don't eat much salt.

Isn't Prednisone great?

The night sweats could be due to the inflammation. I got these too with my second flare.

The feeling out-of-breath could be due to loosing too much blood or just the body having to work harder to fight the disease. This happens to me too when I'm flaring or recovering from a flare.
Joy - 47 yrs and counting
Colitis Dec 06 (also have IBS)
Currently in remission
Don't expect your doctor to cure your health problems. Your health is your responsibility.

Lexapro (for stress), Probiotics and Vitamins (a whole bunch of them)
Avoid HFCS, foods high in fructose, artificial sweeteners
When flaring: eat anti-inflammatory foods, avoid pro-inflammatory foods
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)

Post Edited (subdued) : 4/22/2009 2:47:45 PM (GMT-6)


lambkins
Veteran Member


Date Joined May 2008
Total Posts : 574
   Posted 4/22/2009 3:43 PM (GMT -6)   
yes subdued pred is great i do eat bananas and am taking adcal d3 daily and alendronic acid weekly since starting pred it is so reasuring to know that other people know what you are going through it does help to know you are not alone
  
  Diagnosed 22.5.08 with Lft sided U/C
  Meds Predfoam 20mg 2x day stopped started pentasa supps 1gm 26/6/08
 Asacol 800mg x2 twice daily
  Domperidone 10mg as needed
  co codamol 30/500 x2 when needed
  Asacol foam 2g nightly 19/3/09
  Prednisone 60mg 19/3/09 tappering after2wks


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 4/22/2009 6:48 PM (GMT -6)   
You describe all the symptoms I get on prednisone, too. They are annoying but will subside when you taper off. I should think 5 per week is not too quick of a taper, and you are simply still experiencing side effects.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet. Probiotics (Ultimate Flora, 50 billion). 
Bad flare in March, seasonal? Back on prednisone 40mg, down to 10mg so far so good... Humira denied, started Remicade 4/12 and doing great~ 


princessb
Regular Member


Date Joined Jan 2009
Total Posts : 24
   Posted 4/22/2009 10:12 PM (GMT -6)   
Same thing here.  I am on 35mh of pred right now after a flare that required a hospital stay and get night sweats and leg cramping.  I actually am pretty jittery on the pred and can't seem to keep my legs still at night.  My labs are all pretty normal, except my thyroid is out of whack again which makes the sweats worse.  Fun stuff.  :)
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