New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Kevster
Regular Member


Date Joined Jul 2005
Total Posts : 86
   Posted 4/23/2009 7:25 PM (GMT -6)   
 
Hi,
 
Has anyone ever been doagnosed with Osteopaenia (in the US: Osteopenia) before?  I have it, and I'm slightly worried about my health in general.  I think that I'm running myself into the ground and my gastroenterologist has ordered a colonoscopy in a few weeks for me.  i've had a flare up constantly for months.  I'm only 26 for God's sake... ...
Age 26
-----------
Diagnosed at age 22
-----------
Symptoms since age 20
-----------
Pancolitis


cagio1
Regular Member


Date Joined Mar 2007
Total Posts : 56
   Posted 4/23/2009 9:05 PM (GMT -6)   

Hi

Yes.. I was also diagnosed with osteopenia at the age of 35.  The cause was said to be my use of Prednisone.  Some people, my GI said, have a more severe reaction than others (ie. the osteopenia)  I am not sure if this was the cause but my bone scan showed the start of it.  I have been on Boniva since.

Best of Luck


DX with (pan colitis) UC 9/02 while pregnant
Boniva Calcium multivitamin
Iron (when issues appear)
Librax, 3x day
Mild bronchial asthma too
OFF PRED !!!
6MP 50mg started beginning of July 08


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 4/23/2009 9:30 PM (GMT -6)   
I have Osteopenia as well - from pred use. My doctors have said - increase your calcium intake and do weight bearing exercise. Osteopenia is reversible.
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  yo-yoing between remission and a mild flare
Lialda 4 per day,  Azathioprine 50mg, Aciphex, Effexor XR, Forvia, Fibercon, and Culturelle
Remicade: 1st infusion 06/17/08:  Next infusion: April 1 after the tooth infection is gone :(
Last Prednisone dose:  7/15/08
 
Co-Moderator UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 4/23/2009 11:16 PM (GMT -6)   
Osteopenia is a common side effect from steroid use. In addition to calcium and exercise, be sure you are getting plenty of vitamin D. I take 600 mg. of calcium with 400 IU of vitamin D daily, plus a 1000 IU vitamin D supplement. This is far above the recommendations you may see in various places, however recent findings have shown that many people are deficient and the recommendation is being raised. Your doctor can do a vitamin D level on you to check this. D is needed in order for your body to use the calcium.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 
.


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 4/24/2009 9:42 AM (GMT -6)   

Yes, I was diagnosed with osteopenia caused by high doses of prednisone when I was first diagnosed and was very ill. I was already at risk, being a small-boned, white female.

Since that time, I have successfully reversed my bone loss through healing the gut, improved nutrition, cardio and weight training. I did it without using osteoporosis drugs or even calcium supplements, so take heart. It is within your control to improve your bone density... especially since you've become aware of the problem before it becomes full blown osteoporosis.


Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips.
 
 


DocGonzo
Regular Member


Date Joined Dec 2006
Total Posts : 151
   Posted 4/24/2009 1:08 PM (GMT -6)   
Osteopenia IS reversible, but only up to a point. Luckily for you, you're still relatively young and your bones haven't achieved their maximum density yet, this usually happens in mid-thirties. So, what you need to do is increase your calcium intake, spend more time in the sun (vitamin D is created this way, and is essential for calcium metabolism), exercise with weights regularly (stress strengthens bones), and MOST IMPORTANTLY, stop using steroids. Yeah, that could be a problem, I know, but it's absolutely necessary.

Kevster
Regular Member


Date Joined Jul 2005
Total Posts : 86
   Posted 4/24/2009 4:17 PM (GMT -6)   
 
Hi guys,
 
Your replies me a lot to me - I thank you very much (Go rabh míle maith agat (in Irish)).  In my case, I think that it was due to prednisolone usage too.  I have to admit too that I went against my doctor's advice and took it (prednisolone) longer than I was supposed to.  I have been taking Calcium supplements regularly for a long time too, so I don't know why I am this way.  My diet is generally poor though - i am bulimic too.
 
Kevin
Age 26
-----------
Diagnosed at age 22
-----------
Symptoms since age 20
-----------
Pancolitis


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 4/25/2009 12:23 PM (GMT -6)   
     I had osteopenia ten years ago before even being diagnosed with UC.  After the prednisone use I now have osteoporosis.  I can't take Fosamax or Actonel, they give me terrible heartburn.  I don't need ulcerations in my esophagus, I suffer enough with them in my rectum.  I do take calcium plus vitamin D.  My doctor ran a Vitamin D level count on me a few months back and it is fine.  I already took a flop four years ago and suffered a compressed fracture of the lumbar spine.  Quite painful at the time but ok now.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


Liza D
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 4/25/2009 3:22 PM (GMT -6)   
Join the club... Have you been on Prednisone? It really is the drug we love to hate! I used to be the only thing that would stop my flares but now, like all my other meds, it doesn't do much even at the highest dose.

I haven't had any problems with my Osteopenia. But I have stopped snow boarding and worry about if I fall (again!). The good thing is that it is the start of bone loss. I started taking a calcium supplement and haven't noticed any problems... I also haven't had my bones check again so I couldn't tell you if it worked or not.

Kevster
Regular Member


Date Joined Jul 2005
Total Posts : 86
   Posted 4/25/2009 4:06 PM (GMT -6)   
 
Yeh, it was prednisolone.  Wait, is prednisone the same as prednisolone?  It's the steroid with the trade-name:  Deltacortril enteric.  I was always aware of it's ability to increase the rate of Calcium loss from the bones, but I didn't think that it'd affect me considering how people always commented on how good/defined my bone structure is.  I guess I have really compromised that now.
 
Age 26
-----------
Diagnosed at age 22
-----------
Symptoms since age 20
-----------
Pancolitis


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4538
   Posted 4/25/2009 10:01 PM (GMT -6)   
Hi Kevin,

Sorry to hear about your recent diagnosis of osteopenia. I have osteopenia, too. I've never been on pred, but I have a very small frame so I think my bones might be naturally less dense compared to average. My doctor put me on a calcium & vit. D supplement and I do weight-bearing exercises to try to gain some bone mass or at least decrease further loss at this point.

Are you on any meds for your UC right now? I'm sorry to hear you're having a rough time right now. It sucks having this disease and being young. Well, I'm sure it would suck at any point...

p.s. - I think prednisone (US) is the same as prednisolone.
25 years old; diagnosed March 2007;
Currently: persistant rectal inflammation
Asacol, 4 tabs, 3xday; Rowasa nightly; Viactiv; Metamucil wafers; multivitamin; Primadophilus Reuteri; sublingual allergy drops; Ortho Tri-Cyclen


Kevster
Regular Member


Date Joined Jul 2005
Total Posts : 86
   Posted 4/26/2009 4:09 PM (GMT -6)   

 

I'm on Olsalazine (anti-inflammatory) and Calcium tablets - That's all.  The Calcium tablets go by the trade name of Ideos, and the anti-inflammatories are called Dipentum.  i still have a stash of steroids in my 'cabinet' from the last time I used them.  Do you typically hang onto medication that you don't need?  I have anti-depressants there too, but I've been off them for 6 months now.

 

Kevin


Age 26
-----------
Diagnosed at age 22
-----------
Symptoms since age 20
-----------
Pancolitis


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4538
   Posted 4/26/2009 5:12 PM (GMT -6)   
It depends what kind of medication it is. I always hang onto my UC meds (like Canasa if I've tapered off it) in case I'll need them again. I guess I would probably hang onto the steroids if I thought I might need them again in the future. Check the expiration dates though and throw out any that are passed the date. Hopefully, after your colonoscopy, your doctor can give you some options for other meds/dosages so that you can head towards remission.
25 years old; diagnosed March 2007;
Currently: persistant rectal inflammation
Asacol, 4 tabs, 3xday; Rowasa nightly; Viactiv; Metamucil wafers; multivitamin; Primadophilus Reuteri; sublingual allergy drops; Ortho Tri-Cyclen


Kevster
Regular Member


Date Joined Jul 2005
Total Posts : 86
   Posted 4/26/2009 5:49 PM (GMT -6)   
 
Yeh, I have the colonoscopy to look forward to now after my exams.  When my doctor mentioned it, I said under my breath: "...a thrilling encounter...", regarding the colonoscopy.  She heard me and laughed.  rolleyes
Age 26
-----------
Diagnosed at age 22
-----------
Symptoms since age 20
-----------
Pancolitis


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 4/27/2009 9:09 AM (GMT -6)   
Bulimia can also cause bone loss. Are you being treated for it and/or receiving therapy?
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips.
 
 


Kevster
Regular Member


Date Joined Jul 2005
Total Posts : 86
   Posted 4/27/2009 3:55 PM (GMT -6)   
 
Yep, I received quite a few sessions of CBT for my OCD and bulimia.  I also have Asperger's Syndrome, which does'nt make things easy.  I generally regard myself as ridden with bad genes; but you guys have been the nicest here.  Honestly, I didn't expect this response.
 
Take care,
Kevin
Age 26
-----------
Diagnosed at age 22
-----------
Symptoms since age 20
-----------
Pancolitis


Mackster
Veteran Member


Date Joined May 2007
Total Posts : 768
   Posted 4/27/2009 5:57 PM (GMT -6)   
It's because we've all got the tee-shirt, Kevster cool

Kevster
Regular Member


Date Joined Jul 2005
Total Posts : 86
   Posted 4/27/2009 6:58 PM (GMT -6)   
Good point!  You might be wondering why I've only got 80+ posts and have been a member since 2005.  Well, the answer is that I'm a moderator on a different forum and have amassed 13000+ posts there.  It's a psychological help website.  Don't worry, I'm not here to advertise it!
 
Thanks you guys,
Kevin
 
Age 26
-----------
Diagnosed at age 22
-----------
Symptoms since age 20
-----------
Pancolitis

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, September 23, 2018 5:21 AM (GMT -6)
There are a total of 3,005,827 posts in 329,281 threads.
View Active Threads


Who's Online
This forum has 161805 registered members. Please welcome our newest member, fdgdfhdff8804.
204 Guest(s), 4 Registered Member(s) are currently online.  Details
auzzie, Darla, halbert, fdgdfhdff8804