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Scorpion24
Regular Member


Date Joined Mar 2009
Total Posts : 63
   Posted 4/30/2009 12:27 AM (GMT -6)   
Is there an official site of some type that has updates on new research about Ulcerative Colitis?

I'd love some type of link to it if you know of any since I want something more reliable... thank you
Born with Ricketts (Feb, 1990) --beat it--
Diagnosed with Proctosigmoiditis (March, 09) --beating the 'crap' out of it--

Current status: flare-up


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 4/30/2009 12:58 AM (GMT -6)   
No idea. I would do some surfing and get back.
45 years Male Attorney
Diagnosed UC October 1989
 
Had two stage J Pouch Surgery Nov 2005; Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
 
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle: Albert Einstein
 
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


geminisunset
Regular Member


Date Joined Sep 2008
Total Posts : 153
   Posted 4/30/2009 8:40 AM (GMT -6)   
The only one I know of is the Crohns and Colitis Foundation's website: ccfa.org.
GeminiSunset
Diagnosed w/IBS: Oct. 2006
Diagnosed w/UC: Jan. 2007 (proctitis), July 2008 (pancolitis)
Medications: Canasa (helped the first flare when it was just proctitis); Rowasa enemas (did not help as the following colonoscopy confirmed pancolitis); Lialda (2 pills in the morning, 2 pills in the evening, soon to be 2 pills in the morning only once I'm off steriods); Prednisone; Protonix (only took while on prednisone); Remicade infusions, started at 5mg/kg (Aug 2008), increased to 7.5mg/kg (March 2009), increased to 10mg/kg and increased to every 6 weeks (April 2009) - 7 infusions so far, next infusion on 5/28 continuing every 6 weeks; Zyrtec-D (for allergies); Toprol (a generic form, 25 mg, for a rapid heart rate)
Supplements: Women's One-a-day multi-vitamin; Super B-complex w/vitamin C, Iron supplements, Omega-3 Fish Oil (coated, not sure how much except one soft-gel daily), Aloe Vera supplement (two daily), Acidopholis, Probiotic Align
Diet: Spinach and Sunflower seed butter diet (starting 3/21/09) (will try again once I can eat normally again)
Current Status: April, 2009 - suffering another flare-up :(


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 4/30/2009 9:30 AM (GMT -6)   
ccfa.org is the best place I've found too.

I'd like to get the journal they publish called IBD. The ccfa website has selected articles on their website each month, but I'd really like to have the whole journal. It's expensive for individuals, though. Here's the link to the page on ccfa's website that has articles:

http://www.ccfa.org/ccfaprof/ibd-journal/archive
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).

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