My GI and his nurse explained that some of their patients went into the surgery with the intent on having the j-pouch, but after starting back up their lives again they just kept the ileostomy! After hearing that one woman ran marathons with her ileo and opted to keep it afterward had me thinking that I could do that too!
There are many success stories both ways. I weighed my options and lifestyle with the both the permanent ileo and the j-pouch, and just decided to go on with my life the second I was UC free...and I did!
Just think of surgery and a way for 'you' to take control of a very controlling disease. You are taking back your life, your ambitions, your dreams. We all have set life structures and goals, but when you have something as debilitating as UC that is all changed...but you have the power to get it all back!
Summerstorm is my age and living life to the fullest with her ileo, and it just got me thinking that it can be done. I did it and LOVE IT!!!
I wish you the best of luck and look forward to hearing of your decision and if surgery does occur what you're life is like afterward!!!
: ) Robin
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
"Your mind is like a parachute, it only works when it is open." -Unknown