Has anyone ever tried LDN (low dose naltrexone)

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Shadam
Regular Member


Date Joined Jan 2009
Total Posts : 307
   Posted 4/26/2009 9:07 AM (GMT -6)   
Has anyone every tried LDN, i've been reading that it is a miracle drug for Chrons and UCers if taken in a low dose (1-10mg compared to 100-300mg for other diseases). 
 
Does anyone know of any side affects of taking LDN and if it is bad for UCers to take.  Everything that I have read seems a little sketch on line.
 
Thanks!
Age: 25 / Male / Florida
Diagnosed: 11/08 / Pancolitis
Asacol - 2 x 3 day (waiting for results)
Prednisone / ended 1/09 (started at 30mgs and tapered down)
Mens Multi Vitamin - 1 a day
Calcium & Vitamin D3 - 1200mc of Calcium and 800iu of Vitamin D3
Metamucil Wafers - Once a day
Jaro - Dophilus Probiotic (3.4 Billion) - 1 a day
Diagnosed with PSC: 3/9 --now taking Urso


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 4/26/2009 9:10 AM (GMT -6)   
Couple threads on it. Do a search, up top right corner tab. They were pretty recent.
Proctitis DX 1999, Pancolitis DX 2008
Immuran
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3+Ca/1000mg DHA


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3670
   Posted 4/26/2009 11:28 AM (GMT -6)   
I'm on LDN now since 1/09, the doctor said Its beneficial for me even though right now I see no real improvement in my stools. Maybe my mood is better and maybe the inflammation that I had in my rectum is down, I'm still flaring. I was thinking of quitting, I don't know just yet.

Very mild left sided (could have fooled me with the "mild")  UC. STARTED LDN ON 1/25/09. Supplements:  Cod Liver, Probiotics, multi whole food vitamin, olive leaf extract.


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 4/26/2009 11:29 AM (GMT -6)   
I tried it about a month ago. It gave me severe muscle and joint pain. I could hardly walk. It was really weird and not a common side effect. I had to stop taking it and within a few weeks of stopping, the pain went away. I also was really tired while taking it. It can cause insomnia but it did the opposite for me. I just felt blah the entire time I was on it. I was bummed that I wasn't able to stay on it longer than a month to see if it would help with the UC.
Female, Age 38
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03, Diagnosed with UC 2/03
Current Meds:
Lialda, 6MP
Ferrex Forte
Acidophillus, Sacchromyces Boulardii, Oil of Oregano


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 4/26/2009 12:28 PM (GMT -6)   
There's a thread about LDN on the Crohn's board.
Female, Age 20
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (7 infusions), 2.4 g Lialda, Forvia, 6 Colazal, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement, 20 mg Prozac, VSL #3 DS, Turmeric
 


Shadam
Regular Member


Date Joined Jan 2009
Total Posts : 307
   Posted 4/26/2009 1:14 PM (GMT -6)   
From what I've read, LDN seems to be a little better for Chrons then UC.  I've also read that if you have liver problems then you shouldnt take it; I have PSC so I guess this was a waste of a topic idea
Age: 25 / Male / Florida
Diagnosed: 11/08 / Pancolitis
Asacol - 2 x 3 day (waiting for results)
Prednisone / ended 1/09 (started at 30mgs and tapered down)
Mens Multi Vitamin - 1 a day
Calcium & Vitamin D3 - 1200mc of Calcium and 800iu of Vitamin D3
Metamucil Wafers - Once a day
Jaro - Dophilus Probiotic (3.4 Billion) - 1 a day
Diagnosed with PSC: 3/9 --now taking Urso

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