Has anyone here had surgery for Pelvic Floor Disfunction?

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princesscolon
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Date Joined Apr 2006
Total Posts : 733
   Posted 4/30/2009 3:23 PM (GMT -6)   
I was told I have a bad case of this and that I will need surgery for it.  Does anyone here have any experience with it? Thanks.
Diagnosed w/ Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, had 1 inch deep rectal ulcer 2004, Remicade was working till August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia-(actually reaction to Remicade) Current meds: Clorazepate, Lomotil,  Lyrica start 1/17/08,  Humira start 4/4/08 end 2/09, 6MP start 6/24/08 100mgs, Lialda start 2/09 2.4 mgs daily-meeting w/ colo-rectal surgeon for rectal ulcer


Old Hat
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Date Joined Feb 2007
Total Posts : 5191
   Posted 4/30/2009 10:18 PM (GMT -6)   
Isn't that connected with gyno problems? I hate how doctors are always pushing you, a relatively young person, toward some kind of surgery while they keep changing your diagnosis. Hopefully Judilynn can advise you on this, plus she also knows which med schools in Texas have good gastro depts. to consult. Best wishes! You surely deserve a break-through. / Old Hat (30 yrs with left-sided UC ... [etc.])

princesscolon
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Date Joined Apr 2006
Total Posts : 733
   Posted 5/1/2009 8:44 AM (GMT -6)   
I agree Old Hat! I hate it too! It is hard to know who or what to believe at this point. I have been seen new doctors and a Colo-Rectal surgeon and just had a rectal resection. The surgeon believes the ulcer was caused by a pelvic floor prolapse (bladder, uterus and vagina collapse during straining for a bm) and not by UC since the ulcer was solitary and not typical of UC. I currently have no other ulcerations so supposedly I am in remission. I was scared to get the resection because I know the dangers of getting a resection with UC, but like the surgeon said, better to start with the smallest of surgeries than to tear out everything when I don't even have any evidence of having UC at the moment.
Diagnosed w/ Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, had 1 inch deep rectal ulcer 2004, Remicade was working till August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia-(actually reaction to Remicade) Current meds: Clorazepate, Lomotil,  Lyrica start 1/17/08,  Humira start 4/4/08 end 2/09, 6MP start 6/24/08 100mgs, Lialda start 2/09 2.4 mgs daily-meeting w/ colo-rectal surgeon for rectal ulcer


Old Hat
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Date Joined Feb 2007
Total Posts : 5191
   Posted 5/2/2009 7:07 PM (GMT -6)   
Here's hoping that the Lialda + resection for solitary ulcer removal will keep you in a good long remission. You've been so brave in dealing with that blasted ulcer. Back on the pelvic floor question, that tends to be a problem for middle-aged and/or menopausal women. The book Our Bodies, Ourselves deals with it in terms of exercise to re-strengthen the muscles involved. If you want to read what is recommended, google the title & you'll see links to the chapter on middle-age etc., plus their Health Resource Center. I think you can also contact them directly (in Boston) for further info on any subtopics they cover. / Old Hat (30 yrs with left-sided UC ... [etc.])
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