for those who have had surgery

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mommafreds
Regular Member


Date Joined Sep 2007
Total Posts : 41
   Posted 4/28/2009 6:06 AM (GMT -6)   
Which one did you get (jpouch etc) ?
how long were you laid up and how much work did you miss?
Are you happy with your decision?
What are you trips to the bathroom like now?
Do you finally feel normal. (mostly what I want back is my energy and not feeling like I am 84 but 44)?


I have an appointment in 2 weeks with a surgeon to find out the details. It scares the heck out of me but at the same time I am sooooooooooo tired of being ill and unproductive.
DIAGNOSED 2004 PANCOLITIS
CURRENT MEDS: PREDNISONE 5 MG (DOWN FROM 40MG)DAILY
AZATHIOPRINE 100MG DAILY
ASACOL 400MG 4TABS THREE TIMES/DAY
PROBIOTICS: FLORA-Q AND ALIGN
ANTIDEPRESSANT: BUDIPRION 150MG DAILY
SUPER B COMPLEX WITH C VITAMIN DAILY
OSCAL WITH D TWICE DAILY


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 4/28/2009 6:50 AM (GMT -6)   
I had J pouch- Two stage surgery.

Since I was on steroids for quite long, the recovery was a little slow. I had my take down on March 13, 2006, and despite the incisional burst out of small intestines, I had started working on April 12, 2006. I drove myself to the office.

Trips to bathroom depend a lot on the diet, which you are having. I am still going 8 to 10 times. But it is not loosies or D, as some people say. It is formed stool.

The last one is a million dollar question???? No comments as of now. Let me keep something up my sleeves. Ha Ha Ha.


45 years Male Attorney
Diagnosed UC October 1989
 
Had two stage J Pouch Surgery Nov 2005; Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
 
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle: Albert Einstein
 
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 4/28/2009 9:27 AM (GMT -6)   
I have a perm ileo.

I was useless for about 2 weeks, then starting getting some energy back, i didnt go back to work for two and a half months, but i could have gone back after 6, my schedule just got messed up.

VERY happy with my decision!

since i have a perm ileo, i just empty a bag when i go, so it takes like 2 or 3 minutes, and i just do it when i pee. It does depend on what i have eaten though. Different foods have different transit times.

I feel totally normal! In fact my family keeps telling me i am acting like a teenager!

mommafreds
Regular Member


Date Joined Sep 2007
Total Posts : 41
   Posted 4/28/2009 1:47 PM (GMT -6)   
for summerstorm....can you tell your bag is filling and is that distracting...weird question i know. thanks for the reply and i am happy you feel young and energetic!
DIAGNOSED 2004 PANCOLITIS
CURRENT MEDS: PREDNISONE 5 MG (DOWN FROM 40MG)DAILY
AZATHIOPRINE 100MG DAILY
ASACOL 400MG 4TABS THREE TIMES/DAY
PROBIOTICS: FLORA-Q AND ALIGN
ANTIDEPRESSANT: BUDIPRION 150MG DAILY
SUPER B COMPLEX WITH C VITAMIN DAILY
OSCAL WITH D TWICE DAILY


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 4/28/2009 9:29 PM (GMT -6)   
its not distracting, a good deal of the time i forget i have it. Sometimes you can feel the food come out, if you have eaten certain things, or if you have alot of gas, but thats rare.
If i let it get really full, too full, i can feel it then.
But most of the time i dont notice it.
I hope that answers your question.
And i hope you get better and feel young and energtic soon!

suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 4/30/2009 12:44 PM (GMT -6)   

I had the jpouch surgery 8 years ago in 2-steps.

Missed 3 weeks of work after the first step, 3 weeks missed after the 2nd step.  Worked the 5 weeks between both surgeries.

I have never regretted my decision; I love the jpouch as it affords me the freedom to hike and backpack with no worries.  I hike a lot; currently in Kauai and doing jungle hikes.  Have done long distance hikes (100-200 miles) through England, Scotland, Ireland, and the high Sierras. Currently hiking in Kauai.

I have no idea what my frequency is, it doesn't interfere with my activities, though.

 

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

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