I agree Old Hat! I hate it too! It is hard to know who or what to believe at this point. I have been seen new doctors and a Colo-Rectal surgeon and just had a rectal resection. The surgeon believes the ulcer was caused by a pelvic floor prolapse (bladder, uterus and vagina collapse during straining for a bm) and not by UC since the ulcer was solitary and not typical of UC. I currently have no other ulcerations so supposedly I am in remission. I was scared to get the resection because I know the dangers of getting a resection with UC, but like the surgeon said, better to start with the smallest of surgeries than to tear out everything when I don't even have any evidence of having UC at the moment.
Diagnosed w/ Left-sided UC in 1995 at age 15,
Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, had 1 inch deep rectal ulcer 2004, Remicade was working till August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia-(actually reaction to Remicade) Current meds: Clorazepate, Lomotil, Lyrica start 1/17/08, Humira start 4/4/08 end 2/09, 6MP start 6/24/08 100mgs, Lialda start 2/09 2.4 mgs daily-meeting w/ colo-rectal surgeon for rectal ulcer