Very new to this-just diagnosed

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TxGirl
New Member


Date Joined Apr 2009
Total Posts : 4
   Posted 4/23/2009 8:01 PM (GMT -6)   
I was actually diagnosed a year ago but my general practice doctor didn't tell me anything about the disease, I thought it was gone.  Flare up started two weeks ago and had a colonoscopy yesterday to confirm UC.  Doctor wants me on clear liquid diet until the flare up calms down but I feel like my body cannot handle eating so little.  What foods have you been able to eat while dealing w/ a flare up?  Thanks, any advice is appreciated, this is terrible!
 
 

JingleBell
Regular Member


Date Joined Oct 2008
Total Posts : 80
   Posted 4/23/2009 8:34 PM (GMT -6)   
Sorry for the prognosis. I personally follow a gluten-free, low sugar, low fat diet. Doesn't leave much else but boiled chicken and rice did wonders for me for years. Good luck!
 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 4/23/2009 10:12 PM (GMT -6)   
TxGirl, a flare can last for weeks or even months, and I'm sure your doctor wouldn't want you on a clear liquid diet for that long. Many of us do well using a low residue diet when flaring. You can find information at this link:
 
 
Do be sure you drink plenty of fluids because it's very easy to become dehydrated if you're having diarrhea.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 
.


TxGirl
New Member


Date Joined Apr 2009
Total Posts : 4
   Posted 4/24/2009 1:49 PM (GMT -6)   

Judilyn- you flared for 5 years, how is that possible?  How do you know when the flare up is in remission?    Maybe I've just been lucky, this has been going on for almost two weeks and just started drugs yesterday.  Doc has me on Asacol 2 twice daily but I'm already feeling better now than I was a last week.  Swear I went to the bathroom 40 times in one day last week and the cramping was debilitating.  Haven't had but a few BM's daily now (not really eating either though) and the cramps are still lingering but not nearly as bad.  Would love to hear your history, I don't feel like my doctor has been very infomative and the more info I can get the better. 

Thanks!


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 4/24/2009 5:54 PM (GMT -6)   
LOL, I was pretty sure I was flaring because I was going 20-25 times a day, bleeding, having pain, etc. When you're in remission, you will have minimal to no signs of UC. No bleeding, diarrhea, pain.

Most people are able to achieve remission within a few weeks with 5-ASA medications. Unfortunately, they didn't really help me a lot. Nor did the other drugs they gave me. Fortunately, I responded very well to Remicade and am now living a normal life.

I'm glad to hear you're in the majority for whom Asacol is effective!

I'll be happy to answer any questions you have.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 
.


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 4/24/2009 7:31 PM (GMT -6)   
I think I flared from 1997-2000, until I finally found a doc to put me into a remission for awhile. There are just alot of different levels to a flare up.
Proctitis DX 1999, Pancolitis DX 2008
Lialda 1 day
Immuran
Golimumab study (100mg every 4 weeks)
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD3+Ca/SuperDHA

Post Edited (Dr-A) : 4/24/2009 8:04:09 PM (GMT-6)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 4/25/2009 12:35 AM (GMT -6)   
With my crohn's colitis I've been flaring to some degree (for the majority of the time being severe and then to moderate and severe and moderate) the entire 18 yrs I've had this DD. Flares can last anywhere from a day to yrs same with remissions (according to 4 different GI's I've seen over the yrs). And it's true, I've had the odd normal day once or twice in these 18 yrs.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4192
   Posted 4/25/2009 9:56 AM (GMT -6)   
Sorry to hear you have UC, but I'm glad the meds are working for you. You're on a very low dose of Asacol. Usually, the minimum is 6/day. I take 12/day. My doctors have never put me on a clear liquid diet (except when prepping for a colonoscopy). When I'm flaring badly, I eat easily digestible foods like peanut butter, eggs, white bread, Cheerios, bananas, rice and applesauce. I limit caffeine and avoid sweets and drink lots of water when I'm not feeling well, too.
25 years old; diagnosed March 2007;
Currently: persistant rectal inflammation
Asacol, 4 tabs, 3xday; Rowasa nightly; Viactiv; Metamucil wafers; multivitamin; Primadophilus Reuteri; sublingual allergy drops; Ortho Tri-Cyclen


Sweetie31105
Veteran Member


Date Joined Aug 2008
Total Posts : 903
   Posted 4/25/2009 12:57 PM (GMT -6)   
When I was really sick and flared, I was put on a no food diet, and was just on Ensure drinks for a bit. Then went on regular food a week later.
27 year old, Married, Female.
Diagnosed with UC since March 2007

Taking Humira and Imuran since May 2007 (Currently in remission since May 2007)
Taken off Imuran 1/15/09
Only taking Humira.

Can't take Asacol, Allergic to Remicade


Jjc2007
Regular Member


Date Joined Apr 2007
Total Posts : 194
   Posted 4/25/2009 1:39 PM (GMT -6)   
What worked/works for me when I am at my worst is rice...plain, white rice with some margarine/butter and salt, and baked white fish.......
diagnosed with UC in 1962
regualr meds:
Asulfadine (500mg tablets, 6 daily)
Folic Acid
Zantac as needed
open heart surgery in 2005 for removal of aortic root aneurysm


Any1
New Member


Date Joined Apr 2009
Total Posts : 8
   Posted 4/25/2009 5:12 PM (GMT -6)   
hello - clear liquid diets are usually only used just before colonoscopy. 'Resting' the colon doesn't seem to have any effect on UC, and most advice is to eat as healthily as you can. Everyone has different foods which 'work' for them, and you need to experriment and find what works for you. For 'gentle' foods try bananas, which have lots of soluble fibre so they make you feel full without over-working your gut. They're high in vitamins and potassium, too. I find porridge a good 'comfort food' for breakfast. Oatcakes are good for snacking. 'Fisherman's Pie' made with white fish topped with mashed potatoe is healthy, filling & gentle on your gut. Mashed potatoe can be made more interesting by adding peeled mashed parsnips, horseradish sauce or mayonaise. If you can tolerate wheat try macaronni cheese. Try eating little ammounts more often rather than big meals. On days when I can face nothing else I use Slippery Elm Food - I wonder if anyone else uses this - mixed up with milk, it's a natural anti-inflamitant and one mug full keeps hunger away for 4 hours or more. Best of luck.
 dx UC 2007 (whilst pregnant aged 42!!!)
Asacol
Predfoam
Slippery Elm Bark


Liza D
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 4/25/2009 8:01 PM (GMT -6)   
I almost always default to a clear liquid diet if I see a flare coming on. When I need more energy I love the Ensure drinks but after so many rounds of CLD.... you get used to it and you don't feel like eating anyway. My doc also gave me advice to look at the fiber amounts on any packaged food- lower is better so like 2% fiber or less is good... Small meals... lots of liquids.

I hope the Asacol works out for you! Good luck. :)
UC (Pancolitis... 90%!) December 2001
Arthritis (2003)
Upper GI Ulcer (2006)
Osteopenia (2008)
Depression/Anxiety (2002)

Meds:Bump up every couple years... You name it, I've used it! Sulfasalizine, Asacol, Rowasas, Pentasa,
Remicade, 6mps... And now it looks like the once daily Lialda taken twice a day isn't enough...
Here comes Humera.

Soon to be mom- hopefully! As long as this flare dosen't take me out...


Any1
New Member


Date Joined Apr 2009
Total Posts : 8
   Posted 4/26/2009 5:51 AM (GMT -6)   
Liza D - I've heard of Esure, but not tried it yet. Does it have that name in UK? Good luck.

 dx UC 2007 (whilst pregnant aged 42!!!)
Asacol
Predfoam
Slippery Elm Bark


TxGirl
New Member


Date Joined Apr 2009
Total Posts : 4
   Posted 4/26/2009 6:24 PM (GMT -6)   
I have to say I am shocked at how many people have to deal with this disease, I had never even heard of it till now.  Thank you everyone for your help and support, it's nice to know there are people I can talk to.  I will continue to update, today's been kinda rough for some reason but tomorrow is a new day.  Thanks again!

Any1
New Member


Date Joined Apr 2009
Total Posts : 8
   Posted 4/27/2009 2:44 AM (GMT -6)   
TX Girl - I'd never heard of UC either until I had it. Spent months battling with it during pregnancy, thinking it was 'pregnancy-related' - if your head drops off whilst pregnant you're told it's 'hormones'!  I'm still trying to work out ways to tell people about it without using the S**t word every sentence. It's a literal pain in the arse! Glad you're starting to feel a bit better. keep smiling.

 dx UC 2007 (whilst pregnant aged 42!!!)
Asacol
Predfoam
Slippery Elm Bark


Liza D
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 4/27/2009 9:58 AM (GMT -6)   
Hey Any 1,
There are all kinds of generic names. Any nutritional supplement drink will do. Once my husband even got me diet drinks by mistake... it helped curb craving solid foods and still gave me some good vitamins.

Nothing like an ice cold nutrition drink! :)
UC (Pancolitis... 90%!) December 2001
Arthritis (2003)
Upper GI Ulcer (2006)
Osteopenia (2008)
Depression/Anxiety (2002)

Meds:Bump up every couple years... You name it, I've used it! Sulfasalizine, Asacol, Rowasas, Pentasa,
Remicade, 6mps... And now it looks like the once daily Lialda taken twice a day isn't enough...
Here comes Humera.

Soon to be mom- hopefully! As long as this flare dosen't take me out...

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