How long until flare returns after stopping meds

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Sep 2007
Total Posts : 41
   Posted 4/28/2009 4:49 AM (GMT -6)   
Just wondering how long after you went off your meds that the flare up returned. I too thought the spinach/sunflower seed diet put me into remission until I went off most of my medicine and now I am in a severe flare. It is something I would like to try but it frightens me because it is not regulated. Also to PSA>dehli are you glad you had the surgery? Do you feel normal again. My biggest thing is even when I am at my best I still do not feel 100 percent. I have no energy or stamina. I am seriously considering surgery but also scared of that. I do have an appointment in May with a surgeon to get all the details so I can make a decision.

Post Edited By Moderator (Lonielane) : 4/28/2009 8:48:01 AM (GMT-6)

Regular Member

Date Joined Jan 2009
Total Posts : 498
   Posted 4/28/2009 5:54 AM (GMT -6)   
If you take too much stress, then immediately. A lot depends upon your positive attitude and family life too. As you know, people who have a very supporting spouse, have a better immunity, then those who are on the other side of fence.
45 years Male Attorney
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005; Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle: Albert Einstein
"What you are aware of you are in control of; what you are not aware of is in control of you."

Forum Moderator

Date Joined Mar 2003
Total Posts : 10407
   Posted 4/28/2009 7:52 AM (GMT -6)   
Some people flare within a month of stopping meds, others may go several years. Because this condition comes and goes naturally, it's hard sometimes to assess the effectiveness of treatments. The recommendation is that you continue on maintenance meds, even when in remission, to help prevent or lessen flares.

If you're totally decided you don't want to continue taking meds surgery is probably a good idea, especially since you have pancolitis.
Moderate to severe left-sided UC diagnosed 2001.
Flared for 5 years, finally in remission with Remicade since March 2006.
Avascular necrosis in both shoulders is my "forever" gift from steroids.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. 
"My life is an ongoing medical adventure"

Veteran Member

Date Joined Dec 2008
Total Posts : 3231
   Posted 4/28/2009 10:45 AM (GMT -6)   
I was flare-free for two years. I had to go on antibiotics three times over a year for a bladder infection. I got another flare as a result.
Joy - 47 yrs and counting
Colitis Dec 06 (also have IBS)
Currently in remission
Don't expect your doctor to cure your health problems. Your health is your responsibility.

Lexapro (for stress), Probiotics and Vitamins (a whole bunch of them)
Avoid HFCS, foods high in fructose, artificial sweeteners
When flaring: eat anti-inflammatory foods, avoid pro-inflammatory foods
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)

Regular Member

Date Joined Mar 2007
Total Posts : 369
   Posted 4/28/2009 11:20 AM (GMT -6)   
with my experience it could have been nutrients getting imbalanced from something in your diet that started your flare. The two nutrients that can throw the magnesium and beta carotene out of balance from the spinach and sunflower seeds is choline and calcium. meats and eggs are high in choline and of course cheese and milk are high in calcium. Has your intake of any of these changed lately? Do you still take a calcium supplement twice a day? How often do you eat chicken, eggs and beef?

Post Edited (Cfromutah) : 4/28/2009 11:25:02 AM (GMT-6)

Regular Member

Date Joined Sep 2007
Total Posts : 41
   Posted 4/28/2009 1:12 PM (GMT -6)   
i was eating spinach and carrots with white rice and a little butter (about 1/3 cup of each) every day for breakfast if you can believe that. I just wanted to make sure i got it in. about the same time i felt my best the med i was on could have kicked in. i did start eating fast food and i soda a day. I know that did not help. i did cut back to about every other day with spinach as i felt better. I did quit the calcium when I quit the prednisone. Did great for about a month then went off asacol. about one month later i started flaring. kicked up the spinach and carrot to twice a day then for a one day that was all i ate. I got worse with fever. so now I am back on meds and feeling down that it did not work for me. I will not take prednisone. I am on entocort the steriod that is like prednisone for the colon. I really dont want to take the posionous drugs. Ready to take it out (she says with no confidence in that statement) I do eat meats and chicken . I will continue with the spinach and carrots and soon as I can stomach it again. I was so nasueated and gagged it down. Never really did sunflower seeds because always told to avoid. I am the one who told people about the sunflower butter originally i think. I did eat it ocassionally. Anyway I hope it will work again. I know I wont have surgery till november because of work and finances. I am going to find out the details and make a decision.

Veteran Member

Date Joined Feb 2009
Total Posts : 735
   Posted 4/28/2009 1:36 PM (GMT -6)   
I would recommend staying away from soda, sugar and fast foods, spicy foods. I can eat sunflower seeds and have no negative effects and neither does eating fiber like oatmeal. Of course it may be different with each person.

Regular Member

Date Joined Mar 2007
Total Posts : 369
   Posted 4/28/2009 3:10 PM (GMT -6)   
well I can stay in remission with no spinach if I eat carrots and sunflower seeds, peanutbutter, almonds etc often so I would definitely eat the seeds or sunflower seed butter and other high mag foods besides spinach. I wouldn't over do beta carotene either. I feel like crap when I get too much. But also feel like crap when I don't have enough. I need to keep it just right to feel my best.
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, March 24, 2018 10:17 AM (GMT -6)
There are a total of 2,943,450 posts in 322,953 threads.
View Active Threads

Who's Online
This forum has 161323 registered members. Please welcome our newest member, preet.
349 Guest(s), 13 Registered Member(s) are currently online.  Details
LifeCurves, Lendi, bleepitybleep, logoslidat, acarined, Fyrcat, Hoagie, Girlie, Saipan Paradise, NotQuiteAntonio, straydog, Jack & Diane, suchatravesty