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s2kredhead
Regular Member


Date Joined Apr 2009
Total Posts : 47
   Posted 4/30/2009 12:05 PM (GMT -6)   
Sorry for the long post, but I'm new to this board and hope you can give me some suggestions. I was diagnosed with mild UC in May '06 in the sigmoid area (so I guess it's technically either proctitis or left-sided colitis). My initial symptoms were gas, bloating, constipation, and blood.
 
Azulfidine worked for about a year but then my stools started to loosen. At that point, I started the Specific Carbohydrate Diet (SCD), which resulted in some immediate changes and improvements to my loose stools. By the end of one year on strict SCD, I was completely off meds (July '08) and symptom free. I had outpatient surgery for carpal tunnel on 3/12/09. about 2 weeks later, I started seeing blood in my stools, and then mucus, too. I had no other symptoms (no pain, gas, loose stools, anything). The blood is a small amount and very bright, so I assume the lesion is in or near the rectum.
 
I modified my diet back to the introductory foods, tried eliminating the allowed diary items (cheese and yogurt) and after 2 weeks of no change, I started taking azulfidine 2x/day. After a week of no change, I increased the meds to 3x/day. about 4 days ago, the blood nearly disappeared. I had a doctor's appointment yesterday and he agreed that I should just stay the course with the azulfidine since it seemed like I was improving. Then today, there was more blood.
 
I am going on vacation next Thursday and am stressed about this flare (which doesn't help, I know). I'm wondering if I should call my GI back and talk to him about some rectal meds. I don't know anything about them, but wonder if others have had experience with them helping to stop the bleeding better than oral meds.
 
Kathy
UC since 12/05
SCD since 7/07
med-free and symptom-free from 7/08-3/09
currently in a flare

geminisunset
Regular Member


Date Joined Sep 2008
Total Posts : 153
   Posted 4/30/2009 12:09 PM (GMT -6)   
Hi Kathy,

When I was first diagnosed, I only had proctitis. My dr. put me on Canasa suppositories (not sure I'm spelling that right). That worked great for me at the time. Especially with a vacation coming up, I would definitely call your dr and see what he suggests. Definitely mention your interest in the rectal meds.

Good luck!
GeminiSunset
Diagnosed w/IBS: Oct. 2006
Diagnosed w/UC: Jan. 2007 (proctitis), July 2008 (pancolitis)
Medications: Canasa (helped the first flare when it was just proctitis); Rowasa enemas (did not help as the following colonoscopy confirmed pancolitis); Lialda (2 pills in the morning, 2 pills in the evening, soon to be 2 pills in the morning only once I'm off steriods); Prednisone; Protonix (only took while on prednisone); Remicade infusions, started at 5mg/kg (Aug 2008), increased to 7.5mg/kg (March 2009), increased to 10mg/kg and increased to every 6 weeks (April 2009) - 7 infusions so far, next infusion on 5/28 continuing every 6 weeks; Zyrtec-D (for allergies); Toprol (a generic form, 25 mg, for a rapid heart rate); Prednisone 40 mg daily
Supplements: Women's One-a-day multi-vitamin; Super B-complex w/vitamin C, Iron supplements, Omega-3 Fish Oil (coated, not sure how much except one soft-gel daily), Aloe Vera supplement (two daily), Acidopholis, Probiotic Align
Diet: Spinach and Sunflower seed butter diet (starting 3/21/09) (will try again once I can eat normally again)
Current Status: April, 2009 - suffering another flare-up :( Surgery may be my next option.


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 4/30/2009 12:24 PM (GMT -6)   
Definitely check out the rectal meds! There are mesalamine and steroid enemas and suppositories. I use Rowasa, which is a mesalamine enema. I haven't had much problem with bleeding, but it does really seem to help my urgency and frequency. The enemas reach farther up in the colon than suppositories do.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).


s2kredhead
Regular Member


Date Joined Apr 2009
Total Posts : 47
   Posted 4/30/2009 12:26 PM (GMT -6)   
Thanks GeminiSunset.

s2kredhead
Regular Member


Date Joined Apr 2009
Total Posts : 47
   Posted 4/30/2009 1:03 PM (GMT -6)   
fruitgirl said...
Definitely check out the rectal meds! There are mesalamine and steroid enemas and suppositories.
Thanks! I just left a message for my GI to see if he agrees with trying one of these. It really feels like the irritation is close to the opening - so I'm thinking that maybe the suppositories might do the trick. The medical assistant said they might have some samples I can get today or tomorrow. I'm feeling better now with a plan of action. :)
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