thyroid medicines interactions with UC meds

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joy44
New Member


Date Joined Jun 2006
Total Posts : 17
   Posted 4/22/2009 8:28 PM (GMT -6)   
Hello all....Just found out I have thyroid cancer and will need surgery to remove some or all. Also may have to do Radiation Iodine pill. Wont know what is up untill after surgery.
 
 I understand most likely I will be on Synthroid medicine. Does anyone take thyroid meds or have gone thru surgery for thyroid removal, and has those meds had any adverse with your UC meds.
I take canasa, been on cortifoam 1 x a day for 2 weeks with little effect, culterelle probiotic, also trying fresh haldi, Adivan for stress....and will be starting salfasalazine soon. MY uc was limited then went throughout then back to limited, in the last 4 yrs ..dont know now with this flare if it is becoming  more throughout now, because its more just blood this time, so I worried it is traveling upward again.
 
 Did the Asacol and colazol , but was alergic to asacol and colazol didnt work. I took 6-mp for 2 yrs but it raised my liver enzymes so was taken off in December. I still flared off and on even taking the 6-mp, but not so bloody. 
 Currently in a bloody flare. Worried about starting salfasalazine so close to starting synthroid..and thyroid surgery, if I have problems I may not know which drug is doing it. Does anyone take thyroid meds along with uc meds and have any side effects, or interactions with the medicines?
Joyce
 
 
 

jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 4/22/2009 11:22 PM (GMT -6)   
I take Synthroid daily after being treated for autoimmune thyroid disease. I was on the Synthroid before I developed UC so can't give you personal experience, but from my research I'm not aware of any interactions.

Like you, I couldn't take Asacol and Colazal didn't provide adequate symptom relief. I've taken all of the 5-ASA's, Azathioprine, Prednisone, rectal steroids and Remicade while on Synthroid and haven't noticed any problems.

A word of warning: be sure you do take the Synthroid, because for those of us with minimal or no thyroid left, not taking our medication can be very serious and long-term it can be fatal.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 
.


joy44
New Member


Date Joined Jun 2006
Total Posts : 17
   Posted 4/23/2009 4:22 AM (GMT -6)   

Thank you Judy,

Its so good to know that someone is taking a thyroid med like synthroid and no interactions with the UC or UC meds.

I will most likey give myself another week with the cotifoam to see if I can get this bleeding to stop. Im hoping this flare is just made worse from all th stress in my life right now with a dying mother and then the news of the thyroid cancer. Its really amazing Idont have more health problems then this...my body starting getting all these things after I lost my 23yr old  daughter 4 yrs ago this month. I beleive the stress and sadness has brought all this on.  Before she got sick i was the healthest person on the face of the earth.

 If not I will give Sulfasalazine a try. Then the last resort will be the remicade. I have been putting remicade off for 2yrs now. Im so scared of having my thyroid out. Read so many negative things on that. BUt i will def. take my meds always. Never thought I would have to be on so many meds at 54yrs old.

 Im experiencing no  problems with my thyroid it is functioning fine, but they have to take it out due to the cancer...I'm still trying to wrap my mind around that one...it just sucks. Im so worried I will gain alot of weight and never feel good due to not being able to get my levels right, with the synthroid or other thyroid meds. I hear this all the time, that people never feel good and their engery levels are low.

How do you feel on the synthroid and have you had weight or engery or other negative issues with this. I hope maybe others that are on any thyroid meds will chime in as well...

Im a nervous reck ( or should i say my colon is) so you have no idea how much your post calms some.

God Bless,

Joyce

 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 4/23/2009 6:46 AM (GMT -6)   
It may take a bit of tinkering to get the levels just right, but you should feel just as well on Synthroid as you do with your natural hormone. Your doctor will do blood tests to monitor your level and adjust the medication accordingly. Initially I was getting quarterly tests, then every six months and now I'm down to yearly unless I have an issue.

Remember that Synthroid doesn't affect you right away, so with any change in your dose it will take four to six weeks to judge the effects. Millions of people take Synthroid every day and live normal lives with no thyroid symptoms.

I'm really sorry for the losses you have suffered in recent years. I hope you're soon feeling better, both mentally and physically.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 
.


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 4/23/2009 8:48 AM (GMT -6)   
Joy-
First of all I am so sorry you have to go through this.
I had Thyroid Cancer 5 years ago and had a total thyroidectomy and about 40 lymph nodes removed- about 20 were cancerous. After a few weeks I had the radioactive iodine. I had to spend 3 days in the hospital for that in an isolated room that was covered in plastic. THat was really cool. Everything was covered in plastic- the phone, the tv. I had a private room because I couldn't be around anyone. Sounds weird, but it didn't hurt. You just swallow a pill and then have to drink lots of water and suck on lemons. :)))

ANyway- I take synthroid and took all of the standard UC medicines and never had any problems with interactions. My thyroid or lack thereof is the least of my problems. As you probably know, thyroid cancer is one of the most treatable cancers- still a bit scary though- But honestly my UC has caused WAY more problems than the thyroid cancer ever did.

I wish you the best. If you have any more questions about the surgery, let me know.
Jackie, 43
Pancolitis, DX October 06

Lexapro, Synthroid, Protonix,
Tapering prednisone down to 10 mg

Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps


runnermv
New Member


Date Joined Apr 2009
Total Posts : 4
   Posted 4/23/2009 9:04 AM (GMT -6)   
Also on synthroid for about 8 years and UC meds for 5 years...... no known problems with interaction

christianbcmom
Regular Member


Date Joined Apr 2009
Total Posts : 69
   Posted 4/23/2009 7:14 PM (GMT -6)   
Hi there, I too like you all have thyroid issues as well as UC among other autoimmune issues.  My thyroid has been fine ever since I was about 10 or so after having hyperthyroid as a little girl and spending lots of visits at All Children's Hospital in Tampa, FL; however, after giving birth to my daughter, I started having problems again with my thyroid.  It was actually "hypo" after her. Now they're just trying to get it regulated.  I guess I'm on the scary end of the spectrum as my body is totally wigging out right now. I have chronic hives now, and they're not going away. It's awful!!!! I don't know if it's because of the medication, my thyroid being all jacked up, or what...but on a positive note though...my UC is never been better because of all the prednisone (which I absolutely can't stand).  I also take sulfasalizine which works great for me when I'm having a flare up.  Just drink lots of water with it!!! I hope you have better luck than I in the department of thyroid stuff.  It was great though at first, I was on the synthroid for about 2 months, was feeling fantastic, lots of energy, and life was good! So I pray that it works just as well for you! :-) Sometimes I wish they could just remove my thyroid, but we'll see...
 
 

Alaina - age 26
Vitiligo
Hyperthyroidism
Ulcerative Colitis-- Diagnosed when I was 16.
Chronic Hives (my newest endeavor) :)
 
 
Current Meds:
Prednisone, Xyzal, Atarax, Pepcid, Doxepin, Levothyroxine, and Ativan if needed.
 
"When life throws you lemons, make lemonade!!"
 


joy44
New Member


Date Joined Jun 2006
Total Posts : 17
   Posted 4/24/2009 1:30 PM (GMT -6)   
Thank you all for giving me some information about the thyroid and salfasalazine. SO here I go with a new med. Im going to give it a try today. I start off with 1 pills 3 times a day. Im always nervous in the beginning because I hope i dont have any side effects. I figure I should start this before the thyroid surgery and other meds  in June, so Im not taking all new meds all at the same time.
 
Alaina,
so sorry to hear your still fighting your levels. I hope it gets better soon. Thats is the part Im so worried about not being able to get regulated. I cant stand feeling out of sorts or on edge.
 
Do you just take the salfasalazine when your in a flare or is it a  med you take everyday...like we do with the 6-mp. I was not aware you could go on and off of it? Anyone do that, and what are the dosages your all on.
 
Thanks Joy

saposs
Regular Member


Date Joined Nov 2008
Total Posts : 339
   Posted 4/24/2009 3:38 PM (GMT -6)   
i m also taking synthyroid with my UC medicine canasa....have had no interactions till date. my problems also started with a loss in our family! I was perfectly healthy before that..i m also a very sensitive and emotional person!
My mind is just not under my control - i had an exam few days back(i was taking exam after 10 years) and a week before exam i stopped sleeping-i was so nervous- i took sleep aids - then i thought i should fight these thoughts which dnt let me sleep, otherwise all my hard work will be lost-i did it and was able to sleep without sleep aids just 2 days prior my exam day and scored well :-) ......i have a HOPE somewhere that if i m able to control my mind i will be healthy again:-) ... i tell u all this as i find u & i have somewhat similar reason for these diseases.
Wish u luck :-)
Right now -FLARING (after my Rubella vaccination)
Diagnosed in Jan'2009: Canasa suppositories 1000 nightly...doubled during flare
Symptoms: Mucus, blood, constipated (not always), Lots Gas & No D!
Also gifted with Hypothyroid & have calicum deficiency family history!
Meeting with Doc next month - not yet on oral medication - Doc wants to try just Canasa first!
Also started Probiotic from 23 Mar & fresh Turmeric root from 25 March'09


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 4/24/2009 6:02 PM (GMT -6)   
Sulfasalazine is a maintenance drug, meaning you take it all the time. If you take it faithfully, it should reduce the number and severity of flares you experience. Some people do decide to stop their medications when they reach remission, but this is not the recommended approach.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 
.

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