Can you please tell me

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Regular Member

Date Joined Jan 2008
Total Posts : 362
   Posted 4/23/2009 11:09 AM (GMT -6)   
what finally took the urgency away for you?
That is the only thing keeping me housebound.  I don't have D often, and only go about 2- 3 times a day at most.  Sometimes it's loose, sometimes not.  Haven't had actual D in awhile.
I have bleeding, but very very minimal. (Like a bit on the toilet paper)
But the urgency is completely changing my life as when it hits I have maybe 60 seconds(sometimes less,) to get to a bathroom.  Even at a mall you can't make it that fast usually.
He keeps pushing Pred on  me which I have so far refused, as I thought pred was only for extreme needs, like going 10+ more times a day and heavy bleeding, and weight loss.  I am actually 20 pounds overweight, so you see that is not a problem.
But that darn urgency has made us cancel all our trips(many driving), and rather than try to work around that I would like to know from you to please tell me what finally stopped the urgency for you.
I just don't know what to ask the doc to try anymore.
I'm so frustrated.

(Oh I do have lomotil and Bentyl, and it doesn't always work for me.)

Ulcerative proctitis. On Asacol 3 3x a day, and Meslamine enemas nightly.
 Now on Hydrocortisone suppositories for 2 weeks.
Urgency is still my biggest problem.  rarely have D, but extreme gas and urgency at any given time.

Veteran Member

Date Joined Aug 2007
Total Posts : 2204
   Posted 4/23/2009 12:31 PM (GMT -6)   
There's information in the book Listen to Your Gut about "training" your bowels that I found helpful back in the days I had urgency issues. But ultimately, overall healing of the gut and improved digestion take care of the problem. If you're not already doing so, I'd suggest probiotics, fiber, l-glutamine, aloe and fish oil caps as helpful supplements for healing and rebalancing gut ecology.
Diagnosed with ulcerative colitis spring 1999.
Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips.

Veteran Member

Date Joined Dec 2008
Total Posts : 3231
   Posted 4/23/2009 2:23 PM (GMT -6)   
Urgency is the last symptom to go away for me when I'm recovering from a flare.

Colon tissue contains villi, lymph, muscle, nerves, and vessels. That's why the scariest thing for me about Colitis is to see tissue in the toilet after going to the bathroom. It's easy to lose colon tissue during a flare. I think the reason one can have urgency issues even after recovering from a flare is that the colon has been damaged and needs time to heal.
Joy - 47 yrs and counting
Colitis Dec 06 (also have IBS)
Currently in remission
Don't expect your doctor to cure your health problems. Your health is your responsibility.

Lexapro (for stress), Probiotics and Vitamins (a whole bunch of them)
Avoid HFCS, foods high in fructose, artificial sweeteners
When flaring: eat anti-inflammatory foods, avoid pro-inflammatory foods
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)

Post Edited (subdued) : 4/23/2009 1:27:38 PM (GMT-6)

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 4/23/2009 2:35 PM (GMT -6)   
Just to clarify, it's mucus that's seen in the toilet and excess mucus is common with both IBD and IBS (everyone does have some mucus mixed with their stools but with IBD or IBS excess mucus tends to happen usually due to BM fequency)...I tried kegal exercises in the hopes that it would give me more strength to control (hold in) my stool but that just ended up giving me severe vaginal and anal cramping so I stopped doing them, plus I don't even know if it was helping with the control anyway.

Even with feeling better my main issues are still frequency and urgency, 2 things I don't think will ever go away completely for me and it's very frustrating.

My bum is broken....there's a big crack down the middle of it! LOL :)

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