Colitis and Prenatal Screening

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New Member

Date Joined Mar 2007
Total Posts : 9
   Posted 4/28/2009 2:00 PM (GMT -6)   
I recently did the IPS screening/Triple Screening with my pregnancy and the result just came back screen positive.
Normally I would do this kind of testing but at the request of my GI doctors and to help science I did. 
My doctor wanted to send me for further testings because the Downs came back 1 in 70 but I refused.
I can't help but wonder if my Colitis played a part in the postive result here's way my first set of blood was down a week following my remicade infusion and the second set a week before when I was flaring up again, so I think the test was flawed.
Has anyone else had this issue
Mommy to Ethan April 2007, my remicade baby.
Diagnosed in January 2007
Remicade since February 2007 every 6 weeks
Likely never to achieve remission and to be on remicade for life
Due October 2009.

Regular Member

Date Joined Jul 2007
Total Posts : 49
   Posted 4/28/2009 4:03 PM (GMT -6)   
Hi Sarah,
I also tested positive for downs when I was pregnant. Although I didn't know that I had colitis at the time, I did have all the symptoms of it, I just wasn't officially diagnosed with it yet. I forgot what the exact downs numbers were that I came back positive with. Now, I cannot tell you if it was UC that flawed the downs testing, but I can tell you that I personally believe it was my age (I was 40 at the time). They factor in age into the test results - the older you are the higher your chances will be. They sent me for additional testing (some kinda higher tech ultra sound device). That sent me and them into another spin wheel because the results from the ultrasound were that my baby's limbs were shorter than normal (I believe that's considered a downs marker). So, the whole pregnancy I spent worrying and worrying and planning everything out in my life to figure in a baby with disabilities. Despite the medical community predictions my baby did not have downs and was born healthy. I only have one child (at forty it was kinda hard to get pregnant again!) and I regret that I did not enjoy those pregnancy months more instead of filling those days with a fear that never came to reality. Enjoy your pregnancy, cherish the time you have with the life growing in you ..... really, don't worry about downs .... the triple screening has a high rate of false positives and I can't believe the medical community still uses it. And ..... Congratulations!

Scrap Girl
Veteran Member

Date Joined Jan 2007
Total Posts : 653
   Posted 4/28/2009 4:33 PM (GMT -6)   

Sarah, I never did the screening but I remember with our first child they did an ultrasound and said it looked like he had Down's because of his short limbs and he had extra skin on the back of his neck - which I guess is a sign. They were also concerned that he could be a dwarf. The doctor sent us to a specialist who wanted to do an amnio - which is pretty risky in itself and we were going to be happy with whatever we were given. We decided against it and our son was born healthy with no problems. I remember when his pediatrician came to the hospital for the first time and he told me how much he hates some of these ultrasounds because they get people all worked up.

Diagnosed with UC in Feb. 2005
Colazal (9 a day)
Folic Acid

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