I would totally refuse the ERCP as well as the liver biopsy.
If the MRCP showed the classic beading...what's the reason for finding out what stage?
An ERCP can cause side effects such as pancreatitis, advancement of PSC and whatever else.
There are definitely faults to testing...sheesh,and you've already experienced one with the biopsy.
I miss the point of needing to know through some testing...but if the doctor suspects you have a blockage, I guess that would be a reason for an ERCP...but that should be seen in the MRCP or maybe a scan?
I refused the ERCP. NO liver biopsy was offered to me....and I'd refuse that as well.
I'm in early stages as per my last MRCP, and maybe in the next year or so, I may have another one.
The urso has brought down my liver enzyme numbers. I'd like to know if you are on URSO and what dosage as well.
What about the liver enzyme readings...what all has the doc done?
The last question...what does the doc hope to gain with all the tests. UC Dude....is yours confirmed or are they still in a quandry if you have Psc?
*Heather* Status: mild flare enemas tapered to every 2nd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 x2 daily); Salofalk enemas nightly for flares & taper to maintenance
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux); Effexor XR 75mg(depression); Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!
Post Edited (quincy) : 5/1/2009 2:16:24 AM (GMT-6)