Well, I had my colonoscopy today. I was sedated, but it still hurt so bad.
Luckily because of the conscious sedation, it seemed like it was over quickly. Then the dr came out with the bad news. He said my colon looks even worse than it did last summer when my flare-up first started. He said I have two options now. I can get on Imuran in combination with Remicade - but that the combination of the two drugs greatly increases my chanced for getting blood cancer. The other option is surgery.
Here's the thing though. I'm supposed to be going to Hawaii one week from Sunday. He gave me Prednisone to see if that will help with the symptoms short-term so that I can still enjoy my vacation. But my thought is, am I wasting a week of paid vacation time by going to Hawaii? Should I cancel my trip and use that paid vacation time for surgery? Or should I enjoy one last hoorah before going under the knife? I will still have some vacation time left afterwards. How long will I be out of work after surgery?
Oh, and as a side note, can I just share how thrilled I am that I will be missing yet another summer? I missed last summer because the flare-up was so bad. Now if I have to have surgery before the summer even starts, I'll be recovering then going in for stage 2 of the surgery this summer. Speaking of, can I go swimming with a bag on me after stage 1?
Diagnosed w/IBS: Oct. 2006
Diagnosed w/UC: Jan. 2007 (proctitis), July 2008 (pancolitis)
Canasa (helped the first flare when it was just proctitis); Rowasa enemas (did not help as the following colonoscopy confirmed pancolitis); Lialda ( 2 pills in the morning, 2 pills in the evening, soon to be 2 pills in the morning only once I'm off steriods); Prednisone; Protonix (only took while on prednisone); Remicade infusions, started at 5mg/kg (Aug 2008), increased to 7.5mg/kg (March 2009), increased to 10mg/kg and increased to every 6 weeks (April 2009) - 7 infusions so far, next infusion on 5/28 continuing every 6 weeks; Zyrtec-D (for allergies); Toprol (a generic form, 25 mg, for a rapid heart rate)
Supplements: Women's One-a-day multi-vitamin; Super B-complex
w/vitamin C, Iron supplements, Omega-3 Fish Oil (coated, not sure how much except one soft-gel daily), Aloe Vera supplement (two daily), Acidopholis, Probiotic Align
Spinach and Sunflower seed butter diet (starting 3/21/09) (will try again once I can eat normally again)
Current Status: April, 2009 - suffering another flare-up :(