Some people flare within a month of stopping meds, others may go several years. Because this condition comes and goes naturally, it's hard sometimes to assess the effectiveness of treatments. The recommendation is that you continue on maintenance meds, even when in remission, to help prevent or lessen flares.
If you're totally decided you don't want to continue taking meds surgery is probably a good idea, especially since you have pancolitis.
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal, Remicade, Nature's Way Primadophilus Reuteri.
"My life is an ongoing medical adventure"