Is your pain pretty consistent in terms of location, or does it tend to migrate?
I am just curious. For the first year and a half of my disease, I had zero joint or muscle pain. Even after hospitalization last year, I felt fine in this regard. When I tapered off of the pred last summer, that is when it started (I was put on pred for the first time in the hospital and was on it for about 4 months total). It has waxed and waned since then, but the only consistent thing about it is that it never fully goes away.
Sometimes my knees will hurt, then it will move to my elbow, then my fingers or even just one finger. Sometimes my ankle will hurt. Same thing with my localized swelling issues-for a few days a toe will swell and cause me a lot of pain, then it will move to my hand or my whole foot, or my elbow, once it was my jaw, etc. Muscle aches are the same way these days too-the muscle aches started about a month ago, but they migrate as well. I take tylenol for the pain, but it doesn't make much of a dent.
Coupled with all of the fatigue I am developing now (that also started about a month ago), and I am a zombie these days!
Anyway, I know a lot of people suffer with joint pains, so I am curious if yours moves around like mine does, or do you tend to have pain in the same areas?
33 years old, stay at home mom of 2 girls, ages 3.5 and 2.5
Diagnosed in 2007
Biweekly injections for Humira clinical trial-going well so far!!
Canasa suppositories-1000mg nightly for recent flare