Prednisone taper problems.

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JLG45
Regular Member


Date Joined Feb 2009
Total Posts : 114
   Posted 4/28/2009 5:30 AM (GMT -6)   
For the third time every time I taper below 35-30mg my flare comes back with a vengance.

Anyone else have this problem?

I'm back on 50mg and the Pred isn't helping. I suspect my GI Doctor will increase the dosage to 60 or 70mg. It seems that everytime I need to increase the dosage, it's even more than before.

Jaret
Diagnosed U.Proctitis 07

Flare Feb 09 - Diagnosed with Severe Pancolitis
Remicade, 50mg Prednisone, Cortenema PM, 1g 5 ASA suppository AM


mbx5
Regular Member


Date Joined Sep 2007
Total Posts : 365
   Posted 4/28/2009 6:07 AM (GMT -6)   
I tapered down to 10mg from 40mg....took many weeks.... I am now bleeding and flaring badly.... Yesterday I must have hit the toilet 15 times.... I am going to see a new GI today - hopefully he will increase the pred, or try something else....this sucks.
34 yr old male. UC for 14 years. Started left-sided, most recent scope shows pancolitis. 30mg pred (as of 2/01/09), 12x pills Asacol per day, 1mg Atavan per day (anxiety) when needed, 20mg paxil per day, Super-omega fish oil pills - 1x per day, Flax oil pills - 1x am, 1x pm, Culturelle probiotics - 2x am, 1x pm, Spinach and sunflower seed diet (moderated recently due to kidney stones). Multivitamin. Recent Endonasal brain surgery to remove non-cancerous hormone producing tumor on pituitary gland (and I am still more afraid of my UC!!) "I poop in the woods because I can"


jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 4/28/2009 6:53 AM (GMT -6)   
I know for me after a while I needed more and more prednisone to reach some peace. Eventually, pred stopped working. I see that you are also on Remicade and other meds.

I would definitely talk to the doctor about some other med options.


Good luck.
Jackie, 43
Pancolitis, DX October 06

Lexapro, Synthroid, Protonix,
Tapering prednisone down to 10 mg

Surgery March 13th- Total Colectomy
Jpouch surgery to be done in 3 steps


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 4/28/2009 6:57 AM (GMT -6)   
     I also had this problem before my doctor started me on 6MP.  Ask your doctors about it.  You must take it along with the prednisone, as it takes anywhere from three to six months to "kick in".  There are side effects but your doctor should go over them with you completely.  You will be required to receive monthly CBC's to monitor your white count.  Right now mine is 2.9, not too happy about it being that low, but it keeps your immune system from attacking itself and my GI doctor isn't too alarmed.  However, I cut my dosage from 75 mgm to 50 mgm one day and 25 mgm the next.  Since I did this my white count did improve somewhat...it was 2.4.  I am scheduled for another blood work up next week.  This will include not only the CBC but liver enzyme tests and pancreatic enzyme levels.  Living with this disease is mind boggling at times...but look at it this way...we are LIVING with it.  Oh, I might add, I was able to get off the prednisone Nov 1st and have been in full remission ever since.  It was a long seven month flare last year.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


lambkins
Veteran Member


Date Joined May 2008
Total Posts : 574
   Posted 4/28/2009 7:53 AM (GMT -6)   
I am tapering and have got down to 25mg but bms have become softer as yet no blood but am going more often cut down to 20mg this coming thursday so will have to see what happens also stomach pains are coming back am seeing GI in a week so seewhat he says i hope he does not put pred up as i hate it
  
  Diagnosed 22.5.08 with Lft sided U/C
  Meds Predfoam 20mg 2x day stopped started pentasa supps 1gm 26/6/08
 Asacol 800mg x2 twice daily
  Domperidone 10mg as needed
  co codamol 30/500 x2 when needed
  Asacol foam 2g nightly 19/3/09
  Prednisone 60mg 19/3/09 tappering after2wks

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