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Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 4/22/2009 1:20 PM (GMT -6)   
I was feeling sooo great. I had no pain and was feeling better than I had in a long time. 3 weeks no diahrrea (cant spell that word) no blood. and was feeling normal. Now today and last night I've been having pain on left side and some on the right and some in the middle. I guess everywhere in my lower abdomen.
 
I did have some corn past, maybe it was that?
 
Im really trying hard with this raw food but it is had as I always lose weight really fast. Ive always been skinny even when I lived in colorado on my good old fashioned american diet. yumm I used to think.
 
Do you think it will pass? Im still trying to keep my meds down. I don't want my body to get used to them or  they might stop working.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- 1/2 X 500mg pentasa in the morrning= 250g pentasa (I reduced this to see how my diet will effect me) and 1 X250g Asacol every other evening
Diet- experimenting with raw foods diet. given up wheat and dairy, occasionly eat fish. Raw foods diet is 80% raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.


geminisunset
Regular Member


Date Joined Sep 2008
Total Posts : 153
   Posted 4/22/2009 1:26 PM (GMT -6)   
I hope it passes quickly for you. Nothing is worse than feeling great then suddenly taking a nose-dive. :( Hang in there!
GeminiSunset
Diagnosed w/IBS: Oct. 2006
Diagnosed w/UC: Jan. 2007 (proctitis), July 2008 (pancolitis)
Medications: Canasa (helped the first flare when it was just proctitis); Rowasa enemas (did not help as the following colonoscopy confirmed pancolitis); Lialda (2 pills in the morning, 2 pills in the evening, soon to be 2 pills in the morning only once I'm off steriods); Prednisone; Protonix (only took while on prednisone); Remicade infusions, started at 5mg/kg (Aug 2008), increased to 7.5mg/kg (March 2009), increased to 10mg/kg and increased to every 6 weeks (April 2009) - 7 infusions so far, next infusion on 5/28 continuing every 6 weeks; Zyrtec-D (for allergies); Toprol (a generic form, 25 mg, for a rapid heart rate)
Supplements: Women's One-a-day multi-vitamin; Super B-complex w/vitamin C, Iron supplements, Omega-3 Fish Oil (coated, not sure how much except one soft-gel daily), Aloe Vera supplement (two daily), Acidopholis, Probiotic Align
Diet: Spinach and Sunflower seed butter diet (starting 3/21/09) (will try again once I can eat normally again)
Current Status: April, 2009 - suffering another flare-up :(


quincy
Elite Member


Date Joined May 2003
Total Posts : 31005
   Posted 4/22/2009 1:27 PM (GMT -6)   
Maybe try and look at balance rather than doing an 80% raw diet?

I'm confused about your medications, however.....you're only taking a half pentasa?
And the 250 g should probably read mg.
I cannot see how that will help you at all....

Are you eating any base foods such as eggs, whole grain breads, etc?

You might want to consider to add a fibre supplement to help absorb the water from the diarrhea,,,in effect helping bulk the stool giving it substance.

q
*Heather* Status: mild flare enemas tapered to every 2nd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 4/22/2009 3:05 PM (GMT -6)   
Your body is not going to "get used to the drugs and then have them stop working". The drugs are designed to keep the inflammation down so that you can stay in remission and reduce your chances for colon cancer. To look at the drugs as something you build up a tolerance to is not correct or wise.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 4/22/2009 4:31 PM (GMT -6)   

I really don’t know if it is wise for me to look at my meds in the way I do. All I know is that I did once build up a tolerance to my inhaler, I used it so much it stopped working. I then ended up on prednisone for 2 weeks. I was smoking at the time, which I have now stopped, but it did stop working. I then felt that you can build a tolerance to all drugs, maybe I’m wrong. I’m also terrified of all the side effects, I keep thinking the less I take the less side effects I will get.  

 

Yea I am only taking ½ of the pentasa, the dose is 500mg and I reduced it by taking ½ which is 250mg, The asacol is also 250mg. Wouldn’t the pentasa also have an effect at 250mg.?-

 

 My doctors in London have not really given me good advice about these meds. They said I can reduce them if I don’t feel the need for them. I’ve never really had a serious flare until about 3 weeks ago. I never even had any pain from IBD, the only thing I ever had was a bit of mucus and blood when it first started. I thought I was just lucky but I think that it just gets worse as time goes on.

 

Still this diet has been interesting.  I used to wake up sneezing every morning and every evening or when I got out of the shower, that seems to have disappeared in the last 3 weeks. I also get less panicky, with the exception of today.

 

(sorry about any spelling errors, I have to type everything out on word befor I put it on the board, If I don't my writing is a mess, I'm a bit dyslexic)


Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication- 1/2 X 500mg pentasa in the morrning= 250g pentasa (I reduced this to see how my diet will effect me) and 1 X250g Asacol every other evening
Diet- experimenting with raw foods diet. given up wheat and dairy, occasionly eat fish. Raw foods diet is 80% raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 4/22/2009 11:54 PM (GMT -6)   
Could be some mild IBS...better than a UC flair : )

Feel better
Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4/2)
Corti Foam p.m. 3-4X per week
Curcummin and Probiotics/Rueteri.
Bowel Soother and IntestiNew, Fish Oil, Calcium/Mag/Zinc, Multi Vitamin and Melatonin
Eliminated Fructose and Corn Syrup
Could never tolerate artificial sweetners
I try to excersice/swim daily
Did I happen to mention I HATE this disease!!!
 
*Recent Changes In Blue*

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