New here and am totally puzzled..
I'm diagnised with UC in Mar 2006 and its been 3 years of history.
I was asked to start with Asacol for 3 - 3times a day. It worked for some days and when i'm doing better my GI asked me to stop. I stopped
and i started flaring. He asked me to increase to 4 - 4 times a day. This worked upto 2007 April. But somewhere i feel that i was not cured
fully. I moved to a new place and changed my GI. He verified my colonoscopy results and asked me to move to Lialda (4 a day). I was doing
good for few days like 2 months and started flaring again. Then my GI asked me to add Canasa once every night. I did that and did better for
some months. Later i was forced to move to a new place and started seeing a new GI. After moving to the new place i started flaring badly
i.e. last year March 2008 and my GI and did a colonoscopy and kept me on prednisone starting with 40mg and tapering every 10mg every 5 days.
After reaching 10mg i started seeing some symptoms coming back. So GI asked me to goback to 20mg and stay there for 10days and taper upto 5mg
every 10days. I did that and saw some improvement. During the month of october , my GI asked me to move to Colozal from Lialda. I'm now on
Colozal 3 - 3 / day and Canasa nightly. My biggest cocern is "It is happening only for me or it is general tendensy of this disease". I will
be good for few days and bad for few days. by saying BAD i mean that seeing some blodd in the stool and toliet paper. But this BAD is not
like heavy blood floating like Diaheria. It is just like some blood and mucos.
Even the bowel movements are also not same each day. Some days if i go 2 times in the morning , i won't go until next day. If i go 2-3 times
in the morning., I will go 2 times in the afternoon (This happens if i have a mild flareup/blood in the stool).
I'm totall frustated and confused with all this.
I'm not sure if i need to ask my GI to keep on small dosages of prednisone for few days or stick to the current medication.
Is it harmful to my colon if this pattern continues without getting healed properly?
Can i say I'm in partial Remission?
When someboday says that I'm currently in remission for 1,2,3 years or so..Does that mean that there is no blood at a ll?
Another biggest problem is my weight gain. I'm not gaining weight at all. Not sure what was the reason?. I'm eating lot of food as needed and
still no changes in my weight.
I'm very thankful for all of you guys to read this long story.
Appreciate if you can answer my questions and give your suggestions based on your experinces with this disease.........
Thanks All for your feedback and I wish you all A vey happy and joyful weekend..