colonoscopy results

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lovemyboys09
Regular Member


Date Joined Apr 2009
Total Posts : 249
   Posted 4/23/2009 9:13 PM (GMT -6)   
I had my colonoscopy a few hours ago and the results are different then what I thought.   I had my first colonoscopy in oct 07 and was told crohn's. Then I switched drs after not feeling confident in the one I was going to. That doctor that it was more of an ulcerative colitis. After giving me medications for 7 weeks and they were clearing up any symptoms he decided i needed another colonoscopy. So I had one today and the diagnosis is Severe Ulcerative Proctitus. The findings said:
 
Segmental severe inflammation characterized by congestion (edema), erythema, friability, granularity, and shallow ulcerations.
 
So my question to you all is ulcerative proctitis the same thing as ulcerative colitis??
 
When he came to talk to me after the procedure I wasn't very with it at all....so hes supposed to call me tommorrow and talk to me about what he saw and everything. My mom was my driver and she said that he said we needed to get this under control fast because it was such severe inflammation.
 
did anyone else have this at all??
 
Thanks!!!
 
Kim
Diagnosed w/crohns in October 07
Taken off meds January 08 because of pregnacy
Back to gastro Dr. January 09 (new dr.)
Diagnosed w/ UC instead; told should have never gotten off meds
taking Asacol and Canasa
Flaring still as of 04/09
 


aned
Regular Member


Date Joined Mar 2009
Total Posts : 105
   Posted 4/23/2009 10:23 PM (GMT -6)   
I am sure someone else will be along with more wisdom than I have because I am fairly new to this as well. My colonoscopy results said moderate proctitis and moderate colitis extending at least 35 cm. My understanding that the best prognosis is for proctitis because it has the least chance of spreading up the colon, but I also think that virtually all UC starts there?? Someone correct me if I am wrong. It is good that your doctor is wanting to be aggressive in getting it under control. I hope you feel better soon.
37 y/o female
non-specific colitis dx. 2007
ulcerative colits dx. 2009
diverticular disease dx. 2009
Asacol-failed
Entocort-failed
Colazal-current, but not working yet


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 4/23/2009 10:55 PM (GMT -6)   
UC and UP differ only in the location. Proctitis is in the rectum only. Colitis is in part or all of the colon. Proctitis can become colitis in some people, as flares always start in the rectum - it's the first to get inflamed and the last to heal.

For a diagnosis of proctitis, you definitely should be on rectal medication; if it isn't clearing up you may want to ask your doctor about Rowasa enemas as they may be more effective in some than Canasa.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 
.


thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 4/23/2009 11:06 PM (GMT -6)   
Yes, proctitis is UC it is located in the rectum area...some people do experince it spreading further up the colon...what type of medications were you taking before your scope?
Dx 2006 right after the birth of my daughter
Lialda now down to 1 pill a day!
Canasa on and off as needed
Probiotics Daily
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 4/23/2009 11:13 PM (GMT -6)   
Proctitis can also be from crohn's when crohn's is active in the rectom...crohn's can also affect the colon (crohn's colitis).

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


lovemyboys09
Regular Member


Date Joined Apr 2009
Total Posts : 249
   Posted 4/23/2009 11:23 PM (GMT -6)   
thatfield, Right now I am taking 12 pills of asacol a day and proctofoam. He is talking about putting me on azathioprine it says on the after sheet of the colonoscopy. I was totally out of it though so I don't know what he is exactly thinking about doing as far as treatment goes.

Anybody suggest anything else I could ask to try before i would go on azathioprine which is a immunosuppresant drug I believe. I work at a dr office and have 2 small kids so I figure it might be hard to be on one like that.
Diagnosed w/crohns in October 07
Taken off meds January 08 because of pregnacy
Back to gastro Dr. January 09 (new dr.)
Diagnosed w/ UC instead; told should have never gotten off meds
taking Asacol and Canasa
Flaring still as of 04/09
 


thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 4/23/2009 11:52 PM (GMT -6)   
I had to take pred to finally get the bad flares under control. I was on pred June-Sept 08 and it did stop a really long and bad flare. I am now on Lialda 3-4 pills a day and Canasa at night. I have had two smaller flares since Sept. but neither one was anything like the other two long flares I had prior to the pred. treatment. I think that for me the Lialda and Canasa are working to control the disease for the most part but neither one got me out of the more serious flares. I really feel very good most days and see no sideffects of the medication. If you are not in major flare right now you might ask your doctor about Lialda. You only have to take it once a day...
Dx 2006 right after the birth of my daughter
Lialda now down to 1 pill a day!
Canasa on and off as needed
Probiotics Daily
 


lovemyboys09
Regular Member


Date Joined Apr 2009
Total Posts : 249
   Posted 4/24/2009 12:20 AM (GMT -6)   
I was on canasa suppositories and they did nothing for me at all. I had also been on pentasa and that didnt work for me. I was originally supposed to be on Lialda but my insurance carrier won't cover the drug and it would be over $400 a month so i take asacol instead since my insurance picks up the price for that one
Diagnosed w/crohns in October 07
Taken off all meds January 08 because of pregnacy
Back to gastro Dr. January 09 (new dr.)
Diagnosed w/ UC instead; told should have never gotten off meds
4/23 Colonoscopy showing severe ulcerative proctitis
taking Asacol (6 pills x 2/day) and proctofoam maybe switching to azathioprine
Flaring still as of 04/09
 

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