HAS ANYONE HAD ANY SUCCESS WITH RAW FOOD DIETS OR OTHER ALTERNATIVE TREATMENTS?

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mamaluke
Regular Member


Date Joined Apr 2009
Total Posts : 55
   Posted 4/25/2009 9:46 AM (GMT -6)   
 
hi - i am the mother of a 24 yr old son who in the last year been stricken with a fairly severe case of UC. It doesn't seem like the meds are doing him much good and frankly, he seems to be sicker now than he was before he started all of them. We are at our witts end and are beginning to think that because the meds only mask the symptoms, they are really a dead-end in the long run. There is a guy named David Klein who says that he has had great success with healing the disease with a very specific raw foods diet approach, along with other things. He states that he suffereed with it for 8 years. Has anyone tried this? Does anyone know pro or con about his plan? Any insight would be greatly appreciated at this time. Good luck to all out there.
 
btw - he's on Remicade,  VSL#3 Probiotic,  Lialda,  and has begun acupuncture to treat stress and inflammation.

suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 4/25/2009 9:56 AM (GMT -6)   

I met a woman at our local CFA group who had acheived a 7 year remission of Crohn's disease by strictly following a macrobiotic diet.  After 7 years the diet failed to keep her in remission so she was back to local meetings looking for other options.

As for me, I tried many alternative approaches to treat my UC, see my signature line, but did not find personal success in any of them.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Cfromutah
Regular Member


Date Joined Mar 2007
Total Posts : 369
   Posted 4/25/2009 10:25 AM (GMT -6)   
I was in the same boat where no medications I tried helped me much and was in a flare for two years. Then I added more high magnesium and beta carotene foods to my diet and went into remission and have been in remission for three years from doing this. Initially added sunflower seeds and spinach daily to my diet to get in remission, others have used sunflower seed butter instead of seeds because the seeds may be a little rough on some people. This has helped others on this forum as well.

jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 4/25/2009 10:29 AM (GMT -6)   
Mamaluke, you may want to not use the all caps for your subjects. In internet etiquette this is considered screaming, and many people will not even read a thread that has all caps in the title or the thread. Just FYI.

I tried many different diets and supplements with no effect on my symptoms. I was fortunate enough to be helped by Remicade, I'm sorry this is not the case for your son.

Be aware that the only cure for ulcerative colitis is total colectomy (removal of the colon.) The medications do not cure, nor do they "mask" the symptoms. What they do when they work well is to control the inflammation so the symptoms go away. Also, please be wary of anyone who claims to have a "cure." These are false claims which prey on your hopes to separate you from your money. While some people find that specific diets help them, they are not cured, merely in remission.

I hope your son finds something to help him soon.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 
.


mamaluke
Regular Member


Date Joined Apr 2009
Total Posts : 55
   Posted 4/25/2009 10:39 AM (GMT -6)   
thanks for the internet etiquette - i am new to this. I'm happy to hear that you are finding success with Remicade. I wonder if you are experiencing any difficult side effects from it. I get so upset when I read different peoples' reactions to these different drugs. My son seems to be getting a lot of headaches suddenly and no one seems to know if it's the UC itself when a flare is happening, or if it's the Remicade.  Thanks for your response. Hope you stay well

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4538
   Posted 4/25/2009 10:52 AM (GMT -6)   
I'm sorry to hear your son is so sick and that the meds aren't helping him. I haven't tried any specific diets myself, but conventional doctors often recommend a low-fiber, easy-to-digest diet while flaring, such as the BRAT diet (bananas, rice, applesauce, toast). I would personally be scared to try the all raw food diet while flaring, b/c it seems like all that roughage would hurt going through an ulcerated gut, but if he wants to try it, that's his choice. I'm not trying to discourage you from it.

There is a book called What to Eat with IBD and another called The New Eating Right for a Bad Gut. The first is written by a nutritionist who has Crohn's Disease herself, and was originally diagnosed with UC. They are easy to follow and might give him some ideas of "safe" foods to eat that he could try. This disease affects us all differently though and some people can eat whatever they want while others are helped by avoiding certain foods.

Has your son tried rectal meds at all? Rowasa combined with Asacol really helped me. I hope he can find some relief soon.
25 years old; diagnosed March 2007;
Currently: persistant rectal inflammation
Asacol, 4 tabs, 3xday; Rowasa nightly; Viactiv; Metamucil wafers; multivitamin; Primadophilus Reuteri; sublingual allergy drops; Ortho Tri-Cyclen


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 4/25/2009 11:24 AM (GMT -6)   
I've had no side effects from the Remicade, other than mild tiredness the day of the infusion. Actually, the only drugs I had bad effects from were Mesalamine and Prednisone/Entocort. The others just didnt' work for me.
Judy
 
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"
 
.


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 4/25/2009 11:33 AM (GMT -6)   
I also looked at David Klein's diet, but I was so sick at the time, I knew I couldn't handle the roughage of raw food, which can be very irritating to an inflamed gut, and I wasn't willing to juice everything.
 
Kudos to you for looking for alternative/supportive therapies for your son. I'd highly recommend a couple of books for both you and him to explore: Optimal Digestion and Listen to Your Gut. These are both packed with information on ways to treat UC beyond the usual meds. Optimal Digestion also offers alot of eye-opening information on how a healthy digestive system is supposed to work and the ways we contribute to things going south - diet, antibiotic use, stress, etc.
 
I have been mostly in remission for several years due to a combination of ASA maintenance drug, clearing the system of bad gut flora, reestablishing good gut flora, dietary changes and lifestyle modifications. It's not easy and it's not quick, in my experience, it's what you have to do to get your life back.
 
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips.
 
 


mamaluke
Regular Member


Date Joined Apr 2009
Total Posts : 55
   Posted 4/25/2009 12:59 PM (GMT -6)   
thanks so much for your response - i will do all the reading you suggest and pass it on to my son. I can't help but question the feasibility of doing the raw food diet while he's in a flare like you did and juicing is like a full time job. I know this is a learning curve and I appreciate all the information I am getting. Thanks again.  Good luck to you in your quest for good health!

Joma
Regular Member


Date Joined Nov 2008
Total Posts : 222
   Posted 4/25/2009 10:44 PM (GMT -6)   
I was successful in putting myself into remission using various supplements when mesalamine was not working for me and I did not want to use steriods. However, the supplements did not help me maintain remission although I continued to use them. That being said, I was also pregnant at the time and then breastfeeding so those hormonal changes were also at work on my gut. I did seek the help of a natureopathic doc to help me with the supplements. The ones I used are as follows: probiotics(culturelle and another I cant remember the name of....but not primal defense or VSL3), slippery elm and marshmellow root tea - I would make a big pot in the morning and drink it all day, boswellia, digestive enzyms, folic acid, fish oil, l-glutamine and a herbal mix called Roberts Formula (it is a mix of slippery elm, marchmallow root, echinsea, cransbill and goldenseal).

I will second Judy when she writes to be careful of magical cures. UC is a cronic disease and while there are some people who experience miraculous remissions, most of us struggle along. For me supplements are used in conjunction with traditional meds but they are not the magic bullet I hoped they would be when I first looked at alternatives. jo

beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 4/25/2009 11:09 PM (GMT -6)   
I'm not sure if this is an alternative treatment per se, but I've been on LDN (low dose naltrexone) for a couple of months now and my GI tract hasn't felt this good since before my dx.  I've still got the tiredness that came with UC, but I can eat and drink whatever I want without any new upset in things.  Maybe if I cleaned up my diet I'd be 100%, but right now I'm so happy to be eating like a regular person.  :)

 
36 y.o. male
Diagnosed w/ UC in May '06, had symptoms since '99
Meds & supplements: LDN 4.5mg, Florastor, Lialda, Allegra, multi-vitamin, buproprion, fluoxetine, vit E, D, and zinc.
 
Eating a low sugar and wheat, and no dairy diet.


Zippy123
Veteran Member


Date Joined Feb 2009
Total Posts : 735
   Posted 4/26/2009 12:05 AM (GMT -6)   
Keep in mind them meds sometimes don't work for everyone and can actually make things worse. Of course doctors never seem to believe that. I just recently switched to the cheaper Sulfasalazine drug on a low dosage and my symptoms improved overnight, the Colazal actually was making me worse as I think Asacol did as well.

subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 4/26/2009 12:35 AM (GMT -6)   
The doctors push the drugs, because that's all they know--that and how to do surgery.

Not all foods affect everyone the same. Juice makes my symptoms worse. I'm fructose intolerant. Also, my body handles cooked foods better than raw ones.

Probiotics are good for increasing the good bacteria in the colon.

Keep a food diary to see whether or not particular food has an affect on your bowel movements. Pay particular attention to yeast, wheat, gluten, lactose, and fructose. For most people, white rice is usually safe to eat, and it helps provide bulk. Supplement with anti-inflammatory foods/ingredients such as turmeric--one of the most powerful anti-inflammatory compounds in nature. Turmeric can easily be added to rice. Read all ingredients. Many foods contain high fructose corn syrup.

Anti-inflammatory: turmeric, ginger, garlic, onions, cinnamon, green/herb teas, oily fish, almonds, hazelnuts, walnuts, flax seeds, sunflower seeds, pumpkin seeds, olive oil, lean poultry, green leafy vegetables, berries, fresh pineapple, soybeans, tofu, soy milk.

Pro-inflammatory: fatty meats, processed meats, dairy, eggs, sugars, artificial sweeteners, nightshades (tomatoes, white potatoes, eggplant, peppers).
Joy - 47 yrs and counting
Colitis Dec 06 (also have IBS)
Currently in remission
Don't expect your doctor to cure your health problems. Your health is your responsibility.

Lexapro (for stress), Probiotics and Vitamins (a whole bunch of them)
Avoid HFCS, foods high in fructose, artificial sweeteners
When flaring: eat anti-inflammatory foods, avoid pro-inflammatory foods
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)

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